Cystic Fibrosis Forum (EXP)

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  1. J

    Who here is on long term dissability and...

    One other comment about Social Security and State Assistance through Welfare: Lisa, I have read your posting about the three requirements to get on Disabilty. I didn't know them. But what I wanted to say and forgot to earlier is that I am furious, in general, with any of the state or federal...
  2. J

    Who here is on long term dissability and...

    One other comment about Social Security and State Assistance through Welfare: Lisa, I have read your posting about the three requirements to get on Disabilty. I didn't know them. But what I wanted to say and forgot to earlier is that I am furious, in general, with any of the state or federal...
  3. J

    Who here is on long term dissability and...

    I am 24 years old with CF and on long-term disability. My FEV1 when I applied was around 80%. Now, it is 78%. I was accepted when I was 22. I was accepted immediately and here is why. Back then, I was work as a Certified Medical Assistant in a cancer clinic. I dealt everyday with terminal...
  4. J

    Who here is on long term dissability and...

    I am 24 years old with CF and on long-term disability. My FEV1 when I applied was around 80%. Now, it is 78%. I was accepted when I was 22. I was accepted immediately and here is why. Back then, I was work as a Certified Medical Assistant in a cancer clinic. I dealt everyday with terminal...
  5. J

    saline

    My doctors suggested here in Pennsylvania that I try it. However, the CF Pharmacy wants $111.00 a month for the 3% and 10% solutions. Which I still have to mix to get the 7% solution. My insurance would not cover it. I think the price is CRAZY for STERILE SALINE. Even if you can get it...
  6. J

    saline

    My doctors suggested here in Pennsylvania that I try it. However, the CF Pharmacy wants $111.00 a month for the 3% and 10% solutions. Which I still have to mix to get the 7% solution. My insurance would not cover it. I think the price is CRAZY for STERILE SALINE. Even if you can get it...
  7. J

    A troubling workout....

    Hey Sonia, I have those days too. They really fustrate me. I'm not saying this to brag, but I've been off all oral antibiotics since April 2005. No hospitalizations for 2 years, and I STILL have those days. I just reduce the intensity of my workout and hope that tomorrow will be better...
  8. J

    A troubling workout....

    Hey Sonia, I have those days too. They really fustrate me. I'm not saying this to brag, but I've been off all oral antibiotics since April 2005. No hospitalizations for 2 years, and I STILL have those days. I just reduce the intensity of my workout and hope that tomorrow will be better...
  9. J

    Any CF runners?

    Oh and Kelly, You don't just have to run. Hike again. Rock climb again. Mix it up a bit. Mixing it up will keep you going even on the worst days. Jennifer 24 w/CF
  10. J

    Any CF runners?

    Oh and Kelly, You don't just have to run. Hike again. Rock climb again. Mix it up a bit. Mixing it up will keep you going even on the worst days. Jennifer 24 w/CF
  11. J

    Any CF runners?

    Hi Kelly, Sorry, I haven't responded earlier to your question. I posted my message and never really checked back until now. I agree that walking is better than nothing but think about this for a minute. Your married like me. You get up, help your husband off to work, cook, clean, maybe take...
  12. J

    Any CF runners?

    Hi Kelly, Sorry, I haven't responded earlier to your question. I posted my message and never really checked back until now. I agree that walking is better than nothing but think about this for a minute. Your married like me. You get up, help your husband off to work, cook, clean, maybe take...
  13. J

    Going off birth control

    Hi Lauren, I was on the pill for 8 years to keep an ovarian cyst from forming on my left ovary. I first got one when I was 13. Then, I ended going on and off of the pill for another 2 years until I ended up staying on it. I hated being on the pill. Imagine being 13, 14, 15 and having to sit...
  14. J

    Going off birth control

    Hi Lauren, I was on the pill for 8 years to keep an ovarian cyst from forming on my left ovary. I first got one when I was 13. Then, I ended going on and off of the pill for another 2 years until I ended up staying on it. I hated being on the pill. Imagine being 13, 14, 15 and having to sit...
  15. J

    Wondering if any of u are Anemic?

    Hi Christian, I have been anemic since I was 12 years old with the Cystic Fibrosis. I have to take Slow FE one tablet everyday. Not to gross you out, but I became anemic once I got my monthly cycles. Since I am very regular and always have been, my iron was low about 2 weeks out of every...
  16. J

    Wondering if any of u are Anemic?

    Hi Christian, I have been anemic since I was 12 years old with the Cystic Fibrosis. I have to take Slow FE one tablet everyday. Not to gross you out, but I became anemic once I got my monthly cycles. Since I am very regular and always have been, my iron was low about 2 weeks out of every...
  17. J

    offensive bumper sticker

    Hey, that really ticks me off too. I think there are two kinds of smokers, though. Those that are respectful and considerate not to smoke around other people, especially if they have medical issues. And those that don't give a s***. Those are the kind that I can't stand. Jennifer 24 w/CF
  18. J

    offensive bumper sticker

    Hey, that really ticks me off too. I think there are two kinds of smokers, though. Those that are respectful and considerate not to smoke around other people, especially if they have medical issues. And those that don't give a s***. Those are the kind that I can't stand. Jennifer 24 w/CF
  19. J

    polyup surgery... again

    Hi Kate, Good luck with your sinus surgery. I'm sure you'll be fine. I had 3 sinus surgeries in the past 6 years. If I may ask, what nasal sprays or irrigations are you using if any? What I found to really help me is Neil Med's Sinus Rinse. After my third surgery, my doctor recommended it...
  20. J

    polyup surgery... again

    Hi Kate, Good luck with your sinus surgery. I'm sure you'll be fine. I had 3 sinus surgeries in the past 6 years. If I may ask, what nasal sprays or irrigations are you using if any? What I found to really help me is Neil Med's Sinus Rinse. After my third surgery, my doctor recommended it...
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