This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
When I was a child I went to Childrens Memorial and then followed my CF doc out to Park Ridge at Lutheran General where he opened the Cf clinic at Lutheran General. I was the first CF patient at the clinic. That was when I was 7 and I am now 34 years old. I now see DR Stone who is the CF adult...
I do not feel well if I do not do my treatments and I have noticed this more as I have gotten older. So, for me there is no question about it. I also want to be strong and have my lungs in the best shape they can be so I can fight off colds etc. and when I do get sick I can get back to my...
When I go into the hospital the therapists use a hand held "thing" that they move along my back and sides. It vibrates and it fits in your hand. They said you can get it for home use. Maybe contact the CF Center you go to and see if you can talk to someone in respiratory and see what exactly it...
I do Tobi on 28 days and off 28days and I feel SOOOOOOO much better when I am on Tobi and wish I can be on it all the time, but I am not and I am scared I am going to become resistant!!! There is a study coming out that my doc wants me to participate in that you inhale Tobi in a powder form and...
Taking L-Lysine on a regular basis helps keep cold sores away. And if you do get it just up the pills to at least twice a day. You can also use Differin cream which works really good too! Gotta get an RX for that though. Good Luck
Jennifer 34yrs old with CF and CFRD
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.