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  1. A

    waiting for results

    Will you be testing all the kids or just one?
  2. A

    waiting for results

    Will you be testing all the kids or just one?
  3. A

    waiting for results

    Will you be testing all the kids or just one?
  4. A

    waiting for results

    Will you be testing all the kids or just one?
  5. A

    waiting for results

    Will you be testing all the kids or just one?
  6. A

    Girl Scout Meeting

    I think all this openness and sharing of info about CF is wonderful for the patient.... my kids have been very open about their CF too, but I have met a couple of adults with CF who talk about how secretive they have always been about their CF and equipment... even their best friends didn't know...
  7. A

    Girl Scout Meeting

    I think all this openness and sharing of info about CF is wonderful for the patient.... my kids have been very open about their CF too, but I have met a couple of adults with CF who talk about how secretive they have always been about their CF and equipment... even their best friends didn't know...
  8. A

    Girl Scout Meeting

    I think all this openness and sharing of info about CF is wonderful for the patient.... my kids have been very open about their CF too, but I have met a couple of adults with CF who talk about how secretive they have always been about their CF and equipment... even their best friends didn't know...
  9. A

    Girl Scout Meeting

    I think all this openness and sharing of info about CF is wonderful for the patient.... my kids have been very open about their CF too, but I have met a couple of adults with CF who talk about how secretive they have always been about their CF and equipment... even their best friends didn't know...
  10. A

    Girl Scout Meeting

    I think all this openness and sharing of info about CF is wonderful for the patient.... my kids have been very open about their CF too, but I have met a couple of adults with CF who talk about how secretive they have always been about their CF and equipment... even their best friends didn't know...
  11. A

    Sterilizing nebs

    I have the CFF website info and link in my blog. I also use the Germ Guardian and love it -- very convenient and now I don't have to wait forever and wonder if the cups are really dry or not. Here is what's on my blog page: I have the "official" paper from our CF clinic on how to care for...
  12. A

    Sterilizing nebs

    I have the CFF website info and link in my blog. I also use the Germ Guardian and love it -- very convenient and now I don't have to wait forever and wonder if the cups are really dry or not. Here is what's on my blog page: I have the "official" paper from our CF clinic on how to care for...
  13. A

    Sterilizing nebs

    I have the CFF website info and link in my blog. I also use the Germ Guardian and love it -- very convenient and now I don't have to wait forever and wonder if the cups are really dry or not. Here is what's on my blog page: I have the "official" paper from our CF clinic on how to care for...
  14. A

    Sterilizing nebs

    I have the CFF website info and link in my blog. I also use the Germ Guardian and love it -- very convenient and now I don't have to wait forever and wonder if the cups are really dry or not. Here is what's on my blog page: I have the "official" paper from our CF clinic on how to care for...
  15. A

    Sterilizing nebs

    I have the CFF website info and link in my blog. <br /> <br />I also use the Germ Guardian and love it -- very convenient and now I don't have to wait forever and wonder if the cups are really dry or not. <br /> <br /> <br />Here is what's on my blog page: <br /> <br />I have the "official"...
  16. A

    deltaF508/R117H-7T mother just diagnosed

    <b>NZ</b> Yes, you certainly should ask for a full panel ambry -- there are about 1580 genes to look for, chances are very good that they only tested you for less than 100.... not very good odd of finding them! I believe it would do you a lot of good to get tested and if two genes are found to...
  17. A

    deltaF508/R117H-7T mother just diagnosed

    <b>NZ</b> Yes, you certainly should ask for a full panel ambry -- there are about 1580 genes to look for, chances are very good that they only tested you for less than 100.... not very good odd of finding them! I believe it would do you a lot of good to get tested and if two genes are found to...
  18. A

    deltaF508/R117H-7T mother just diagnosed

    <b>NZ</b> Yes, you certainly should ask for a full panel ambry -- there are about 1580 genes to look for, chances are very good that they only tested you for less than 100.... not very good odd of finding them! I believe it would do you a lot of good to get tested and if two genes are found to...
  19. A

    deltaF508/R117H-7T mother just diagnosed

    <b>NZ</b> Yes, you certainly should ask for a full panel ambry -- there are about 1580 genes to look for, chances are very good that they only tested you for less than 100.... not very good odd of finding them! I believe it would do you a lot of good to get tested and if two genes are found to...
  20. A

    deltaF508/R117H-7T mother just diagnosed

    <b>NZ</b> <br /> <br />Yes, you certainly should ask for a full panel ambry -- there are about 1580 genes to look for, chances are very good that they only tested you for less than 100.... not very good odd of finding them! <br /> <br />I believe it would do you a lot of good to get tested and...
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