Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. K

    Welcome Ambry Genetics

    Hi Steve - General background - our younger daughter was diagnosed in August and her blood test came back double dF508 Background to Question #1: This has to do with my older daughter, who did sit still for a sweat test, which was negative. We wanted to test her to see if she is a carrier and...
  2. K

    Lost.... ?

    Hmmm, curious and strange! Was there a read-out on a machine?? What was the sensor recording?? I don't recall that Katy's arm was blue but it is all a blur. Now I do remember that when the sweat was collected at the CF doc's office that the coil of tubing collecting the sweat did turn blue...
  3. K

    Lost.... ?

    Hmmm, curious and strange! Was there a read-out on a machine?? What was the sensor recording?? I don't recall that Katy's arm was blue but it is all a blur. Now I do remember that when the sweat was collected at the CF doc's office that the coil of tubing collecting the sweat did turn blue...
  4. K

    Lost.... ?

    Hmmm, curious and strange! Was there a read-out on a machine?? What was the sensor recording?? I don't recall that Katy's arm was blue but it is all a blur. Now I do remember that when the sweat was collected at the CF doc's office that the coil of tubing collecting the sweat did turn blue...
  5. K

    Lost.... ?

    Well you are certainly on a roller coaster ride and I'm so sorry for that! I'm glad your doc listened to you. I'm curious - at the place where my daugther's first test was done they never collected sweat either. They put some kind of sensor disk on her arm, after they had generated the...
  6. K

    Lost.... ?

    Well you are certainly on a roller coaster ride and I'm so sorry for that! I'm glad your doc listened to you. I'm curious - at the place where my daugther's first test was done they never collected sweat either. They put some kind of sensor disk on her arm, after they had generated the...
  7. K

    Lost.... ?

    Well you are certainly on a roller coaster ride and I'm so sorry for that! I'm glad your doc listened to you. I'm curious - at the place where my daugther's first test was done they never collected sweat either. They put some kind of sensor disk on her arm, after they had generated the...
  8. K

    Lost.... ?

    Hi - your best bet for the sweat test is for it to be done at an accredited CF center. At the very least you want a place that does them frequently. If they have to break out the instructions to run the equipment and/or conduct the test, that is not a good sign. I don't mean to be glib - we...
  9. K

    Lost.... ?

    Hi - your best bet for the sweat test is for it to be done at an accredited CF center. At the very least you want a place that does them frequently. If they have to break out the instructions to run the equipment and/or conduct the test, that is not a good sign. I don't mean to be glib - we...
  10. K

    Lost.... ?

    Hi - your best bet for the sweat test is for it to be done at an accredited CF center. At the very least you want a place that does them frequently. If they have to break out the instructions to run the equipment and/or conduct the test, that is not a good sign. I don't mean to be glib - we...
  11. K

    Tami's (Izemmom) Emily in Hospital

    Tami, we are still praying for your family and hoping little Emily will get better soon. Wish there was something more that I could do to help you. Thank goodness for your friend Mary and I'm sure others that are gathering around and supporting you. Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  12. K

    Tami's (Izemmom) Emily in Hospital

    Tami, we are still praying for your family and hoping little Emily will get better soon. Wish there was something more that I could do to help you. Thank goodness for your friend Mary and I'm sure others that are gathering around and supporting you. Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  13. K

    Tami's (Izemmom) Emily in Hospital

    Tami, we are still praying for your family and hoping little Emily will get better soon. Wish there was something more that I could do to help you. Thank goodness for your friend Mary and I'm sure others that are gathering around and supporting you. Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  14. K

    Ugh -- I've got Bronchitis

    Sorry you were so sick but I'm glad it sounds like you are on the mend! "Coma naps" LOL I've had a few of those..... Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  15. K

    Ugh -- I've got Bronchitis

    Sorry you were so sick but I'm glad it sounds like you are on the mend! "Coma naps" LOL I've had a few of those..... Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  16. K

    Ugh -- I've got Bronchitis

    Sorry you were so sick but I'm glad it sounds like you are on the mend! "Coma naps" LOL I've had a few of those..... Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  17. K

    Still Coping ~ Haven't Posted in a While

    Oh Emily, I am THRILLED to hear that you guys are doing so well! I think we need to hear the good and the bad, so thank you for posting. I can definitely relate to the sense of other-worldness about treating invisible symptoms. We're not symptomatic for lung issues, but we're still on nebs...
  18. K

    Still Coping ~ Haven't Posted in a While

    Oh Emily, I am THRILLED to hear that you guys are doing so well! I think we need to hear the good and the bad, so thank you for posting. I can definitely relate to the sense of other-worldness about treating invisible symptoms. We're not symptomatic for lung issues, but we're still on nebs...
  19. K

    Still Coping ~ Haven't Posted in a While

    Oh Emily, I am THRILLED to hear that you guys are doing so well! I think we need to hear the good and the bad, so thank you for posting. I can definitely relate to the sense of other-worldness about treating invisible symptoms. We're not symptomatic for lung issues, but we're still on nebs...
  20. K

    Jason Coverston update

    Terri - he was the subject of the thread on the Adults forum 'people who use cf to make money' and it was quite interesting. If this link doesn't work, then go 3 or 4 pages deep into the Adults forum. Jason, I hope you are getting the medical help you need; seems like lots of people care...
Top