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  1. C

    Karen and Troy

    At first I was going with, "No news is good news" but now I'm just getting worried. I'm thinking of you.
  2. C

    Karen and Troy

    At first I was going with, "No news is good news" but now I'm just getting worried. I'm thinking of you.
  3. C

    Karen and Troy

    At first I was going with, "No news is good news" but now I'm just getting worried. I'm thinking of you.
  4. C

    Mutation Gene modifier

    I checked out the links. Very interesting stuff. I'm going to ask our Dr. about having the test run. Has anyone here had it done?
  5. C

    Mutation Gene modifier

    I checked out the links. Very interesting stuff. I'm going to ask our Dr. about having the test run. Has anyone here had it done?
  6. C

    Mutation Gene modifier

    I checked out the links. Very interesting stuff. I'm going to ask our Dr. about having the test run. Has anyone here had it done?
  7. C

    x

    not doing CPTs Ok, thanks for clearing that up. BTW... Just for the record, my husband and I have been "looked down on" at our CF parents group for allowing Sean to miss treatments because he was out playing. It's a balancing act and we think balance (ie. getting to play) is important. A...
  8. C

    x

    not doing CPTs Ok, thanks for clearing that up. BTW... Just for the record, my husband and I have been "looked down on" at our CF parents group for allowing Sean to miss treatments because he was out playing. It's a balancing act and we think balance (ie. getting to play) is important. A...
  9. C

    x

    not doing CPTs Ok, thanks for clearing that up. BTW... Just for the record, my husband and I have been "looked down on" at our CF parents group for allowing Sean to miss treatments because he was out playing. It's a balancing act and we think balance (ie. getting to play) is important. A...
  10. C

    Changing Enzymes

    Golytly? Haven't heard of that. Please elaborate. Thanks. I think they typically change enzyme dosage based on weight so you shouldn't need a fecal study. May not be a bad idea to get one but like you said, the mindset of a 16yr old. It does seem odd that she's on MT-16's. Unless it's...
  11. C

    Changing Enzymes

    Golytly? Haven't heard of that. Please elaborate. Thanks. I think they typically change enzyme dosage based on weight so you shouldn't need a fecal study. May not be a bad idea to get one but like you said, the mindset of a 16yr old. It does seem odd that she's on MT-16's. Unless it's...
  12. C

    Changing Enzymes

    Golytly? Haven't heard of that. Please elaborate. Thanks. I think they typically change enzyme dosage based on weight so you shouldn't need a fecal study. May not be a bad idea to get one but like you said, the mindset of a 16yr old. It does seem odd that she's on MT-16's. Unless it's...
  13. C

    Hmmmmmmmm <sigh>

    Well, Sean had clinic yesterday and the results aren't good. For the last 8ish months his PFT's have been dropping. In August, he was down to about 30% so they threatened hospitalization, started him on oral antibiotics, and started him on HS. Well, yesterday his PFT's were down to 25%, he...
  14. C

    Hmmmmmmmm <sigh>

    Well, Sean had clinic yesterday and the results aren't good. For the last 8ish months his PFT's have been dropping. In August, he was down to about 30% so they threatened hospitalization, started him on oral antibiotics, and started him on HS. Well, yesterday his PFT's were down to 25%, he...
  15. C

    Hmmmmmmmm <sigh>

    Well, Sean had clinic yesterday and the results aren't good. For the last 8ish months his PFT's have been dropping. In August, he was down to about 30% so they threatened hospitalization, started him on oral antibiotics, and started him on HS. Well, yesterday his PFT's were down to 25%, he...
  16. C

    Sports Physical question

    Jen, You could probably fax your clinic the form and have them return fax it to you. I wouldn't think they'd have a problem filling it out without your son actually being there. After all, they are probably more familiar with him than any GP is anyway.
  17. C

    Sports Physical question

    Jen, You could probably fax your clinic the form and have them return fax it to you. I wouldn't think they'd have a problem filling it out without your son actually being there. After all, they are probably more familiar with him than any GP is anyway.
  18. C

    Sports Physical question

    Jen, You could probably fax your clinic the form and have them return fax it to you. I wouldn't think they'd have a problem filling it out without your son actually being there. After all, they are probably more familiar with him than any GP is anyway.
  19. C

    x

    not doing CPTs OP (Anns), I'm confused about what you were hoping to gain from starting this thread. <div class="FTQUOTE"><begin quote>I work really hard to keep my child healthy loading him w/ food, seeing that he gets physical activity almost daily, football, basketball, wrestling soccer...
  20. C

    x

    not doing CPTs OP (Anns), I'm confused about what you were hoping to gain from starting this thread. <div class="FTQUOTE"><begin quote>I work really hard to keep my child healthy loading him w/ food, seeing that he gets physical activity almost daily, football, basketball, wrestling soccer...
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