Cystic Fibrosis Forum (EXP)

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  1. K

    Tire Easily?

    When Katy's pancreatic insufficiency was worsening, and prior to her diagnosis, she pretty much lost all her energy; wanted to be held all the time or just lay around; was very tired. She is MUCH better now but will usually fall asleep in the car on the way home. I would suggest that you...
  2. K

    Tire Easily?

    When Katy's pancreatic insufficiency was worsening, and prior to her diagnosis, she pretty much lost all her energy; wanted to be held all the time or just lay around; was very tired. She is MUCH better now but will usually fall asleep in the car on the way home. I would suggest that you...
  3. K

    My daugter got her vest, YAY!

    Kelly - Hooray for the positive vest experience and thanks for the picture. What a cutie! Go Cassidie! Sarah - our Katy got her vest right at diagnosis; she was 3 years and 3 months old and about 30 pounds. If what you are using seems to work and she likes it, then your doctors may be doing...
  4. K

    My daugter got her vest, YAY!

    Kelly - Hooray for the positive vest experience and thanks for the picture. What a cutie! Go Cassidie! Sarah - our Katy got her vest right at diagnosis; she was 3 years and 3 months old and about 30 pounds. If what you are using seems to work and she likes it, then your doctors may be doing...
  5. K

    My daugter got her vest, YAY!

    Kelly - Hooray for the positive vest experience and thanks for the picture. What a cutie! Go Cassidie! Sarah - our Katy got her vest right at diagnosis; she was 3 years and 3 months old and about 30 pounds. If what you are using seems to work and she likes it, then your doctors may be doing...
  6. K

    Got Test Results

    Wow that is really great news! Keep trusting your mommy instincts and I hope his other issues resolve (and maybe they already have <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). Thanks for letting us know.
  7. K

    Got Test Results

    Wow that is really great news! Keep trusting your mommy instincts and I hope his other issues resolve (and maybe they already have <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). Thanks for letting us know.
  8. K

    Got Test Results

    Wow that is really great news! Keep trusting your mommy instincts and I hope his other issues resolve (and maybe they already have <img src="i/expressions/face-icon-small-smile.gif" border="0"> ). Thanks for letting us know.
  9. K

    The Vest and Hotel Stays

    Ha! I didn't even think about disturbing other guests when we did the vest in hotel rooms over spring break. I was more fascinated by the fact that we took the vest, compressor, etc. with us and did them (it was our first time away from home since dx) like it was no big deal. We have a big...
  10. K

    The Vest and Hotel Stays

    Ha! I didn't even think about disturbing other guests when we did the vest in hotel rooms over spring break. I was more fascinated by the fact that we took the vest, compressor, etc. with us and did them (it was our first time away from home since dx) like it was no big deal. We have a big...
  11. K

    The Vest and Hotel Stays

    Ha! I didn't even think about disturbing other guests when we did the vest in hotel rooms over spring break. I was more fascinated by the fact that we took the vest, compressor, etc. with us and did them (it was our first time away from home since dx) like it was no big deal. We have a big...
  12. K

    update on kaiden

    This must be so tough for you and your family. Way to go on getting the full Ambry panel done. Please let us know the results, either way. Keeping fingers crossed for you.
  13. K

    update on kaiden

    This must be so tough for you and your family. Way to go on getting the full Ambry panel done. Please let us know the results, either way. Keeping fingers crossed for you.
  14. K

    update on kaiden

    This must be so tough for you and your family. Way to go on getting the full Ambry panel done. Please let us know the results, either way. Keeping fingers crossed for you.
  15. K

    Changing Nebs for Meds

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i> Okay, I don't know why this is like pulling teeth with me</end quote></div> Oh, I don't know - possibly because it is a pain in the *ss? <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh, well. I...
  16. K

    Changing Nebs for Meds

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i> Okay, I don't know why this is like pulling teeth with me</end quote></div> Oh, I don't know - possibly because it is a pain in the *ss? <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh, well. I...
  17. K

    Changing Nebs for Meds

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CowTown</b></i> Okay, I don't know why this is like pulling teeth with me</end quote></div> Oh, I don't know - possibly because it is a pain in the *ss? <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh, well. I...
  18. K

    Carrier Testing for Relatives

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i> My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes...
  19. K

    Carrier Testing for Relatives

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i> My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes...
  20. K

    Carrier Testing for Relatives

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>blindhearted</b></i> My brother has not been tested, neither has his wife. When they had their first child, they told the doctor that I had CF, Dr told them that they did not need testing and would not test them for the CF genes...
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