Cystic Fibrosis Forum (EXP)

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  1. A

    deltaF508/R117H-7T mother just diagnosed

    Debbie, My kids are both Delta F508 and R117H too. My daughter presented with symtoms at age 5 but was misdiagnosed until age 14 when they did gene testing.... my son was tested at age 18 just to "see if he was a carrier" but he had both genes too....he did not show any symptoms until age...
  2. A

    deltaF508/R117H-7T mother just diagnosed

    Debbie, My kids are both Delta F508 and R117H too. My daughter presented with symtoms at age 5 but was misdiagnosed until age 14 when they did gene testing.... my son was tested at age 18 just to "see if he was a carrier" but he had both genes too....he did not show any symptoms until age...
  3. A

    deltaF508/R117H-7T mother just diagnosed

    Debbie, My kids are both Delta F508 and R117H too. My daughter presented with symtoms at age 5 but was misdiagnosed until age 14 when they did gene testing.... my son was tested at age 18 just to "see if he was a carrier" but he had both genes too....he did not show any symptoms until age...
  4. A

    deltaF508/R117H-7T mother just diagnosed

    Debbie, My kids are both Delta F508 and R117H too. My daughter presented with symtoms at age 5 but was misdiagnosed until age 14 when they did gene testing.... my son was tested at age 18 just to "see if he was a carrier" but he had both genes too....he did not show any symptoms until age...
  5. A

    deltaF508/R117H-7T mother just diagnosed

    Debbie, <br /> <br />My kids are both Delta F508 and R117H too. My daughter presented with symtoms at age 5 but was misdiagnosed until age 14 when they did gene testing.... my son was tested at age 18 just to "see if he was a carrier" but he had both genes too....he did not show any symptoms...
  6. A

    Terminating pregnancy?

    Peanut2008, No, I'm am in no way offended.... thank you for clarifying what you saw.
  7. A

    Terminating pregnancy?

    Peanut2008, No, I'm am in no way offended.... thank you for clarifying what you saw.
  8. A

    Terminating pregnancy?

    Peanut2008, No, I'm am in no way offended.... thank you for clarifying what you saw.
  9. A

    Terminating pregnancy?

    Peanut2008, No, I'm am in no way offended.... thank you for clarifying what you saw.
  10. A

    Terminating pregnancy?

    Peanut2008, <br /> <br />No, I'm am in no way offended.... thank you for clarifying what you saw.
  11. A

    Asking for testing... UPDATE in first post

    Asking for testing... Your doctor is locked into old school thinking.... of course many people gain in height and may not necessarily gain in weight -- you are still talking about a relatively short period of time. It is a ridiculous thing to pronounce as truth when there are so many other...
  12. A

    Asking for testing... UPDATE in first post

    Asking for testing... Your doctor is locked into old school thinking.... of course many people gain in height and may not necessarily gain in weight -- you are still talking about a relatively short period of time. It is a ridiculous thing to pronounce as truth when there are so many other...
  13. A

    Asking for testing... UPDATE in first post

    Asking for testing... Your doctor is locked into old school thinking.... of course many people gain in height and may not necessarily gain in weight -- you are still talking about a relatively short period of time. It is a ridiculous thing to pronounce as truth when there are so many other...
  14. A

    Asking for testing... UPDATE in first post

    Asking for testing... Your doctor is locked into old school thinking.... of course many people gain in height and may not necessarily gain in weight -- you are still talking about a relatively short period of time. It is a ridiculous thing to pronounce as truth when there are so many other...
  15. A

    Asking for testing... UPDATE in first post

    Asking for testing... Your doctor is locked into old school thinking.... of course many people gain in height and may not necessarily gain in weight -- you are still talking about a relatively short period of time. It is a ridiculous thing to pronounce as truth when there are so many other...
  16. A

    Should I ask for test

    Yes, one more weeks sounds much more reasonable... see how much you have accomplished :-) Miralax will help and many with CF do use it (I think more as a maintenance rather than to resolve a blockage, but I could be wrong about that) -- if it truly is a big CF blockage than, yes he will...
  17. A

    Should I ask for test

    Yes, one more weeks sounds much more reasonable... see how much you have accomplished :-) Miralax will help and many with CF do use it (I think more as a maintenance rather than to resolve a blockage, but I could be wrong about that) -- if it truly is a big CF blockage than, yes he will...
  18. A

    Should I ask for test

    Yes, one more weeks sounds much more reasonable... see how much you have accomplished :-) Miralax will help and many with CF do use it (I think more as a maintenance rather than to resolve a blockage, but I could be wrong about that) -- if it truly is a big CF blockage than, yes he will...
  19. A

    Should I ask for test

    Yes, one more weeks sounds much more reasonable... see how much you have accomplished :-) Miralax will help and many with CF do use it (I think more as a maintenance rather than to resolve a blockage, but I could be wrong about that) -- if it truly is a big CF blockage than, yes he will...
  20. A

    Should I ask for test

    Yes, one more weeks sounds much more reasonable... see how much you have accomplished :-) <br /> <br />Miralax will help and many with CF do use it (I think more as a maintenance rather than to resolve a blockage, but I could be wrong about that) -- if it truly is a big CF blockage than, yes he...
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