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Our pediatrician was so convinced our daughter did NOT have CF that when the place he sent us to did two positive sweat tests he told us we should DISREGARD those results and he sent us to a different place where they "did them all the time" and told us we could actually rely on the results from...

When I read your post my immediate thought was "but seeing your picture alone in your signature makes me smile every time" and lo and behold everyone beat me to saying it! So you already do help, and thanks.<img src="i/expressions/face-icon-small-happy.gif" border="0"> Dana Mom to Katy (3, cf)...

When I read your post my immediate thought was "but seeing your picture alone in your signature makes me smile every time" and lo and behold everyone beat me to saying it! So you already do help, and thanks.<img src="i/expressions/face-icon-small-happy.gif" border="0"> Dana Mom to Katy (3, cf)...

When I read your post my immediate thought was "but seeing your picture alone in your signature makes me smile every time" and lo and behold everyone beat me to saying it! So you already do help, and thanks.<img src="i/expressions/face-icon-small-happy.gif" border="0"> Dana Mom to Katy (3, cf)...

Hug Silk sheets or flannel sheets? Dana Mom to Katy (3, cf) and Kyra (6, no cf)

Hug Silk sheets or flannel sheets? Dana Mom to Katy (3, cf) and Kyra (6, no cf)

Hug Silk sheets or flannel sheets? Dana Mom to Katy (3, cf) and Kyra (6, no cf)

I'm very sorry for your son's diagnosis. This question of degrees of CF has come up in the posts quite frequently lately, it seems. Other people have said it much better than I, but the bottom line is that there is no such thing as a "mild" case of CF. He doesn't kinda have it, although I'm...

I'm very sorry for your son's diagnosis. This question of degrees of CF has come up in the posts quite frequently lately, it seems. Other people have said it much better than I, but the bottom line is that there is no such thing as a "mild" case of CF. He doesn't kinda have it, although I'm...

I'm very sorry for your son's diagnosis. This question of degrees of CF has come up in the posts quite frequently lately, it seems. Other people have said it much better than I, but the bottom line is that there is no such thing as a "mild" case of CF. He doesn't kinda have it, although I'm...

I'm glad to hear you have another choice for your CF care, in the hopes you find a higher comfort level. We are very happy with ours. We see a pediatric pulmonologist that used to practice with the accredited center in our city. We were referred to him, but he told us on our first visit who...

I'm glad to hear you have another choice for your CF care, in the hopes you find a higher comfort level. We are very happy with ours. We see a pediatric pulmonologist that used to practice with the accredited center in our city. We were referred to him, but he told us on our first visit who...

I'm glad to hear you have another choice for your CF care, in the hopes you find a higher comfort level. We are very happy with ours. We see a pediatric pulmonologist that used to practice with the accredited center in our city. We were referred to him, but he told us on our first visit who...

Tylenol can be bad for anyone's liver, sometimes even at the recommended dosage. So I guess it makes sense that cf'ers with liver issues (like my kid) shouldn't use it. I had NOT made the connection yet on my own, however. I'm with you - I feel like I never know enough, no matter how much I...

Tylenol can be bad for anyone's liver, sometimes even at the recommended dosage. So I guess it makes sense that cf'ers with liver issues (like my kid) shouldn't use it. I had NOT made the connection yet on my own, however. I'm with you - I feel like I never know enough, no matter how much I...

Tylenol can be bad for anyone's liver, sometimes even at the recommended dosage. So I guess it makes sense that cf'ers with liver issues (like my kid) shouldn't use it. I had NOT made the connection yet on my own, however. I'm with you - I feel like I never know enough, no matter how much I...

On Topic: Having to do Katy's night-time teeth brushing while she is asleep because she conked out doing her evening breathing treatments Finding out that my old pharmacy was filling the script for a $50 copay each time, even though it wasn't a one-month's supply (just now discovered it when a...

On Topic: Having to do Katy's night-time teeth brushing while she is asleep because she conked out doing her evening breathing treatments Finding out that my old pharmacy was filling the script for a $50 copay each time, even though it wasn't a one-month's supply (just now discovered it when a...

On Topic: Having to do Katy's night-time teeth brushing while she is asleep because she conked out doing her evening breathing treatments Finding out that my old pharmacy was filling the script for a $50 copay each time, even though it wasn't a one-month's supply (just now discovered it when a...

Nagged Katy's pediatrician about her stomach aches and greasy stools for 6 months. Finally he spoke to a pediatric gastroenterologist, who told him to have a sweat test done to "rule out CF". Not ruled out, obviously.......in retrospect there were lots of little things that could have led to a...