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Wow! Thanks for posting those links, Liz. I wish we had PSA's like that here in the states.

Here's a link to a article with some info... <a target=_blank class=ftalternatingbarlinklarge href="http://www.clinchem.org/cgi/content/full/45/7/957">Link 1</a> It is a nonsense mutation (ends in x) which means it result in the absence of functional CFTR (Class I). Here's a link to a...

Jen, Here's what I know... 1 - There are some great over the counter meds/treatments for scars now. Just Google and you'll find them. 2 - Keep pressure on the scar tissue. Pressure reduces scar tissue. 3 - Ask you Dr. There have been huge advances in scar therapy recently. Your wounds...

Jen, Here's what I know... 1 - There are some great over the counter meds/treatments for scars now. Just Google and you'll find them. 2 - Keep pressure on the scar tissue. Pressure reduces scar tissue. 3 - Ask you Dr. There have been huge advances in scar therapy recently. Your wounds...

Jen, Here's what I know... 1 - There are some great over the counter meds/treatments for scars now. Just Google and you'll find them. 2 - Keep pressure on the scar tissue. Pressure reduces scar tissue. 3 - Ask you Dr. There have been huge advances in scar therapy recently. Your wounds...

That's a tough one. I think everyone is different but our Dr. has us look out for an increase in cough, increase in sputum coughed up, color of sputum (green is a sign of infection), decrease in appetite, and fatigue. Over the years we've also learned to look for moodiness, dark circles under...

That's a tough one. I think everyone is different but our Dr. has us look out for an increase in cough, increase in sputum coughed up, color of sputum (green is a sign of infection), decrease in appetite, and fatigue. Over the years we've also learned to look for moodiness, dark circles under...

That's a tough one. I think everyone is different but our Dr. has us look out for an increase in cough, increase in sputum coughed up, color of sputum (green is a sign of infection), decrease in appetite, and fatigue. Over the years we've also learned to look for moodiness, dark circles under...

Good questions(s)! Our med equip people told us to boil or use the strerilizing function on our dishwasher. Not all dishwashers are certified for sterilization so check yours. Recently I've been wondering about using alcohol to clean the nebs. Anyone heard of/tried this? Yes, use different...

Good questions(s)! Our med equip people told us to boil or use the strerilizing function on our dishwasher. Not all dishwashers are certified for sterilization so check yours. Recently I've been wondering about using alcohol to clean the nebs. Anyone heard of/tried this? Yes, use different...

Good questions(s)! Our med equip people told us to boil or use the strerilizing function on our dishwasher. Not all dishwashers are certified for sterilization so check yours. Recently I've been wondering about using alcohol to clean the nebs. Anyone heard of/tried this? Yes, use different...

Inheritance is considered income and used in SSI/Medicaid determinations. When my husband and I set up our family trust/wills our lawyer advised us against leaving anything to Sean as it would negatively impact his ability to receive government aid.

Inheritance is considered income and used in SSI/Medicaid determinations. When my husband and I set up our family trust/wills our lawyer advised us against leaving anything to Sean as it would negatively impact his ability to receive government aid.

Inheritance is considered income and used in SSI/Medicaid determinations. When my husband and I set up our family trust/wills our lawyer advised us against leaving anything to Sean as it would negatively impact his ability to receive government aid.

Well, the good news is that we're home. There isn't really any bad news. Sean's most recent culture didn't show anything new and neither did his most recent x-ray. So, it seems his, low PFT's are because of ??? The Dr. on the floor said it could be an allergy related CF exacerbation. I'd...

Well, the good news is that we're home. There isn't really any bad news. Sean's most recent culture didn't show anything new and neither did his most recent x-ray. So, it seems his, low PFT's are because of ??? The Dr. on the floor said it could be an allergy related CF exacerbation. I'd...

Well, the good news is that we're home. There isn't really any bad news. Sean's most recent culture didn't show anything new and neither did his most recent x-ray. So, it seems his, low PFT's are because of ??? The Dr. on the floor said it could be an allergy related CF exacerbation. I'd...

not doing CPTs Well, I kind of just blow them off. Sometimes they change their approach to Sean's treatment to accomodate us and sometimes they stick with the lecturing/evil eye. I've also been quite frank with them about what I feel does and doesn't work. Usually, they are receptive and try...

not doing CPTs Well, I kind of just blow them off. Sometimes they change their approach to Sean's treatment to accomodate us and sometimes they stick with the lecturing/evil eye. I've also been quite frank with them about what I feel does and doesn't work. Usually, they are receptive and try...

not doing CPTs Well, I kind of just blow them off. Sometimes they change their approach to Sean's treatment to accomodate us and sometimes they stick with the lecturing/evil eye. I've also been quite frank with them about what I feel does and doesn't work. Usually, they are receptive and try...