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ill chit chat with ya

Hope your kidneys get better, I dont have any advice though.

Bring on the pictures and details, glad your back too!!!

I do the sinus rinse and flonase and when my nose is dry I use ocean spray stuff. I clear my throat too, but its not that bad to where I have to take somehting for it, if anything Ill just rinse my nose with the sinus rinse stuff. I love that stuff.

Ok I found the video, here it is, the video is "Total Lung Care feel the difference TLC makes" . Watch it and in the middle or towards the end is where they say not to substitute CPT for exercise. Here it is a link to the site..... <a target=_blank class=ftalternatingbarlinklarge...

Well for one I do the vest, I have the flutter but dont really use it, but doing cpt would help a lot too!!! I think I posted a video on here a long time ago and it said something about cpt and exercise, I can find it for you so you can have proof!

What will the next phase consist of, if it goes through next year?

I know I posted earlier, but I never got the chance to tell ya how my health is... My pfts is 82% right now, last hospitalization was 2nd grade do to something with my ankle (non cf), picc line in 03 and 04 and that is it. I feel great, somedays my chest feels funny but I think it's because of...

Every time I go I have to get suctioned because I can't cough anything up.

I have two non sense mutations, they are the same G542X. Their is a study I think it is something like Ptc124 Something like that, you can find a search on here and find it.

Out of the 70 so people that has looked at this, you would think that at least ONE of them would have known something.

If your in the car you can buy a device that you plug into your cigerette lighter and at the end of it has a plug in, so you can use the neb machine in the car. Probably won't help you though, seeing as you would need inside the building.

Sorry I can't help you out there. Never applied for SSDI, that Im aware of. Hopefully someone on here can tho.

I had read that your not suppose to substitute excercise for CPT. Your suppose to always do CPT, no matter how much excercise you get.

Yes it was very sad, believe or not, I actually cried over the little bird. I felt so sorry for it too. I had him for two days.

Well I watch tv or listen to my mp3 player. My neb machine and vest are in the bedroom. Sometimes I will move the neb machine in the computer room to get on the computer,, but since we sold our tv in the bedroom I ll drag it into the front room, I find it harder for me to do my vest now since...

SAD SAD News, little birdy just died, I don't understand why, he was doing fine and probably 5 mins ago he started acting wierd when we was going to feed him, in his new cage. He acted like he was sleeping and he stopped chirping and so we gave him some water which I know isnt good to do, but we...

A little update on little birdy, he has a new home in the backyard, my husband made a little fence in my flower bed, so the bird will be outside and have room to walk and try to learn to fly, safely, the only thing that can get him would be a snake. He no longer lives in the bathtub in a box...

Well, once my batteries charge for my digital camera, I'll take a picture of the cute little bird, for you guys to see and maybe someone might be able to tell me what kind of bird it might be.

Well I like using it, I use 7% and at first it made me cough but now Im used to it, but I still feel results. I can feel results imediatley after the use, cause I can feel the mucous and what not moving around, can never cough anything up but can tell its working. I ve always been that way with...