Cystic Fibrosis Forum (EXP)

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  1. M

    post IV questions

    Hey there, it doesnt sound like mine is the 'norm' but when I am on IV's I get very dryed out despite amazing amounts of water consumption (but I have also never been on HTS when on IVs so this may change next time). Anyway within a week of anti's I get almost nothing out I am so dry, then about...
  2. M

    post IV questions

    Hey there, it doesnt sound like mine is the 'norm' but when I am on IV's I get very dryed out despite amazing amounts of water consumption (but I have also never been on HTS when on IVs so this may change next time). Anyway within a week of anti's I get almost nothing out I am so dry, then about...
  3. M

    post IV questions

    Hey there, it doesnt sound like mine is the 'norm' but when I am on IV's I get very dryed out despite amazing amounts of water consumption (but I have also never been on HTS when on IVs so this may change next time). Anyway within a week of anti's I get almost nothing out I am so dry, then about...
  4. M

    post IV questions

    Hey there, it doesnt sound like mine is the 'norm' but when I am on IV's I get very dryed out despite amazing amounts of water consumption (but I have also never been on HTS when on IVs so this may change next time). Anyway within a week of anti's I get almost nothing out I am so dry, then about...
  5. M

    post IV questions

    Hey there, it doesnt sound like mine is the 'norm' but when I am on IV's I get very dryed out despite amazing amounts of water consumption (but I have also never been on HTS when on IVs so this may change next time). Anyway within a week of anti's I get almost nothing out I am so dry, then about...
  6. M

    CF clinic appointment on Wednesday

    wow, thats crazy, counting myself lucky here with clinic being 15 minutes from my work and 30 from home. ps I live in MI he he he--glad you said when you were born and not now Leah! anyway no ideas for you except that I have read that it is good to start making transitions before the new baby...
  7. M

    CF clinic appointment on Wednesday

    wow, thats crazy, counting myself lucky here with clinic being 15 minutes from my work and 30 from home. ps I live in MI he he he--glad you said when you were born and not now Leah! anyway no ideas for you except that I have read that it is good to start making transitions before the new baby...
  8. M

    CF clinic appointment on Wednesday

    wow, thats crazy, counting myself lucky here with clinic being 15 minutes from my work and 30 from home. ps I live in MI he he he--glad you said when you were born and not now Leah! anyway no ideas for you except that I have read that it is good to start making transitions before the new baby...
  9. M

    CF clinic appointment on Wednesday

    wow, thats crazy, counting myself lucky here with clinic being 15 minutes from my work and 30 from home. ps I live in MI he he he--glad you said when you were born and not now Leah! anyway no ideas for you except that I have read that it is good to start making transitions before the new baby...
  10. M

    CF clinic appointment on Wednesday

    wow, thats crazy, counting myself lucky here with clinic being 15 minutes from my work and 30 from home. ps I live in MI he he he--glad you said when you were born and not now Leah! anyway no ideas for you except that I have read that it is good to start making transitions before the new baby...
  11. M

    Exercise

    although as mentioned you cant 'beat' a lunf infection with excercise I have beat many colds/flus that would normally have =an exacerbation with excercise. I believe it fires up my immune system and also helps get everything (mucous) moving so it cant find a place to rest and cause and...
  12. M

    Exercise

    although as mentioned you cant 'beat' a lunf infection with excercise I have beat many colds/flus that would normally have =an exacerbation with excercise. I believe it fires up my immune system and also helps get everything (mucous) moving so it cant find a place to rest and cause and...
  13. M

    Exercise

    although as mentioned you cant 'beat' a lunf infection with excercise I have beat many colds/flus that would normally have =an exacerbation with excercise. I believe it fires up my immune system and also helps get everything (mucous) moving so it cant find a place to rest and cause and...
  14. M

    Exercise

    although as mentioned you cant 'beat' a lunf infection with excercise I have beat many colds/flus that would normally have =an exacerbation with excercise. I believe it fires up my immune system and also helps get everything (mucous) moving so it cant find a place to rest and cause and...
  15. M

    Exercise

    although as mentioned you cant 'beat' a lunf infection with excercise I have beat many colds/flus that would normally have =an exacerbation with excercise. I believe it fires up my immune system and also helps get everything (mucous) moving so it cant find a place to rest and cause and...
  16. M

    doc says NO to inhaled tobi while pregnant...

    didnt read the replies but you can do a peak and trough with inhaled tobi (well peak only is necessary since it wont even be there for that) and the TOBI levels arent even detectable in your blood or are almost nonexistent (I had this done). Because it stays in the lungs, it goes direcetly to...
  17. M

    doc says NO to inhaled tobi while pregnant...

    didnt read the replies but you can do a peak and trough with inhaled tobi (well peak only is necessary since it wont even be there for that) and the TOBI levels arent even detectable in your blood or are almost nonexistent (I had this done). Because it stays in the lungs, it goes direcetly to...
  18. M

    doc says NO to inhaled tobi while pregnant...

    didnt read the replies but you can do a peak and trough with inhaled tobi (well peak only is necessary since it wont even be there for that) and the TOBI levels arent even detectable in your blood or are almost nonexistent (I had this done). Because it stays in the lungs, it goes direcetly to...
  19. M

    doc says NO to inhaled tobi while pregnant...

    didnt read the replies but you can do a peak and trough with inhaled tobi (well peak only is necessary since it wont even be there for that) and the TOBI levels arent even detectable in your blood or are almost nonexistent (I had this done). Because it stays in the lungs, it goes direcetly to...
  20. M

    doc says NO to inhaled tobi while pregnant...

    didnt read the replies but you can do a peak and trough with inhaled tobi (well peak only is necessary since it wont even be there for that) and the TOBI levels arent even detectable in your blood or are almost nonexistent (I had this done). Because it stays in the lungs, it goes direcetly to...
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