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Hi Jennifer. I am sorry for your diagnosis but happy that now your daughter can get the treatment she needs, and that she is already feeling better! Our diagnosis is still very recent (almost 8 weeks now) but I have been amazed at how we have been able to adjust. At first I never ever EVER...

Hi Jennifer. I am sorry for your diagnosis but happy that now your daughter can get the treatment she needs, and that she is already feeling better! Our diagnosis is still very recent (almost 8 weeks now) but I have been amazed at how we have been able to adjust. At first I never ever EVER...

Hi Jennifer. I am sorry for your diagnosis but happy that now your daughter can get the treatment she needs, and that she is already feeling better! Our diagnosis is still very recent (almost 8 weeks now) but I have been amazed at how we have been able to adjust. At first I never ever EVER...

They swabbed Katy at her doc visit last Monday and they called today to report that her culture was clear of everything! She had cultured PA in early September and is in the middle of a 3 month solid TOBI regimen (among other things, as you know). Although my husband and I are very happy, I...

They swabbed Katy at her doc visit last Monday and they called today to report that her culture was clear of everything! She had cultured PA in early September and is in the middle of a 3 month solid TOBI regimen (among other things, as you know). Although my husband and I are very happy, I...

They swabbed Katy at her doc visit last Monday and they called today to report that her culture was clear of everything! She had cultured PA in early September and is in the middle of a 3 month solid TOBI regimen (among other things, as you know). Although my husband and I are very happy, I...

Yes, the 104 is the newest Hill-Rom. We had it on a trial period and then a friend of a friend connected us with a used Hill-Rom 103. The 104 was much sexier than the 103. The 103 looks like some old, clunky piece of medical equipment and the 104 was sleek and small and much more portable...

Yes, the 104 is the newest Hill-Rom. We had it on a trial period and then a friend of a friend connected us with a used Hill-Rom 103. The 104 was much sexier than the 103. The 103 looks like some old, clunky piece of medical equipment and the 104 was sleek and small and much more portable...

Yes, the 104 is the newest Hill-Rom. We had it on a trial period and then a friend of a friend connected us with a used Hill-Rom 103. The 104 was much sexier than the 103. The 103 looks like some old, clunky piece of medical equipment and the 104 was sleek and small and much more portable...

Kiel, your optimism is catching. When I get really low, I snap myself out of it by thinking about the research and treatment advancements on the horizon. The words "fortunate" actually come out of my mouth. Fortunate that my daughter is still so young, fortunate that she has a fabulous doc...

Kiel, your optimism is catching. When I get really low, I snap myself out of it by thinking about the research and treatment advancements on the horizon. The words "fortunate" actually come out of my mouth. Fortunate that my daughter is still so young, fortunate that she has a fabulous doc...

Kiel, your optimism is catching. When I get really low, I snap myself out of it by thinking about the research and treatment advancements on the horizon. The words "fortunate" actually come out of my mouth. Fortunate that my daughter is still so young, fortunate that she has a fabulous doc...

Sharon - I am very sorry your son is having these complications.  I do not have any answers.  We are in our 2nd month of a 3-month TOBI regimen, as we have just cultured PA for the first time as well.  So I am very interested in the responses.<br> I am sure some folks here will have some...

Sharon - I am very sorry your son is having these complications.  I do not have any answers.  We are in our 2nd month of a 3-month TOBI regimen, as we have just cultured PA for the first time as well.  So I am very interested in the responses.<br> I am sure some folks here will have some...

Sharon - I am very sorry your son is having these complications.  I do not have any answers.  We are in our 2nd month of a 3-month TOBI regimen, as we have just cultured PA for the first time as well.  So I am very interested in the responses.<br> I am sure some folks here will have some...

1 - We have the vest already; my daughter is 3 yrs 4 months and was only diagnosed about 45 days ago<br> 2 - The doctor prescribed it<br> 3 - I would say yes our doc is aggressive in all areas of treatment<br> 4 - We did not have any obvious respiratory issues at all.  We were diagnosed because...

1 - We have the vest already; my daughter is 3 yrs 4 months and was only diagnosed about 45 days ago<br> 2 - The doctor prescribed it<br> 3 - I would say yes our doc is aggressive in all areas of treatment<br> 4 - We did not have any obvious respiratory issues at all.  We were diagnosed because...

1 - We have the vest already; my daughter is 3 yrs 4 months and was only diagnosed about 45 days ago<br> 2 - The doctor prescribed it<br> 3 - I would say yes our doc is aggressive in all areas of treatment<br> 4 - We did not have any obvious respiratory issues at all.  We were diagnosed because...

I'm with Jody - the percentile thing is a TREND and should be evaluated as such.  If she started out at 10% then staying at 10% is probably okay.<br> <br> Otherwise I would demand that they evaluate her pancreatic sufficiency (you too, Debbie).  Granted I am bringing my own baggage to this -...

I'm with Jody - the percentile thing is a TREND and should be evaluated as such.  If she started out at 10% then staying at 10% is probably okay.<br> <br> Otherwise I would demand that they evaluate her pancreatic sufficiency (you too, Debbie).  Granted I am bringing my own baggage to this -...