Cystic Fibrosis Forum (EXP)

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  1. K

    Jason Coverston update

    Terri - he was the subject of the thread on the Adults forum 'people who use cf to make money' and it was quite interesting. If this link doesn't work, then go 3 or 4 pages deep into the Adults forum. Jason, I hope you are getting the medical help you need; seems like lots of people care...
  2. K

    Jason Coverston update

    Terri - he was the subject of the thread on the Adults forum 'people who use cf to make money' and it was quite interesting. If this link doesn't work, then go 3 or 4 pages deep into the Adults forum. Jason, I hope you are getting the medical help you need; seems like lots of people care...
  3. K

    Fighting to do the vest

    I think the lowest point in my life was when I had to resort to a 'pop' for Katy to get her to cooperate with the vest. It was the classic stressed-out parent and kid set up, and it resulted in the predictable result. I cried, she cried. What a disaster. I have since had to summon all of my...
  4. K

    Fighting to do the vest

    I think the lowest point in my life was when I had to resort to a 'pop' for Katy to get her to cooperate with the vest. It was the classic stressed-out parent and kid set up, and it resulted in the predictable result. I cried, she cried. What a disaster. I have since had to summon all of my...
  5. K

    Fighting to do the vest

    I think the lowest point in my life was when I had to resort to a 'pop' for Katy to get her to cooperate with the vest. It was the classic stressed-out parent and kid set up, and it resulted in the predictable result. I cried, she cried. What a disaster. I have since had to summon all of my...
  6. K

    Progression of symptoms

    Erin - I wish I could tell you that it doesn't sound like CF! Our daughter's symptoms were digestive, and falling off the growth curve. She was born in the 95 percentiles and by the time of diagnosis was below the 25 percentiles. She was constantly hungry but wasn't growing; distended belly...
  7. K

    Progression of symptoms

    Erin - I wish I could tell you that it doesn't sound like CF! Our daughter's symptoms were digestive, and falling off the growth curve. She was born in the 95 percentiles and by the time of diagnosis was below the 25 percentiles. She was constantly hungry but wasn't growing; distended belly...
  8. K

    Progression of symptoms

    Erin - I wish I could tell you that it doesn't sound like CF! Our daughter's symptoms were digestive, and falling off the growth curve. She was born in the 95 percentiles and by the time of diagnosis was below the 25 percentiles. She was constantly hungry but wasn't growing; distended belly...
  9. K

    Daughter & Son-In-Law Carriers

    A CF carrier has one mutated CFTR gene and one normal gene. When carriers of CF have a child together, the possible combinations and probabilities are (remember the child gets one gene from each parent): mutated gene and normal gene - 50%; this child is a carrier but does not have CF mutated...
  10. K

    Daughter & Son-In-Law Carriers

    A CF carrier has one mutated CFTR gene and one normal gene. When carriers of CF have a child together, the possible combinations and probabilities are (remember the child gets one gene from each parent): mutated gene and normal gene - 50%; this child is a carrier but does not have CF mutated...
  11. K

    Daughter & Son-In-Law Carriers

    A CF carrier has one mutated CFTR gene and one normal gene. When carriers of CF have a child together, the possible combinations and probabilities are (remember the child gets one gene from each parent): mutated gene and normal gene - 50%; this child is a carrier but does not have CF mutated...
  12. K

    Going onto enzymes

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> At least from this site I knew enough to not put too much stock in the idea of "mild", so I wasn't shocked by his statement. But it was still a bit tough. Thanks for listening!!</end quote></div> I'm sorry; I...
  13. K

    Going onto enzymes

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> At least from this site I knew enough to not put too much stock in the idea of "mild", so I wasn't shocked by his statement. But it was still a bit tough. Thanks for listening!!</end quote></div> I'm sorry; I...
  14. K

    Going onto enzymes

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> At least from this site I knew enough to not put too much stock in the idea of "mild", so I wasn't shocked by his statement. But it was still a bit tough. Thanks for listening!!</end quote></div> I'm sorry; I...
  15. K

    Update on Nephew

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lalasmomallie</b></i> But most of all just remember that she will pretend to be alot stronger than she really feels. That's what Mom's do but sometimes we just need someone to take care of us. She's very lucky to have you and I will...
  16. K

    Update on Nephew

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lalasmomallie</b></i> But most of all just remember that she will pretend to be alot stronger than she really feels. That's what Mom's do but sometimes we just need someone to take care of us. She's very lucky to have you and I will...
  17. K

    Update on Nephew

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>lalasmomallie</b></i> But most of all just remember that she will pretend to be alot stronger than she really feels. That's what Mom's do but sometimes we just need someone to take care of us. She's very lucky to have you and I will...
  18. K

    OT -- My baby is growing up

    Absolutely go! You and he will have so much fun! Sometimes I think 'germs be d@mned'; for example, Katy got this horrible high fever (went to doc; it was a virus) for a few days over the Christmas break and she had not seen anyone but us for 5 days prior to getting it, and we hadn't been...
  19. K

    OT -- My baby is growing up

    Absolutely go! You and he will have so much fun! Sometimes I think 'germs be d@mned'; for example, Katy got this horrible high fever (went to doc; it was a virus) for a few days over the Christmas break and she had not seen anyone but us for 5 days prior to getting it, and we hadn't been...
  20. K

    OT -- My baby is growing up

    Absolutely go! You and he will have so much fun! Sometimes I think 'germs be d@mned'; for example, Katy got this horrible high fever (went to doc; it was a virus) for a few days over the Christmas break and she had not seen anyone but us for 5 days prior to getting it, and we hadn't been...
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