Cystic Fibrosis Forum (EXP)

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    CFRD Levels

    I was diagnosed with CFRD May 2005 and orginally they wanted me to be under 120, 2 hours after eating. That is really hard to do so now they said 140, 2 hours after eating. They also want my fasting readings to be under 100. I think though it is different for everyone based on age etc. So, I...
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    POLL: Did your insurance cover the vest?

    Yes. I ordered it after I had reached my out of pocket, so it got covered at 100% Praise the Lord! Good luck with the expense!!! Jennifer 34 years old with Cf and CFRD
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    Waking up in the morning

    I am congested after my naps too. I think it is because we are laying down and all that mucus settles. Jennifer 34 years old with CF and CFRD
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    Adhesive Remover

    What about nail polish remover??? I am allergic to adhesive too! I get welts and it itches. I wonder if it is a CF thang<img src="i/expressions/face-icon-small-smile.gif" border="0"> Jennifer 34 years old with CF and CFRD
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    Waking up in the morning

    Yeah I wake up earlier than usual because I am coughing and then I fall back to sleep. When I do my AM meds I get alot of junk up and it is brown and gross. Then during the day it is dry to somewhat productive coughs but at night it is so hard to get anything up, nothing like how it is in the AM...
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    question for anyone who can help

    I have cultured that many of times. I go into the hospital once a year and I am given ceptazadime( sorry for misspelling), cefepime, and I use to ALWAYS get tobra but last hospital visit I was throwing up and running hight fevers from the tobra so we stopped it thru the IV and I inhaled TOBI...
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    Hypertonic Saline ????s

    Thanks for the advice Janet. I am sticking with it for the month I am supposed to be on it and then I am going to talk with my doctor. I guess my question is if you do not see it working short term, getting alot of junk up, is it working long term???? Thanks! Jennifer 34 years old with Cf...
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    For anyone but MyNewfy

    Hang in there and think positive!!!!! Visualize the drugs and the treatments healing you and making your mucus productive etc. Hope you feel better real soon!! Stay strong! Jennifer 34 years old with CF and CFRD
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    Hypertonic Saline ????s

    I have been on HS since June 1st and it makes me cough a little but not much and I do not get tons of mucus out! I am so bummed I am not experiencing what everyone else is. Do you all think being on HS will help in the long run to keep infections down or is it more of a short term thing...
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    ???'s about orthodontia/dental work

    I have cultured pseudo my whole life and I am 34 years old and had braces. I say if you have the money then yes. Jennifer 34 Years old with Cf and CFRD
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    Another interesting article

    I have drank apple juice my whole life I wonder if it has done anything. I am 34 years old and my PFT is 68% so that is pretty good for being as old as I am. I have heard that apples are REALLY good for you and fight off all kinds of stuff. I am going to try to eat more of them!!! A nice...
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    CF Fundraiser

    That is awesome your inlaws rally around CF! Way to go!!! Sorry I can not donate at this time, but I wish you the best of luck!!!!!! Nice website and pics Jennifer 34 years old with CF and CFRD
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    New compressor

    I have ordered compressors before too. Just get a script and order one from a covered medical supply company. Should not be a problem. Just make sure you know what your durable medical equipement coverage is on your insurance and you should be good to go!! Good luck! Jennifer 34 years old...
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    This changed her life

    I did do Mary Kay myself for awhile and I found it to be exhausting. Doing parties at night that took a few hours and then selling the makeup, just wore me out. Yes it is flexible but you are trying to build a business and that takes alot of time and effort. To make the real money is to build a...
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    How often do you get IV antibotics?

    Growing up my parents would not put me into the hospital until they did everything that they possibly can to get me better at home. So I would go weeks with coughing my head off, oral antibiotics etc. Now as an adult I have just started admitting myself in the Fall to get the "tune up" before...
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    People with CF ...

    That is such a nice story! I am sooo happy you found a guy with that kind of outlook!!! Yeah! Jennifer 34 years old with CF and CFRD
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    Hypertonic Saline

    I just started it June 1st. But I am not a child. HA HA Jennifer 34 Years old with CF and CFRD
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    Chip Plan

    Is there anyone on the Chip Plan??? I have insurance thru my husband and it is a group plan but I was wondering if I can get more coverage thru Chip or something like it too. Yes, my plan covers stuff but not 100% and as you all know it adds up! And now my insurance does not cover my doctor and...
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    Got a note to lower my hours..

    I do not have any great suggestions it is a really tricky situation. Although, I would hope after 7 years of being at your job they would be really understanding, but I find the dollar talks louder. I hope it works out for you! I noticed you are a real estate investor. My husband is a branch...
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    Working from Home Ideas

    Does anyone know of any legitimate work from home companies??? There are sooooo many on the internet and then there are sights you can look at to see what are scams. It is all very overwhelming. I would like to do something from home so I can keep up with my health at the same time. Any ideas...
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