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When Katy's pancreatic insufficiency was worsening, and prior to her diagnosis, she pretty much lost all her energy; wanted to be held all the time or just lay around; was very tired. She is MUCH better now but will usually fall asleep in the car on the way home.
I would suggest that you...
When Katy's pancreatic insufficiency was worsening, and prior to her diagnosis, she pretty much lost all her energy; wanted to be held all the time or just lay around; was very tired. She is MUCH better now but will usually fall asleep in the car on the way home.
I would suggest that you...
Kelly - Hooray for the positive vest experience and thanks for the picture. What a cutie! Go Cassidie!
Sarah - our Katy got her vest right at diagnosis; she was 3 years and 3 months old and about 30 pounds. If what you are using seems to work and she likes it, then your doctors may be doing...
Kelly - Hooray for the positive vest experience and thanks for the picture. What a cutie! Go Cassidie!
Sarah - our Katy got her vest right at diagnosis; she was 3 years and 3 months old and about 30 pounds. If what you are using seems to work and she likes it, then your doctors may be doing...
Kelly - Hooray for the positive vest experience and thanks for the picture. What a cutie! Go Cassidie!
Sarah - our Katy got her vest right at diagnosis; she was 3 years and 3 months old and about 30 pounds. If what you are using seems to work and she likes it, then your doctors may be doing...
Wow that is really great news! Keep trusting your mommy instincts and I hope his other issues resolve (and maybe they already have <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). Thanks for letting us know.
Wow that is really great news! Keep trusting your mommy instincts and I hope his other issues resolve (and maybe they already have <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). Thanks for letting us know.
Wow that is really great news! Keep trusting your mommy instincts and I hope his other issues resolve (and maybe they already have <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). Thanks for letting us know.
Ha! I didn't even think about disturbing other guests when we did the vest in hotel rooms over spring break. I was more fascinated by the fact that we took the vest, compressor, etc. with us and did them (it was our first time away from home since dx) like it was no big deal.
We have a big...
Ha! I didn't even think about disturbing other guests when we did the vest in hotel rooms over spring break. I was more fascinated by the fact that we took the vest, compressor, etc. with us and did them (it was our first time away from home since dx) like it was no big deal.
We have a big...
Ha! I didn't even think about disturbing other guests when we did the vest in hotel rooms over spring break. I was more fascinated by the fact that we took the vest, compressor, etc. with us and did them (it was our first time away from home since dx) like it was no big deal.
We have a big...
This must be so tough for you and your family. Way to go on getting the full Ambry panel done. Please let us know the results, either way. Keeping fingers crossed for you.
This must be so tough for you and your family. Way to go on getting the full Ambry panel done. Please let us know the results, either way. Keeping fingers crossed for you.
This must be so tough for you and your family. Way to go on getting the full Ambry panel done. Please let us know the results, either way. Keeping fingers crossed for you.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i>
Okay, I don't know why this is like pulling teeth with me</end quote></div>
Oh, I don't know - possibly because it is a pain in the *ss? <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh, well. I...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i>
Okay, I don't know why this is like pulling teeth with me</end quote></div>
Oh, I don't know - possibly because it is a pain in the *ss? <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh, well. I...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i>
Okay, I don't know why this is like pulling teeth with me</end quote></div>
Oh, I don't know - possibly because it is a pain in the *ss? <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh, well. I...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i>
My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i>
My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i>
My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes...
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