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I take it your the original "Anonymous" poster? I stand by my original comment that I don't think this is the place for that type of discussion. It's politically motivated and little can be gained from a left/right wing crossfire session. If you have a specific question regarding drug...

Obviously, this is a very personal choice. There are a lot of things to consider. You need to keep in mind that just becuase your son has been labeled as mild CF you next child may not be as lucky. The other thing to consider is that your sons condition may change and he may require more...

"<b>She doesn't want to be around her son right now</b>". I'm sorry but I cannot for the life of me understand this attitude nor can I come up with any rationalization for your friend to feel this way. When my son was diagnosed (and I'm talking within seconds of the Dr. leaving the room), I...

1 - I don't really think this is the place for that kind of a political discussion 2 - We live in a capitalist society and that's not the way it works 3 - We do have Medicaid/Medicare to help the indigent with health care

Well, the sweat test is quite low which is very encouraging. However, it does sound like they had some trouble. Was the test done at an accredited CF center? If so, then your child probably doesn't have CF. Sometimes though you need to trust your intuition and the only way to put your mind...

My CFer is 8 and he has the belly. It makes it hard to find pants that fit. As you say, they are so low and he has no hips to hold them up so his pants are constantly falling down.

Yes, we had to. My husband's grandfather was an avid pipe smoker. We had to tell him that unless he could refrain from smoking while we visited, we wouldn't be visiting. In addition, for all family gatherings we verified in advance that he would not be allowed to smoke in the house where the...

Our CF Dr. told us no artificial scents. My husband is adamant about this for our CFer as he is very scent sensitive himself. My CFer doesn't seem to be that senitive but it gives my husband an excuse <img src="i/expressions/face-icon-small-smile.gif" border="0">

Again I say that you can't control what the school does or what the other family does only what you do. As much as you'd like to shelter your daughter it isn't realistic. Part of being a parent is learning when to let go so your child can enjoy life (CF or no CF). This seems more like a...

Couple of comments here... You can't control what the other family does. You can't control what the school does. You can however control what you do. If you feel that this other girl poses a risk to your daughter then your Dr. needs to take that into consideration before he/she blanketly...

It's my understanding that CF and other genetic diseases are not considered pre-existing conditions as far as the insurance world goes. We've changed insurance countless times since my son was born and never had to deal with denial of coverage or an extended waiting period due to CF. Growth is...

We had similar issues with our son. My husband was positive our son had CF. He was so salty and my husband remembered a local public service announcement about salty babies and CF. As soon as my husband mentioned it, my heart sank. I knew it was CF. You know, the way a mother just knows...

It can be rough for the first couple of years. The first year especially. My son was in horrible shape before he was diagnosed. Even after the diagnosis, he was in and out of the hospital quite a bit but it got better. He's 8 (and a half, as he would say) and doing quite well. He's missed...

I think it's irresponsible not to find out. There's certainly no rush but knowledge is power and knowing whether or not you (or in this case your child) are a carrier can affect the choices you make when it comes to having children. My sister in-law (husband's sister) was tested and so was her...

Yes, 8 lbs and six months is terribly low. Feeding tubes are fairly common among CF'ers but I'm more familiar with them in the older set, not so much in infants. However, it does seem directionally correct given his low weight. Has he been eating well and not gaining weight? If he's eating...

CF'ers with digestive involvement shouldn't be on regular formula but rather a "pre-digested" formula regardless of milk allergy. CF'ers should not be on Soy or breast milk. Is your PED qualified to address the specific CF issues like digestion?

Looking for some help here...We've just moved to a new school district and are having trouble 'convincing' the administration that our son should not be required to go to the school office for his enzymes at every meal/snack. His doctor has written letters stating that he's responsible enough to...