Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. L

    article in paper

    I personally am not for it. I think that everything we go through is our test and will make us better hereafter. I call it the refiners fire. Well my religion calls it that as well. I believe when it is our time to go we go and I would not shorten that time. I want to leave it in Gods...
  2. L

    Heart Palpitations

    Hey lindsey, Yes, if you did read I did just go through this a bit ago. Let me know if you want to talk at all. Thanks debi for hte reference. I am glad I am good for something. LOL I was wondering LIndsey why they put you on O2 if your sats were 93, that isn't low, it is only considered...
  3. L

    Starting O2

    I know Luke already mentioned this, about having a study done. I had to have a sleep study, which was having the oximeter on my finger all night. I was totally unaware that my sats dropped that low while I was sleeping. It got down to about 84 and I had been sleeping great without any...
  4. L

    Starting O2

    Sonia, I know I have told you a bit about my experience with O2, but I was on it continuously for over a year and now I only use it to exercise and sleep, but I feel great during the day when I dont use it. You can come off of it, it isn't always easy, but it does happen. I haven't read...
  5. L

    Need Help!

    NIght is very good, I just read it a few months ago. Also teh travelers gift if you haven't read it. I loved it.
  6. L

    Birth control question

    wow, I hadn't heard that, I haven't had a problem at all. It was only when I went off the bc for a few months that I got pregnant, which is what we were shooting for. OTher than that it has worked great for me. I take Apri, just a pill.
  7. L

    In Memory of Jamey

    I hadn't read that analogy, but wow what truth. I am sorry to hear of his passing. My prayers go out to his family and friends.
  8. L

    RIP Cathy Martinet

    I'm so sorry to hear this. My thoughts go out to you and her family.
  9. L

    He's Still Sick Again

    Hey lilmeggies, I am with littledebbie on this one as well. My bad, I am sorry you are going through this right now. I know it isn't easy. Please keep us updated.
  10. L

    ALLIE

    I know, it stinks because it would be hilarious!
  11. L

    ALLIE

    Hey Seana, I brought the whole "mastercard" idea up to Allie a little while ago and we worried that it is a patent and couldn't be used. I love it though. WHo knows maybe it would work.
  12. L

    question about getting pregnant

    NOthing changed for me either. Other than when hospitalized they did not do tobramyacin because it can cause deafness in the fetus. I could still do Tobi however since it is taken directly into the lungs. They didn't feel that it would harm the baby. If you check out my blog you will see...
  13. L

    Just started Hypertonic Saline...Have Q's

    I tried the 7% once and it made me feel tight and not able to take a deep breath. I went and did PFTs immediately after and they had gone down 10% from an hour earlier. From 44-32. It was crazy. They said that I had bronchospasm from it and didn't want me to do it anymore. Because of this I...
  14. L

    Question about FEV1 and PFT

    I don't want to frighten you or anything, this is definitely not meaning that his tests won't come up, but in our clinic the rule of thumb is that if the numbers (of your PFTS being, the FEV1 or FVC(total volume) is down 10% then it is time for IV meds, and hospitilazation.. EVery clinic is...
  15. L

    I cheated my surgery and won!!!

    Thats awesome, good for you! I have a question as to why you were having surgery on your septum? I have a whole in my septum, but they said it didn't need anything done at this point.
  16. L

    Excercise instead of CPT

    My Docs, are all about exercise, but they are also pro CPT for sure. I exercise 4-5 times a week and then do CPT 4 times a day. I feel that exercise gets stuff that is a lot deeper. It definitely gets the airways flowing.
  17. L

    Med Ques. - for everyone

    I have to say that I am like Luke in the fact that I will be eating and then after we are done ask my husband if I already took my enzymes. He really doesn't understand how I can not remember, I think it is so programmed that we do it like clockwork sometimes and then wonder if we did it at...
  18. L

    Med Ques. - for everyone

    I'm guilty, I too forget my enzymes, azithro on occasion, you would think we would get it down pat after awhile. Especially the enzymes, I have been on them now for 26 years, how do you forget something like that. Crazy, I still have no idea why, but it does happen.
  19. L

    Hypertonic Saline

    I only do 3% twice a day and just started while I was in the hospital. I tried the 7% and had terrible bronchospasm. It brought my PFTs down 10 pts immediately following the treatment so 3% is much better for me. It seems to be helping as well. Or at least I am getting up more crap which is...
  20. L

    I am a Graduate Nurse

    What an amazing feeling to know that you finished and you finished well. Congratulations!!! Soak it all in and never forget what it took to get to where you are! You have worked hard and it has all been worth it.
Top