Cystic Fibrosis Forum (EXP)

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  1. K

    Grandson just diagnosed at age 24

    I'm sorry I can't answer your specific question but if you haven't already, post this on the Adult forum. Not everyone reads this one. I know you are relieved to get a diagnosis, finally, so that you can get the right treatmemt. Good luck. Dana Mom to Katy (3, cf) and Kyra 96, no cf)
  2. K

    Grandson just diagnosed at age 24

    I'm sorry I can't answer your specific question but if you haven't already, post this on the Adult forum. Not everyone reads this one. I know you are relieved to get a diagnosis, finally, so that you can get the right treatmemt. Good luck. Dana Mom to Katy (3, cf) and Kyra 96, no cf)
  3. K

    Grandson just diagnosed at age 24

    I'm sorry I can't answer your specific question but if you haven't already, post this on the Adult forum. Not everyone reads this one. I know you are relieved to get a diagnosis, finally, so that you can get the right treatmemt. Good luck. Dana Mom to Katy (3, cf) and Kyra 96, no cf)
  4. K

    join in on the fun

    Mittens Naughty or nice? Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  5. K

    join in on the fun

    Mittens Naughty or nice? Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  6. K

    join in on the fun

    Mittens Naughty or nice? Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  7. K

    Off to club med

    I sure hope they whoop up on it this time and get him well. I will be thinking of you guys and hoping you get well and out of there soon. p.s. 'whoop up' is a technical term; see the Okie dictionary....<img src="i/expressions/face-icon-small-wink.gif" border="0"> Dana Mom to Katy (3, cf) and...
  8. K

    Off to club med

    I sure hope they whoop up on it this time and get him well. I will be thinking of you guys and hoping you get well and out of there soon. p.s. 'whoop up' is a technical term; see the Okie dictionary....<img src="i/expressions/face-icon-small-wink.gif" border="0"> Dana Mom to Katy (3, cf) and...
  9. K

    Off to club med

    I sure hope they whoop up on it this time and get him well. I will be thinking of you guys and hoping you get well and out of there soon. p.s. 'whoop up' is a technical term; see the Okie dictionary....<img src="i/expressions/face-icon-small-wink.gif" border="0"> Dana Mom to Katy (3, cf) and...
  10. K

    How come I didn't know this?

    To quote: As we know, There are known knowns. There are things we know we know. We also know there are known unknowns. That is to say we know there are some things we do not know. But there are also unknown unknowns, the ones we don't know we don't know. There are things we know we...
  11. K

    How come I didn't know this?

    To quote: As we know, There are known knowns. There are things we know we know. We also know there are known unknowns. That is to say we know there are some things we do not know. But there are also unknown unknowns, the ones we don't know we don't know. There are things we know we...
  12. K

    How come I didn't know this?

    To quote: As we know, There are known knowns. There are things we know we know. We also know there are known unknowns. That is to say we know there are some things we do not know. But there are also unknown unknowns, the ones we don't know we don't know. There are things we know we...
  13. K

    Waiting for Answers-- VERY FRUSTRATED

    Waiting for Answers-- What to ask doc tomorrow? Holy moly is right, the Hill Rom folks make a lot of money off our insurance compaines, don't they........ I am so glad that you are getting the full mutation testing done. That cost us about $2,600 and of course Ambry is non-network so I think...
  14. K

    Waiting for Answers-- VERY FRUSTRATED

    Waiting for Answers-- What to ask doc tomorrow? Holy moly is right, the Hill Rom folks make a lot of money off our insurance compaines, don't they........ I am so glad that you are getting the full mutation testing done. That cost us about $2,600 and of course Ambry is non-network so I think...
  15. K

    Waiting for Answers-- VERY FRUSTRATED

    Waiting for Answers-- What to ask doc tomorrow? Holy moly is right, the Hill Rom folks make a lot of money off our insurance compaines, don't they........ I am so glad that you are getting the full mutation testing done. That cost us about $2,600 and of course Ambry is non-network so I think...
  16. K

    Sweat test 133

    The normal range for sweat tests is 0 - 40 and above 60 is a "positive" result. Why are they doing another one if the first one was 133? If there is ultimately a positive diagnosis then your insurance company will have to spring for a blood test anyway because you will want to know the...
  17. K

    Sweat test 133

    The normal range for sweat tests is 0 - 40 and above 60 is a "positive" result. Why are they doing another one if the first one was 133? If there is ultimately a positive diagnosis then your insurance company will have to spring for a blood test anyway because you will want to know the...
  18. K

    Sweat test 133

    The normal range for sweat tests is 0 - 40 and above 60 is a "positive" result. Why are they doing another one if the first one was 133? If there is ultimately a positive diagnosis then your insurance company will have to spring for a blood test anyway because you will want to know the...
  19. K

    Arrg!

    Our pediatrician was so convinced our daughter did NOT have CF that when the place he sent us to did two positive sweat tests he told us we should DISREGARD those results and he sent us to a different place where they "did them all the time" and told us we could actually rely on the results from...
  20. K

    Arrg!

    Our pediatrician was so convinced our daughter did NOT have CF that when the place he sent us to did two positive sweat tests he told us we should DISREGARD those results and he sent us to a different place where they "did them all the time" and told us we could actually rely on the results from...
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