Cystic Fibrosis Forum (EXP)

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  1. L

    For Win Ace & Co.

    Curious one, I in no way want to get into a abattle of religion, I do however think that you should check your facts about mormonism. Multiple wives and wives at 14-15 is just incorrect.
  2. L

    question for Winace

    I posted this before but I don't think you were able to read it or maybe you were and you just didn't feel compelled to answer. If not that's fine, I was just wondering. Good luck to you. Hey I was just looking at your website and was wondering if you need to be on oxygen at all. I am...
  3. L

    Has anyone ever heard of this place?

    A few weeks ago I got an email talking about this center at the dead sea. I was wondering if any of you have heard of this or had experience with it? Just curious. http://www.cfcenter.co.il/dsinfo.htm Emilee
  4. L

    Question about symptom my step-son is having

    Jen, that is so exciting that your step son is doing so well. What good news. I can empathize with you on picking your battles and have to commend you for not trying to be his mother. My parents are divorced and he doesn't need another mother but someone that cares about him and about his...
  5. L

    Meropenem

    I have been on Meropenum numerous times all for pseudomonas. I haven't had any side effects that I have noticed but again it differs with everyone. At times a mix of meds with Mero has caused sever nausea for me as well. It has helped me tremendously in improving my PFTS. Emilee with 2 E's
  6. L

    gluconutrients

    I believe that if it wasn't working people would see that for themselves and be smart enough to quit taking the stuff. Those who do take it are not stupid and the effects that they see obviously are worth the money that they are spending or they wouldn't be taking them.
  7. L

    For Win Ace & Co.

    Thank you Jennifer. I applaud you. I too very much believe in Heavenly FAther and His son. I do not however think that it is even remotely okay to tell someone that they are going to hell. There is still so much to be learned from our Savior. Thanks again for your words. I also enjoy the...
  8. L

    gluconutrients

    Bambi, I absoulutely agree with you that there should be a study done. I don't understand why it isn't being done. I am also leery that it is a fortune 500 company. As for the Placebo affect. I am well aware of what that is. I do have to say that if suggestion is the reason... I would have...
  9. L

    gluconutrients

    All I can say and you can all put what you want about what I have to say is that I have had the fight of my life over the past year and a half. I decided to try these products due to the fact that at the rate that I was going I had nothing to lose. I have been on ambrotose for just about a...
  10. L

    Update On Erin...

    Lindsay that is fantastic. I am so happy for you. If you are not able to email just know that there are people out there that really are thinking about you and hope the best for you. Good luck with everything. I know we have been emailing a little so if you want to keep in touch after you go...
  11. L

    This is a response for Kasey

    Actually I don't think that anyone was being criticized for grief. As for the fact that you think we are sally sunshines all of the time. Come on. Of course we have our bad days. I was just relaying some of my beliefs because Kasey had said that it was interesting to get other peoples...
  12. L

    How many women.....

    I hate to be the only one that bears bad news in regards to pregnancy. It is a very long and detailed story so I won't bore you with the details. I was doing really well with my pregnancy up until about the 6 month mark. Then things started to take their toll. The worst of it being that due...
  13. L

    Question about symptom my step-son is having

    Julie, I just have to comment. You have no reason to justify yourself to anyone. It is nobody's business. Good for you for doing so much research and being able to take control of you and your husbands situation. I have to say that I am very impressed with the knowledge that you have...
  14. L

    This is a response for Kasey

    Kasey, I completely understand the pain that comes when someone dies. I can promise you that if you put faith in God He can help you to overcome your sorrow and to see a brighter day. I Firmly believe that God knows each one of us and He knows what we are going through. I know that there...
  15. L

    Question for Winace

    Hey I was just looking at your website and was wondering if you need to be on oxygen at all. I am currently on oxygen and was just curious if it has been something that you needed. Do you know what the altitude where you are is? I think that could be the difference. Anyway, just curious...
  16. L

    Just out of curiosity...........

    I was in for 1 month but I was also pregnant and having the baby at the time so that was partly why. Otherwise I usually stay for 2 weeks but have stayed for 3 before. Emilee with 2 E's
  17. L

    She Did It!!!!

    CONGRATULATIONS!!!!!!!!!!!!!!!!!!!! That is so exciting. Hopefully you will be able to go home soon. Emilee with 2 E's
  18. L

    This is a response for Kasey

    Since you are interested in peoples beliefs, then I would like to share with you just a few of mine. Through my life I have never questioned why? I know that I will never get an answer for that, but what I do is I question what can I learn from this? It has helped me sort through so many...
  19. L

    Coughing up Blood ( unpleasant subject! )

    Caitlin, I have coughed up blood many times and have had to have an embolization 3 times and a scope once. In 2002 I was coughing up serious amounts of blood. They figured it was between 4-6 cups. Can't really measure when its in the toilet I nearly had to have a blood transfusion. Anyway...
  20. L

    i need advise

    It is right that the two of you can spread different bugs to each other such as if you have psudomonas and he doesn't you can give it to him. My brother also has CF and we have been told to be around each other as little as possible. Which is ridiculous because we are siblings and we care a...
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