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Nope sorry I dont have that one, but I have G542X mutation both of them the same. Also I thought Id help bump this back up for someone else that might not have seen this, and will help you out.

I do believe one day there will be a cure for CF, Im very positive about this, and cant wait for a cure so I dont have to do treatments anymore and be more normal. I also believe it will be soon too.

I can never cough anyting up, so I always have to have to get suctioned.

Yes, I hope someone will respond for an answer too!

Ive had a ct done on my lungs in '03 the first year to ever get a pick line. Yea I remember the die they gave me cause it felt like I had to pee and I got really warm. But havent had one since then.

<img src="i/expressions/face-icon-small-happy.gif" border="0"> Lets just say it went really well, doc was really pleased. I gained 1pd so now Im 124pds, my pfts went up again 3% now they are 85%, WOO HOO!!! Very excited about that, I was feeling that maybe they were going to drop this time...

Melissa, I think you need some alone time with Mr. Hubby LOL <img src="i/expressions/face-icon-small-wink.gif" border="0">

I do combivent 2puffs and advair 1 puff (inhalers), Then I inhale Pulmizyme, then my hypertonic saline and when Im on the ON month for Tobi I take that very last after the vest.

Hi I thought I would post and let you guys know that I updated some stuff on my blog about my cat, so youll have to look at my old blogs to see the update, I was hoping that when I updated it, it would show up as new again, but it didnt, so for those that would like to see what I updated and tto...

I have two fingers on each hand that shows the clubbing the most the rest you cant realy tell. Its my Index finger and my middle fingers, left a little worse then my right hand cause Im left handed.

Yes clubbing is where the nail bends down. Here is a picture of a persons hand with bad clubbing. <a target=_blank class=ftalternatingbarlinklarge href="http://www.lf2.cuni.cz/Projekty/interna/foto/003/pic00022.jpg">Clubbed Nails</a> and toes <a target=_blank class=ftalternatingbarlinklarge...

Thats another thing about my nails, is I always make sure that they look nice, like keeping them even and filed nicely, I allow my nails to get a medium length, because they dont look bad and also I get that from my mother seeing as her nails gets freaking long. They do draw attention to some...

I was just wondering how many of you guys with cf of course, look at your fingernails? The reason I ask is because I find myself looking at my nails every single day, it seems like, I always look to see if they look worse or not, although they always look the same, my nails arent that clubbed...

I do 7% and it takes me about 15 mins to use it all. Before I got my new neb machine it took alot longer like maybe 30min or so, it was annoying but with the new machine I get it done in a breeze. Toby takes just as long too 15 min and pulmo only 7 mins.

Im 5ft and 123pds

smoking Im totally against smoking and especially for someone that has a lung disease, its like they want to be on thier death bed. I dont even like it when people smoke period, it stinks and its over all disgusting.

cant help ya out but diffanatley let us know how its doing

well I do both exercise (walk) and the vest. but honestly havent been excersising lately.

Keil have you watched the video yet?

1. Yes your throat does get use to it 2. I dont feel icky, but I do feel the mucous moving around in my chest and after maybe 10 mins its gone 3. Yes once you get use to HS then you will be able to take in deep breaths 4. Im on Tobi and I dont alternate them at all, I do the HS even when Im...