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This is interesting because Katy has been complaining of her tummy hurting for about 10 days now. It is almost like pre-diagnosis tummy complaints. Her stools are definitely post-dx 'normal', as in mostly sinkers, no grease, but she is sometimes having to go three times within 30 minutes to...

Katy's diagnosis in August came as a complete shock, as we have no known cases in our families (like many of you on this site). Since then we have tried to inform family members about the genetics with various success. We feel very strongly that our nieces and nephews should be tested to see...

Katy's diagnosis in August came as a complete shock, as we have no known cases in our families (like many of you on this site). Since then we have tried to inform family members about the genetics with various success. We feel very strongly that our nieces and nephews should be tested to see...

Katy's diagnosis in August came as a complete shock, as we have no known cases in our families (like many of you on this site). Since then we have tried to inform family members about the genetics with various success. We feel very strongly that our nieces and nephews should be tested to see...

Jane I tried to find out more and when I Googled it, I was referred back to this forum! I would love to know more, too. Not a Rosie fan particularly, but I just watched the clip from The View thanks to Blake's post and I was truly touched. So good for them that he is still living. Say what...

Jane I tried to find out more and when I Googled it, I was referred back to this forum! I would love to know more, too. Not a Rosie fan particularly, but I just watched the clip from The View thanks to Blake's post and I was truly touched. So good for them that he is still living. Say what...

Jane I tried to find out more and when I Googled it, I was referred back to this forum! I would love to know more, too. Not a Rosie fan particularly, but I just watched the clip from The View thanks to Blake's post and I was truly touched. So good for them that he is still living. Say what...

I'm really sorry for the diagnosis, but thank goodness your son can now get the treatments he needs. Wow, what a shock this must be. You are already 'speaking the language' though so think of how far you have come in such a short time. There are lots of assistance programs; there are three...

I'm really sorry for the diagnosis, but thank goodness your son can now get the treatments he needs. Wow, what a shock this must be. You are already 'speaking the language' though so think of how far you have come in such a short time. There are lots of assistance programs; there are three...

I'm really sorry for the diagnosis, but thank goodness your son can now get the treatments he needs. Wow, what a shock this must be. You are already 'speaking the language' though so think of how far you have come in such a short time. There are lots of assistance programs; there are three...

I was given a book that I've found incredibly informative - "Cystic Fibrosis Third Edition, A Guide for Patient and Family" by David M. Orenstein, M.D." It was published by Lippincott Williams & Wilkins. I'm sorry I don't know how to go about getting it on your own, as our speciality CF...

I was given a book that I've found incredibly informative - "Cystic Fibrosis Third Edition, A Guide for Patient and Family" by David M. Orenstein, M.D." It was published by Lippincott Williams & Wilkins. I'm sorry I don't know how to go about getting it on your own, as our speciality CF...

I was given a book that I've found incredibly informative - "Cystic Fibrosis Third Edition, A Guide for Patient and Family" by David M. Orenstein, M.D." It was published by Lippincott Williams & Wilkins. I'm sorry I don't know how to go about getting it on your own, as our speciality CF...

OMGosh Jody you just made my day........<img src="i/expressions/face-icon-small-smile.gif" border="0"> I've been SO worried about the liver issue. It's nice to know that it could be somewhat temporary. I won't get too excited but again it is nice to hear that possibility. As I said I'm still...

OMGosh Jody you just made my day........<img src="i/expressions/face-icon-small-smile.gif" border="0"> I've been SO worried about the liver issue. It's nice to know that it could be somewhat temporary. I won't get too excited but again it is nice to hear that possibility. As I said I'm still...

OMGosh Jody you just made my day........<img src="i/expressions/face-icon-small-smile.gif" border="0"> I've been SO worried about the liver issue. It's nice to know that it could be somewhat temporary. I won't get too excited but again it is nice to hear that possibility. As I said I'm still...

Katy's liver enzymes were a tad elevated on the first blood testing done by our CF doc (in August) and she had not been on any meds at all. I do know that they needed a 'base-line' measurement to compare to, and they were able to find one in her charts from her pediatrician. I don't know what...

Katy's liver enzymes were a tad elevated on the first blood testing done by our CF doc (in August) and she had not been on any meds at all. I do know that they needed a 'base-line' measurement to compare to, and they were able to find one in her charts from her pediatrician. I don't know what...

Katy's liver enzymes were a tad elevated on the first blood testing done by our CF doc (in August) and she had not been on any meds at all. I do know that they needed a 'base-line' measurement to compare to, and they were able to find one in her charts from her pediatrician. I don't know what...

Drive, drink, and spend the night! Gifts - One big one, or bunch of little ones Dana Mom to Katy (3, cf) and Kyra (6, no cf)