Cystic Fibrosis Forum (EXP)

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  1. A

    faking it - 7% HS

    Doctors have varying opinions when it comes to reducing the % of HS. My daughters doc has no problem with her mixing her own % according to who she feels - if she wants less than 7% she mixes it less - probably around 5%. He also had her start with a trial of 3% just to make sure she tolerated...
  2. A

    faking it - 7% HS

    Doctors have varying opinions when it comes to reducing the % of HS. My daughters doc has no problem with her mixing her own % according to who she feels - if she wants less than 7% she mixes it less - probably around 5%. He also had her start with a trial of 3% just to make sure she tolerated...
  3. A

    faking it - 7% HS

    Doctors have varying opinions when it comes to reducing the % of HS. My daughters doc has no problem with her mixing her own % according to who she feels - if she wants less than 7% she mixes it less - probably around 5%. He also had her start with a trial of 3% just to make sure she tolerated...
  4. A

    faking it - 7% HS

    Doctors have varying opinions when it comes to reducing the % of HS. My daughters doc has no problem with her mixing her own % according to who she feels - if she wants less than 7% she mixes it less - probably around 5%. He also had her start with a trial of 3% just to make sure she tolerated...
  5. A

    faking it - 7% HS

    Doctors have varying opinions when it comes to reducing the % of HS. My daughters doc has no problem with her mixing her own % according to who she feels - if she wants less than 7% she mixes it less - probably around 5%. He also had her start with a trial of 3% just to make sure she tolerated...
  6. A

    am I crazy, how can this make sense

    Is the doctor willing to state that it is medically necessary? I don't think there is anywhere else they would be sending full sequencing anyway, so I'm assuming the nurse had just never really been in the loop on the names of the labs. Yeah, she also might be a little optimistic on the three...
  7. A

    am I crazy, how can this make sense

    Is the doctor willing to state that it is medically necessary? I don't think there is anywhere else they would be sending full sequencing anyway, so I'm assuming the nurse had just never really been in the loop on the names of the labs. Yeah, she also might be a little optimistic on the three...
  8. A

    am I crazy, how can this make sense

    Is the doctor willing to state that it is medically necessary? I don't think there is anywhere else they would be sending full sequencing anyway, so I'm assuming the nurse had just never really been in the loop on the names of the labs. Yeah, she also might be a little optimistic on the three...
  9. A

    am I crazy, how can this make sense

    Is the doctor willing to state that it is medically necessary? I don't think there is anywhere else they would be sending full sequencing anyway, so I'm assuming the nurse had just never really been in the loop on the names of the labs. Yeah, she also might be a little optimistic on the three...
  10. A

    am I crazy, how can this make sense

    Is the doctor willing to state that it is medically necessary? <br /> <br />I don't think there is anywhere else they would be sending full sequencing anyway, so I'm assuming the nurse had just never really been in the loop on the names of the labs. Yeah, she also might be a little optimistic on...
  11. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> Did you know that one is not diagnosed by any cf center with merely two cf genetic mutations? The CFF seems to be skirting around this because they don't talk about it anywhere.</end quote></div> We had several...
  12. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> Did you know that one is not diagnosed by any cf center with merely two cf genetic mutations? The CFF seems to be skirting around this because they don't talk about it anywhere.</end quote></div> We had several...
  13. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> Did you know that one is not diagnosed by any cf center with merely two cf genetic mutations? The CFF seems to be skirting around this because they don't talk about it anywhere.</end quote></div> We had several...
  14. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> Did you know that one is not diagnosed by any cf center with merely two cf genetic mutations? The CFF seems to be skirting around this because they don't talk about it anywhere.</end quote> We had several discussions...
  15. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LouLou</b></i> <br /> <br /> <br />Did you know that one is not diagnosed by any cf center with merely two cf genetic mutations? The CFF seems to be skirting around this because they don't talk about it anywhere.</end quote> <br />...
  16. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Alyssa</b></i> I might be one of those people that NoExcuses (Amy) is referring to </end quote></div> Actually Alyssa you aren't. I've seen...
  17. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Alyssa</b></i> I might be one of those people that NoExcuses (Amy) is referring to </end quote></div> Actually Alyssa you aren't. I've seen...
  18. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Alyssa</b></i> I might be one of those people that NoExcuses (Amy) is referring to </end quote></div> Actually Alyssa you aren't. I've seen...
  19. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Alyssa</b></i> I might be one of those people that NoExcuses (Amy) is referring to </end quote> Actually Alyssa you aren't. I've seen how...
  20. A

    Is Atypical CF really all that uncommon?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i> <br /> <br /><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Alyssa</b></i> <br /> <br /> <br /> <br />I might be one of those people that NoExcuses (Amy) is referring to </end quote> <br /> <br /> <br...
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