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Some days, like today, I obsess over this website and any and all kinds of information I can get. Other days it is better. Seems to always flare up after a cf doc visit (we had one last week) and now also with our Great Strides fund raising efforts (this is our first one). Do you mean "the...

Some days, like today, I obsess over this website and any and all kinds of information I can get. Other days it is better. Seems to always flare up after a cf doc visit (we had one last week) and now also with our Great Strides fund raising efforts (this is our first one). Do you mean "the...

Some days, like today, I obsess over this website and any and all kinds of information I can get. Other days it is better. Seems to always flare up after a cf doc visit (we had one last week) and now also with our Great Strides fund raising efforts (this is our first one). Do you mean "the...

Lastest response from one of our family members: "If we thought it would help Katy, we and/or our children would get tested" (as carriers). {tries to continue eating lunch without getting angry........}

Lastest response from one of our family members: "If we thought it would help Katy, we and/or our children would get tested" (as carriers). {tries to continue eating lunch without getting angry........}

Lastest response from one of our family members: "If we thought it would help Katy, we and/or our children would get tested" (as carriers). {tries to continue eating lunch without getting angry........}

dramamama - I'm really sorry for your experience, ESPECIALLY since the bronch exposed you to the mycobacterium. I'm sending you a PM too because I have some more questions. Your story also scares the crap out of me. This is one of those things where you are supposed to trust that the docs...

dramamama - I'm really sorry for your experience, ESPECIALLY since the bronch exposed you to the mycobacterium. I'm sending you a PM too because I have some more questions. Your story also scares the crap out of me. This is one of those things where you are supposed to trust that the docs...

dramamama - I'm really sorry for your experience, ESPECIALLY since the bronch exposed you to the mycobacterium. I'm sending you a PM too because I have some more questions. Your story also scares the crap out of me. This is one of those things where you are supposed to trust that the docs...

We haven't had to deal with CFRD (Cystic Fibrosis Related Diabetes) yet, but there is such a thing, and it comes to my mind when I saw your post. Hopefully others will jump on with more info. The pancreas can pretty much shut down with CF, and the pancreas produces insulin. Crossing fingers...

We haven't had to deal with CFRD (Cystic Fibrosis Related Diabetes) yet, but there is such a thing, and it comes to my mind when I saw your post. Hopefully others will jump on with more info. The pancreas can pretty much shut down with CF, and the pancreas produces insulin. Crossing fingers...

We haven't had to deal with CFRD (Cystic Fibrosis Related Diabetes) yet, but there is such a thing, and it comes to my mind when I saw your post. Hopefully others will jump on with more info. The pancreas can pretty much shut down with CF, and the pancreas produces insulin. Crossing fingers...

The answers to your post are going to show the differences in the standards of care across the country, BUT they may also be because of differences in patient's mutations or severity/presence of symptoms? Or daughter is double DF508 and was diagnosed in August 2006. At her appointment last...

The answers to your post are going to show the differences in the standards of care across the country, BUT they may also be because of differences in patient's mutations or severity/presence of symptoms? Or daughter is double DF508 and was diagnosed in August 2006. At her appointment last...

The answers to your post are going to show the differences in the standards of care across the country, BUT they may also be because of differences in patient's mutations or severity/presence of symptoms? Or daughter is double DF508 and was diagnosed in August 2006. At her appointment last...

Renee, I just came from a "raving about HS" session today - my doc has put our almost 4 year old on it. We'll start it in the next few days, along with albuterol. She is currently also on Pulmozyme and TOBI 28 on/off. I've done lots of research on HS. I've heard about the coughing, the...

Renee, I just came from a "raving about HS" session today - my doc has put our almost 4 year old on it. We'll start it in the next few days, along with albuterol. She is currently also on Pulmozyme and TOBI 28 on/off. I've done lots of research on HS. I've heard about the coughing, the...

Renee, I just came from a "raving about HS" session today - my doc has put our almost 4 year old on it. We'll start it in the next few days, along with albuterol. She is currently also on Pulmozyme and TOBI 28 on/off. I've done lots of research on HS. I've heard about the coughing, the...

CF doc appointment went great, and I kept my head about me and was able to ask the questions that I already know the answers to, but I needed to hear the answers again from the doc. And I need to really, really believe the answers today, because I've got one foot in the hopeful, positive world...

CF doc appointment went great, and I kept my head about me and was able to ask the questions that I already know the answers to, but I needed to hear the answers again from the doc. And I need to really, really believe the answers today, because I've got one foot in the hopeful, positive world...