Cystic Fibrosis Forum (EXP)

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  1. C

    Fev1 not responding

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i> Sometimes lung function doesn't return...that's why people die of this disease.</end quote></div> ooch, a bit blunt and probably not very helpful to the poster.... You may be correct in the long term, hope is not...
  2. C

    Fev1 not responding

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i> Sometimes lung function doesn't return...that's why people die of this disease.</end quote></div> ooch, a bit blunt and probably not very helpful to the poster.... You may be correct in the long term, hope is not...
  3. C

    extreme fatigue...

    In my opinion, if you are dropping to 88 in the night, I'd get used to wearing oxygen. You will get used to it after a couple weeks.
  4. C

    extreme fatigue...

    In my opinion, if you are dropping to 88 in the night, I'd get used to wearing oxygen. You will get used to it after a couple weeks.
  5. C

    extreme fatigue...

    In my opinion, if you are dropping to 88 in the night, I'd get used to wearing oxygen. You will get used to it after a couple weeks.
  6. C

    extreme fatigue...

    How is the quality of your sleep? Have you had an overnight Oximetry? Perhaps you need some extra Oxygen at night. This can make a world of diference in your quality of sleep if you find your O2 stats are dropping during the night.
  7. C

    extreme fatigue...

    How is the quality of your sleep? Have you had an overnight Oximetry? Perhaps you need some extra Oxygen at night. This can make a world of diference in your quality of sleep if you find your O2 stats are dropping during the night.
  8. C

    extreme fatigue...

    How is the quality of your sleep? Have you had an overnight Oximetry? Perhaps you need some extra Oxygen at night. This can make a world of diference in your quality of sleep if you find your O2 stats are dropping during the night.
  9. C

    steroids

    The key I found out for me is to eat smaller meals more often. It takes time and commitment, but try to eat a balanced meal every 2 hours, 6 or 7 meals a day. Its a challenge but I think it may work for you. Try for about 25-30 grams of protien each meal, and try to get your carbs from whole...
  10. C

    steroids

    The key I found out for me is to eat smaller meals more often. It takes time and commitment, but try to eat a balanced meal every 2 hours, 6 or 7 meals a day. Its a challenge but I think it may work for you. Try for about 25-30 grams of protien each meal, and try to get your carbs from whole...
  11. C

    steroids

    The key I found out for me is to eat smaller meals more often. It takes time and commitment, but try to eat a balanced meal every 2 hours, 6 or 7 meals a day. Its a challenge but I think it may work for you. Try for about 25-30 grams of protien each meal, and try to get your carbs from whole...
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