Cystic Fibrosis Forum (EXP)

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  1. A

    Is Atypical CF really all that uncommon?

    I might be one of those people that NoExcuses (Amy) is referring to, since I do refer to my kids as Mild-Variant, A-Typical cases -- but I think my view of it is different that the "denial phenomena" that she and others are now referring to...if you have a lot of time on your hands, feel free to...
  2. A

    Is Atypical CF really all that uncommon?

    I might be one of those people that NoExcuses (Amy) is referring to, since I do refer to my kids as Mild-Variant, A-Typical cases -- but I think my view of it is different that the "denial phenomena" that she and others are now referring to...if you have a lot of time on your hands, feel free to...
  3. A

    Is Atypical CF really all that uncommon?

    I might be one of those people that NoExcuses (Amy) is referring to, since I do refer to my kids as Mild-Variant, A-Typical cases -- but I think my view of it is different that the "denial phenomena" that she and others are now referring to...if you have a lot of time on your hands, feel free to...
  4. A

    Is Atypical CF really all that uncommon?

    I might be one of those people that NoExcuses (Amy) is referring to, since I do refer to my kids as Mild-Variant, A-Typical cases -- but I think my view of it is different that the "denial phenomena" that she and others are now referring to...if you have a lot of time on your hands, feel free to...
  5. A

    Is Atypical CF really all that uncommon?

    I might be one of those people that NoExcuses (Amy) is referring to, since I do refer to my kids as Mild-Variant, A-Typical cases -- but I think my view of it is different that the "denial phenomena" that she and others are now referring to...if you have a lot of time on your hands, feel free to...
  6. A

    Chronic sinusitis--could it possibly be CF?

    The short answer is "Yes" It is entirely possible that his sinus issues are a result of having CF, especially when you have eliminated so many other possibilities. It would be a very good idea to pursue complete genetic testing -- be sure they check for ALL CF genes...often times the doctor...
  7. A

    Chronic sinusitis--could it possibly be CF?

    The short answer is "Yes" It is entirely possible that his sinus issues are a result of having CF, especially when you have eliminated so many other possibilities. It would be a very good idea to pursue complete genetic testing -- be sure they check for ALL CF genes...often times the doctor...
  8. A

    Chronic sinusitis--could it possibly be CF?

    The short answer is "Yes" It is entirely possible that his sinus issues are a result of having CF, especially when you have eliminated so many other possibilities. It would be a very good idea to pursue complete genetic testing -- be sure they check for ALL CF genes...often times the doctor...
  9. A

    Chronic sinusitis--could it possibly be CF?

    The short answer is "Yes" It is entirely possible that his sinus issues are a result of having CF, especially when you have eliminated so many other possibilities. It would be a very good idea to pursue complete genetic testing -- be sure they check for ALL CF genes...often times the doctor...
  10. A

    Chronic sinusitis--could it possibly be CF?

    The short answer is "Yes" It is entirely possible that his sinus issues are a result of having CF, especially when you have eliminated so many other possibilities. <br /> <br />It would be a very good idea to pursue complete genetic testing -- be sure they check for ALL CF genes...often times...
  11. A

    My son diagnosed at 13

    Welcome - I too was thrown a little bit by whether or not your son does indeed have the CF diagnosis - but I'm assuming you were back tracking in your post...first in 2006 you were told you and your husband were carriers and your son was probably a carrier, but by Nov 2007 it was confirmed that...
  12. A

    My son diagnosed at 13

    Welcome - I too was thrown a little bit by whether or not your son does indeed have the CF diagnosis - but I'm assuming you were back tracking in your post...first in 2006 you were told you and your husband were carriers and your son was probably a carrier, but by Nov 2007 it was confirmed that...
  13. A

    My son diagnosed at 13

    Welcome - I too was thrown a little bit by whether or not your son does indeed have the CF diagnosis - but I'm assuming you were back tracking in your post...first in 2006 you were told you and your husband were carriers and your son was probably a carrier, but by Nov 2007 it was confirmed that...
  14. A

    My son diagnosed at 13

    Welcome - I too was thrown a little bit by whether or not your son does indeed have the CF diagnosis - but I'm assuming you were back tracking in your post...first in 2006 you were told you and your husband were carriers and your son was probably a carrier, but by Nov 2007 it was confirmed that...
  15. A

    My son diagnosed at 13

    Welcome - I too was thrown a little bit by whether or not your son does indeed have the CF diagnosis - but I'm assuming you were back tracking in your post...first in 2006 you were told you and your husband were carriers and your son was probably a carrier, but by Nov 2007 it was confirmed that...
  16. A

    Is Atypical CF really all that uncommon?

    Yes, it does seem to be happening more often, and yes I think it is due to more genes in the class 4 and 5 being found now. But the thing about it being A-Typical doesn't refer to how often it is happening, it is referring to the number of symptoms and presentation of illness. When an A-Typical...
  17. A

    Is Atypical CF really all that uncommon?

    Yes, it does seem to be happening more often, and yes I think it is due to more genes in the class 4 and 5 being found now. But the thing about it being A-Typical doesn't refer to how often it is happening, it is referring to the number of symptoms and presentation of illness. When an A-Typical...
  18. A

    Is Atypical CF really all that uncommon?

    Yes, it does seem to be happening more often, and yes I think it is due to more genes in the class 4 and 5 being found now. But the thing about it being A-Typical doesn't refer to how often it is happening, it is referring to the number of symptoms and presentation of illness. When an A-Typical...
  19. A

    Is Atypical CF really all that uncommon?

    Yes, it does seem to be happening more often, and yes I think it is due to more genes in the class 4 and 5 being found now. But the thing about it being A-Typical doesn't refer to how often it is happening, it is referring to the number of symptoms and presentation of illness. When an A-Typical...
  20. A

    Is Atypical CF really all that uncommon?

    Yes, it does seem to be happening more often, and yes I think it is due to more genes in the class 4 and 5 being found now. <br /> <br />But the thing about it being A-Typical doesn't refer to how often it is happening, it is referring to the number of symptoms and presentation of illness. When...
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