Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. J

    Cystic Fibrosis - Exercise - Pregnancy

    Hi Everyone, Wow, Monique. That is amazing!!! Congratulations! Just one quick questions - what is an IUI? It has been mentioned a few times in this thread. Is it like IVF? I know what IVF is. To find out that the mucus was too thick by your cervix, did you have an exam for that? I'm not...
  2. J

    Cystic Fibrosis - Exercise - Pregnancy

    Hi Everyone, Thank you for all your responses. I just wasn't sure if exercise would prevent pregnancy, since we have such a hard time already. We are considering trying again in like two months. After we get back from our vacation, and my lungs are back to normal 100%. I just came off IV's...
  3. J

    Cystic Fibrosis - Exercise - Pregnancy

    I have read all the posts I could find on pregnancy with Cystic Fibrosis on this forum, and I have one question that I could not find the answer to. Of all the CF moms out there, were you exercising regularly when you conceived? If so, what was your exercise routine? My husband and I had...
  4. J

    weight loss in ivs

    One other thing I forgot to mention, they tried me on Vancomyacin and Meropenium too before the Tobi and Cefapine. I was throwing up eight times a day for 2 days, and they had to change them. They tried loading me up on all kinds of anti-vomiting meds, but everything failed. It was horrible.
  5. J

    weight loss in ivs

    Hi Risa, I told my doctors, but they don't make a deal of it. They say since I have a history of H. pylori and am on decent doses of Prilosec everyday; that that's just how I am. On top of that, my period is really messed up. I am always on a 30-32 day cycle. Well, I was supposed to get it...
  6. J

    How many diabetics here take oral hypoglycemics?

    Hi Jenn, I was on Prandin for a while, but it made my sugar dangerously too low. I would be down to 42 two hours after eating a huge meal. But my sugars were never as high as yours. My A1C bounces back and forth from normal to slightly diabetic. The doctors would try (for example) Prandin...
  7. J

    weight loss in ivs

    Hi Risa, I just finished 3 weeks of IV's and lost 5 pounds. I went from 106 to about 101.5. I'm only 4'11" though so it doesn't look so bad. I always lose weight. If it's not from going to the bathroom 4 times a day than it's from throwing up. Jenny
  8. J

    Liver Issues with CF

    I have cirrhosis with my Cystic Fibrosis. I was diagnosed at age 14. It was explained to me that my liver was damaged from heavy IV therapy from when I was 12 and 13. Those two years, I was in the hospital 4 times each. As a result, I have to take Actigal or Ursodiol every day for the rest...
  9. J

    Funny Little Story! (mentions death)

    Hi Emily, I'm really glad that he does all your treatments, attends your appointments and visits, and ensures that you take all your vitamins. I just was worried that maybe you were settling that's all. If he makes you happy, that's all that matters. My husband isn't perfect either. He...
  10. J

    Funny Little Story! (mentions death)

    Emily, Just one question. Maybe he IS better now, but why would you even look and settle for a man like that??????????????????? Your standards should be higher! Jennifer 24 w/CF
  11. J

    adoption

    To the above poster: Hi, I am 24 w/CF. My health is excellent. My husband and I are trying to conceive. However, we have not ruled out international adoption from Guatemala. We live next door in Pennsylvania. What information could you offer me regarding adoption from there. My husband is...
  12. J

    Social Security

    Hi Julie, 1. No work 2. N/A 3. N/A 4. No!!! They say that you can work, but if you work they will try and use that against you later. I also heard that once you are rejected after receiving benefits, it is near impossible to get it again. I worked part-time (30 hours a week) as a...
  13. J

    Frustrated with friends and family

    Hi, My name is Jennifer 24 W/CF. My mother eventually lost all her friends due to my sister and I having CF. THEY DON'T GET IT AND NEVER WILL. Your son or daughter could be in the hospital or months, and they still won't get it. My mom use to cry mostly about me. She would try and confide...
  14. J

    OH NO! They are closing my CF clinic!

    Wow!!! I left Dr. William Sexauer last August. I thought the CF Clinic went to h*** when they left MCP Hospital. I stayed for a while, but I got tired of the drug pushing. I left right after Heidi Decker left. Everyone was new except for Judy Hillman, and you never saw her anymore. Their...
  15. J

    Who here is on long term dissability and...

    Hi Lauren, SSDI looks at your own income. They don't consider spousal income or anything else. That's how it should be. I'm not sure about SSI. I didn't qualify for that. As far as how much money they give you, they base it on their own math reasoning. I get $722.00 a month. Which...
  16. J

    Who here is on long term dissability and...

    Hi Lauren, SSDI looks at your own income. They don't consider spousal income or anything else. That's how it should be. I'm not sure about SSI. I didn't qualify for that. As far as how much money they give you, they base it on their own math reasoning. I get $722.00 a month. Which...
  17. J

    Need to vent

    Hey Liz, That one was me. Jennifer 24 w/CF
  18. J

    Need to vent

    Hey Liz, That one was me. Jennifer 24 w/CF
  19. J

    Need to vent

    Hi Liz, I'm sorry to hear about you not feeling well. Be pushy with your doctor. No one knows your body better than you. I want to share with you a story that happened to me. This is another reason I don't trust doctors. In 1994, I got really sick. Constant vomiting, weight loss of 20...
  20. J

    Need to vent

    Hi Liz, I'm sorry to hear about you not feeling well. Be pushy with your doctor. No one knows your body better than you. I want to share with you a story that happened to me. This is another reason I don't trust doctors. In 1994, I got really sick. Constant vomiting, weight loss of 20...
Top