Cystic Fibrosis Forum (EXP)

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  1. M

    My daughter is scared, what do I tell her ?

    I have a 21 year old son with CF who has not been on antibiotics in over 10 years. We have made major lifestyle changes and taken a fascinating journey to get ourselves well. For us, the battle against CF is primarily mental and social. It is about giving up assumptions about how the world...
  2. M

    My daughter is scared, what do I tell her ?

    I have a 21 year old son with CF who has not been on antibiotics in over 10 years. We have made major lifestyle changes and taken a fascinating journey to get ourselves well. For us, the battle against CF is primarily mental and social. It is about giving up assumptions about how the world...
  3. M

    My daughter is scared, what do I tell her ?

    I have a 21 year old son with CF who has not been on antibiotics in over 10 years. We have made major lifestyle changes and taken a fascinating journey to get ourselves well. For us, the battle against CF is primarily mental and social. It is about giving up assumptions about how the world...
  4. M

    My daughter is scared, what do I tell her ?

    I have a 21 year old son with CF who has not been on antibiotics in over 10 years. We have made major lifestyle changes and taken a fascinating journey to get ourselves well. For us, the battle against CF is primarily mental and social. It is about giving up assumptions about how the world...
  5. M

    My daughter is scared, what do I tell her ?

    I have a 21 year old son with CF who has not been on antibiotics in over 10 years. We have made major lifestyle changes and taken a fascinating journey to get ourselves well. For us, the battle against CF is primarily mental and social. It is about giving up assumptions about how the world...
  6. M

    So Many Questions

    I don't really know what to say to help calm your nerves because when I was diagnosed (the month before I turned 36) it was just a tremendous relief to me to have an answer. Doctors began trying to reassure me but they obviously didn't really believe what they were saying. It was false...
  7. M

    So Many Questions

    I don't really know what to say to help calm your nerves because when I was diagnosed (the month before I turned 36) it was just a tremendous relief to me to have an answer. Doctors began trying to reassure me but they obviously didn't really believe what they were saying. It was false...
  8. M

    So Many Questions

    I don't really know what to say to help calm your nerves because when I was diagnosed (the month before I turned 36) it was just a tremendous relief to me to have an answer. Doctors began trying to reassure me but they obviously didn't really believe what they were saying. It was false...
  9. M

    So Many Questions

    I don't really know what to say to help calm your nerves because when I was diagnosed (the month before I turned 36) it was just a tremendous relief to me to have an answer. Doctors began trying to reassure me but they obviously didn't really believe what they were saying. It was false...
  10. M

    So Many Questions

    I don't really know what to say to help calm your nerves because when I was diagnosed (the month before I turned 36) it was just a tremendous relief to me to have an answer. Doctors began trying to reassure me but they obviously didn't really believe what they were saying. It was false...
  11. M

    Antacid use?

    I don't think most doctors talk about hyperacidification and how that relates to CF symptoms. Most people that I know who are addressing that in some fashion are seeing better results than you are supposed to with CF. But they typically do their own research. They don't typically hear this...
  12. M

    Antacid use?

    I don't think most doctors talk about hyperacidification and how that relates to CF symptoms. Most people that I know who are addressing that in some fashion are seeing better results than you are supposed to with CF. But they typically do their own research. They don't typically hear this...
  13. M

    Antacid use?

    I don't think most doctors talk about hyperacidification and how that relates to CF symptoms. Most people that I know who are addressing that in some fashion are seeing better results than you are supposed to with CF. But they typically do their own research. They don't typically hear this...
  14. M

    Antacid use?

    I don't think most doctors talk about hyperacidification and how that relates to CF symptoms. Most people that I know who are addressing that in some fashion are seeing better results than you are supposed to with CF. But they typically do their own research. They don't typically hear this...
  15. M

    Antacid use?

    I don't think most doctors talk about hyperacidification and how that relates to CF symptoms. Most people that I know who are addressing that in some fashion are seeing better results than you are supposed to with CF. But they typically do their own research. They don't typically hear this...
  16. M

    What Is Preventative Care?

    Keeping inflammation under control can reduce incidence of infection for pwcf. This is why some people do high dose ibuprofen, which is dangerous and I believe still experimental. I used to take ibuprofen daily. I did that for about 5 or 6 years. I also used to take a number of prescription...
  17. M

    What Is Preventative Care?

    Keeping inflammation under control can reduce incidence of infection for pwcf. This is why some people do high dose ibuprofen, which is dangerous and I believe still experimental. I used to take ibuprofen daily. I did that for about 5 or 6 years. I also used to take a number of prescription...
  18. M

    What Is Preventative Care?

    Keeping inflammation under control can reduce incidence of infection for pwcf. This is why some people do high dose ibuprofen, which is dangerous and I believe still experimental. I used to take ibuprofen daily. I did that for about 5 or 6 years. I also used to take a number of prescription...
  19. M

    What Is Preventative Care?

    Keeping inflammation under control can reduce incidence of infection for pwcf. This is why some people do high dose ibuprofen, which is dangerous and I believe still experimental. I used to take ibuprofen daily. I did that for about 5 or 6 years. I also used to take a number of prescription...
  20. M

    What Is Preventative Care?

    Keeping inflammation under control can reduce incidence of infection for pwcf. This is why some people do high dose ibuprofen, which is dangerous and I believe still experimental. I used to take ibuprofen daily. I did that for about 5 or 6 years. I also used to take a number of prescription...
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