Cystic Fibrosis Forum (EXP)

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  1. M

    Where is the most unusual place you've infused your IVs?

    let's see, I did the big syringe push kind with it tucked neatly inside my lab coat at work, many a times in a bathroom, and oh yeah--does driving down the road count as weird? I did that a couple times in a time crunch. I can't think of anything else weird.
  2. M

    Where is the most unusual place you've infused your IVs?

    let's see, I did the big syringe push kind with it tucked neatly inside my lab coat at work, many a times in a bathroom, and oh yeah--does driving down the road count as weird? I did that a couple times in a time crunch. I can't think of anything else weird.
  3. M

    Where is the most unusual place you've infused your IVs?

    let's see, I did the big syringe push kind with it tucked neatly inside my lab coat at work, many a times in a bathroom, and oh yeah--does driving down the road count as weird? I did that a couple times in a time crunch. I can't think of anything else weird.
  4. M

    Where is the most unusual place you've infused your IVs?

    let's see, I did the big syringe push kind with it tucked neatly inside my lab coat at work, many a times in a bathroom, and oh yeah--does driving down the road count as weird? I did that a couple times in a time crunch. I can't think of anything else weird.
  5. M

    Where is the most unusual place you've infused your IVs?

    let's see, I did the big syringe push kind with it tucked neatly inside my lab coat at work, many a times in a bathroom, and oh yeah--does driving down the road count as weird? I did that a couple times in a time crunch. I can't think of anything else weird. <br /> <br /> <br />
  6. M

    Can I vent for a minute??

    Anne-I agree there is a fine balancing act there, I find it 'extra' difficult because on top of being upbeat about it and trying not to let it interfere I also was diagnosed so late that others assume sometimes that it is just a 'thing' no big deal etc. We were talking about 401K and life...
  7. M

    Can I vent for a minute??

    Anne-I agree there is a fine balancing act there, I find it 'extra' difficult because on top of being upbeat about it and trying not to let it interfere I also was diagnosed so late that others assume sometimes that it is just a 'thing' no big deal etc. We were talking about 401K and life...
  8. M

    Can I vent for a minute??

    Anne-I agree there is a fine balancing act there, I find it 'extra' difficult because on top of being upbeat about it and trying not to let it interfere I also was diagnosed so late that others assume sometimes that it is just a 'thing' no big deal etc. We were talking about 401K and life...
  9. M

    Can I vent for a minute??

    Anne-I agree there is a fine balancing act there, I find it 'extra' difficult because on top of being upbeat about it and trying not to let it interfere I also was diagnosed so late that others assume sometimes that it is just a 'thing' no big deal etc. We were talking about 401K and life...
  10. M

    Can I vent for a minute??

    Anne-I agree there is a fine balancing act there, I find it 'extra' difficult because on top of being upbeat about it and trying not to let it interfere I also was diagnosed so late that others assume sometimes that it is just a 'thing' no big deal etc. We were talking about 401K and life...
  11. M

    Pancreatic Sufficiency and Symptomatic Carrier

    yes, as mentioned you can loose your PS status, I was even told to 'watch' for signs of loosing it etc as I very well might at some point. If your husband has a mutation that wasnt picked up on initial basic screening and SIL had the same test it of course would not have picked hers up either...
  12. M

    Pancreatic Sufficiency and Symptomatic Carrier

    yes, as mentioned you can loose your PS status, I was even told to 'watch' for signs of loosing it etc as I very well might at some point. If your husband has a mutation that wasnt picked up on initial basic screening and SIL had the same test it of course would not have picked hers up either...
  13. M

    Pancreatic Sufficiency and Symptomatic Carrier

    yes, as mentioned you can loose your PS status, I was even told to 'watch' for signs of loosing it etc as I very well might at some point. If your husband has a mutation that wasnt picked up on initial basic screening and SIL had the same test it of course would not have picked hers up either...
  14. M

    Pancreatic Sufficiency and Symptomatic Carrier

    yes, as mentioned you can loose your PS status, I was even told to 'watch' for signs of loosing it etc as I very well might at some point. If your husband has a mutation that wasnt picked up on initial basic screening and SIL had the same test it of course would not have picked hers up either...
  15. M

    Pancreatic Sufficiency and Symptomatic Carrier

    yes, as mentioned you can loose your PS status, I was even told to 'watch' for signs of loosing it etc as I very well might at some point. If your husband has a mutation that wasnt picked up on initial basic screening and SIL had the same test it of course would not have picked hers up either...
  16. M

    for those of you with a VEST

    hey there I didnt have any toruble but I have great insurance. I would think you can work with one companies, they do all the paperwork and 'lobbying' for you. They woudl be able to do an appeal and show the cost of chest PT compared to teh vest and if you are not married they can throw that in...
  17. M

    for those of you with a VEST

    hey there I didnt have any toruble but I have great insurance. I would think you can work with one companies, they do all the paperwork and 'lobbying' for you. They woudl be able to do an appeal and show the cost of chest PT compared to teh vest and if you are not married they can throw that in...
  18. M

    for those of you with a VEST

    hey there I didnt have any toruble but I have great insurance. I would think you can work with one companies, they do all the paperwork and 'lobbying' for you. They woudl be able to do an appeal and show the cost of chest PT compared to teh vest and if you are not married they can throw that in...
  19. M

    for those of you with a VEST

    hey there I didnt have any toruble but I have great insurance. I would think you can work with one companies, they do all the paperwork and 'lobbying' for you. They woudl be able to do an appeal and show the cost of chest PT compared to teh vest and if you are not married they can throw that in...
  20. M

    for those of you with a VEST

    hey there I didnt have any toruble but I have great insurance. I would think you can work with one companies, they do all the paperwork and 'lobbying' for you. They woudl be able to do an appeal and show the cost of chest PT compared to teh vest and if you are not married they can throw that in...
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