Cystic Fibrosis Forum (EXP)

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  1. K

    are all Pari cups unique (and special)

    We are in the sticks and on well water. Our water softener system cost about $800 in 1993 when we bought the house. But our water was REALLY hard and we also had to have some kind of supplemental thing, too. It is a large enough unit to treat the water supply where it comes in for the whole...
  2. K

    are all Pari cups unique (and special)

    We are in the sticks and on well water. Our water softener system cost about $800 in 1993 when we bought the house. But our water was REALLY hard and we also had to have some kind of supplemental thing, too. It is a large enough unit to treat the water supply where it comes in for the whole...
  3. K

    What does this mean???

    I agree with Chaggie and Chipper 28. And, for your doc to suggest you wait three months is CRAZY. There is NO way. Insist on a "real" sweat test or bloodwork as soon as you can. We got two positive sweat tests on a Thursday and then were told to disregard those because where we had them...
  4. K

    What does this mean???

    I agree with Chaggie and Chipper 28. And, for your doc to suggest you wait three months is CRAZY. There is NO way. Insist on a "real" sweat test or bloodwork as soon as you can. We got two positive sweat tests on a Thursday and then were told to disregard those because where we had them...
  5. K

    What does this mean???

    I agree with Chaggie and Chipper 28. And, for your doc to suggest you wait three months is CRAZY. There is NO way. Insist on a "real" sweat test or bloodwork as soon as you can. We got two positive sweat tests on a Thursday and then were told to disregard those because where we had them...
  6. K

    are all Pari cups unique (and special)

    This is a good question because I noticed all of a sudden Katy's TOBI treatment is taking less than 20 minutes, and before it took 25 minutes at least, and then some was still left but wouldn't ever come out. We did start using a brand new PARI LC Plus because I thought we had ruined the old...
  7. K

    are all Pari cups unique (and special)

    This is a good question because I noticed all of a sudden Katy's TOBI treatment is taking less than 20 minutes, and before it took 25 minutes at least, and then some was still left but wouldn't ever come out. We did start using a brand new PARI LC Plus because I thought we had ruined the old...
  8. K

    are all Pari cups unique (and special)

    This is a good question because I noticed all of a sudden Katy's TOBI treatment is taking less than 20 minutes, and before it took 25 minutes at least, and then some was still left but wouldn't ever come out. We did start using a brand new PARI LC Plus because I thought we had ruined the old...
  9. K

    Asked to talk to Nursing Students about CF

    I'm sorry I shouldn't laugh but all of this is so funny, especially considering past rants about family members. We have one in particular that always tries to 'better' us about the kinds of meds she has been on for this bad cough she has had lately. Whatever - this is a contest I definitely...
  10. K

    Asked to talk to Nursing Students about CF

    I'm sorry I shouldn't laugh but all of this is so funny, especially considering past rants about family members. We have one in particular that always tries to 'better' us about the kinds of meds she has been on for this bad cough she has had lately. Whatever - this is a contest I definitely...
  11. K

    Asked to talk to Nursing Students about CF

    I'm sorry I shouldn't laugh but all of this is so funny, especially considering past rants about family members. We have one in particular that always tries to 'better' us about the kinds of meds she has been on for this bad cough she has had lately. Whatever - this is a contest I definitely...
  12. K

    posting from "newly diagnosed" forum

    posting from "newly diagnosed Sending long-distance hugs your way. I know what you mean about being totally consumed by this. You have done very well to get as far as you have; I would just echo everyone else saying there is no reason to wait two months to get some relief for your little one...
  13. K

    posting from "newly diagnosed" forum

    posting from "newly diagnosed Sending long-distance hugs your way. I know what you mean about being totally consumed by this. You have done very well to get as far as you have; I would just echo everyone else saying there is no reason to wait two months to get some relief for your little one...
  14. K

    posting from "newly diagnosed" forum

    posting from "newly diagnosed Sending long-distance hugs your way. I know what you mean about being totally consumed by this. You have done very well to get as far as you have; I would just echo everyone else saying there is no reason to wait two months to get some relief for your little one...
  15. K

    Party-time and celebration

    Cool, and I'm glad you've got a computer at home now! I wish I had known you needed one..... I'm sure I'll pass out first but I'll try to be there! Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  16. K

    Party-time and celebration

    Cool, and I'm glad you've got a computer at home now! I wish I had known you needed one..... I'm sure I'll pass out first but I'll try to be there! Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  17. K

    Party-time and celebration

    Cool, and I'm glad you've got a computer at home now! I wish I had known you needed one..... I'm sure I'll pass out first but I'll try to be there! Dana Mom to Katy (3, cf) and Kyra (6, no cf)
  18. K

    newly diagnosed at 5months old.

    Pseudomonas aeruginosa (you can see why we abbreviate to PA) is a nasty and opporunistic bacteria that is very problematic for CF people. That is why they culture for it and other bugs - if she ever cultures it, they can start your daughter on inhalation treatements and antibiotics to try to...
  19. K

    newly diagnosed at 5months old.

    Pseudomonas aeruginosa (you can see why we abbreviate to PA) is a nasty and opporunistic bacteria that is very problematic for CF people. That is why they culture for it and other bugs - if she ever cultures it, they can start your daughter on inhalation treatements and antibiotics to try to...
  20. K

    newly diagnosed at 5months old.

    Pseudomonas aeruginosa (you can see why we abbreviate to PA) is a nasty and opporunistic bacteria that is very problematic for CF people. That is why they culture for it and other bugs - if she ever cultures it, they can start your daughter on inhalation treatements and antibiotics to try to...
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