Cystic Fibrosis Forum (EXP)

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  1. M

    how long to wait?

    I say you already know from listening to your body that it is 'not right'. I dont have a set period of time, I listen to what my body is telling me. Normally antibiotics take about 3 days to 'kick in' a bit for me, if I continue to get worse after that I would definately go in. I look at it...
  2. M

    how long to wait?

    I say you already know from listening to your body that it is 'not right'. I dont have a set period of time, I listen to what my body is telling me. Normally antibiotics take about 3 days to 'kick in' a bit for me, if I continue to get worse after that I would definately go in. I look at it...
  3. M

    how long to wait?

    I say you already know from listening to your body that it is 'not right'. I dont have a set period of time, I listen to what my body is telling me. Normally antibiotics take about 3 days to 'kick in' a bit for me, if I continue to get worse after that I would definately go in. I look at it...
  4. M

    how long to wait?

    I say you already know from listening to your body that it is 'not right'. I dont have a set period of time, I listen to what my body is telling me. Normally antibiotics take about 3 days to 'kick in' a bit for me, if I continue to get worse after that I would definately go in. I look at it...
  5. M

    how long to wait?

    I say you already know from listening to your body that it is 'not right'. I dont have a set period of time, I listen to what my body is telling me. Normally antibiotics take about 3 days to 'kick in' a bit for me, if I continue to get worse after that I would definately go in. I look at it...
  6. M

    CF vs CF TRANSPLANT PATIENTS

    Jina-look at some of the companies and see if they have a low income provision or soemthing to help get them at lower cost. Or take out a loan and use it for the meds then pay back loan at tax season, just an idea. Previously when my husband and I had to pay 3000 up front for meds we would...
  7. M

    CF vs CF TRANSPLANT PATIENTS

    Jina-look at some of the companies and see if they have a low income provision or soemthing to help get them at lower cost. Or take out a loan and use it for the meds then pay back loan at tax season, just an idea. Previously when my husband and I had to pay 3000 up front for meds we would...
  8. M

    CF vs CF TRANSPLANT PATIENTS

    Jina-look at some of the companies and see if they have a low income provision or soemthing to help get them at lower cost. Or take out a loan and use it for the meds then pay back loan at tax season, just an idea. Previously when my husband and I had to pay 3000 up front for meds we would...
  9. M

    CF vs CF TRANSPLANT PATIENTS

    Jina-look at some of the companies and see if they have a low income provision or soemthing to help get them at lower cost. Or take out a loan and use it for the meds then pay back loan at tax season, just an idea. Previously when my husband and I had to pay 3000 up front for meds we would...
  10. M

    CF vs CF TRANSPLANT PATIENTS

    Jina-look at some of the companies and see if they have a low income provision or soemthing to help get them at lower cost. Or take out a loan and use it for the meds then pay back loan at tax season, just an idea. Previously when my husband and I had to pay 3000 up front for meds we would...
  11. M

    .

    didn't have my membranes stripped today Bonnie-thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">, thats really sweet. I still consider myself lucky in the scheme of things <img src="i/expressions/rose.gif" border="0"> and have learned to focus on the bright side of not being...
  12. M

    .

    didn't have my membranes stripped today Bonnie-thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">, thats really sweet. I still consider myself lucky in the scheme of things <img src="i/expressions/rose.gif" border="0"> and have learned to focus on the bright side of not being...
  13. M

    .

    didn't have my membranes stripped today Bonnie-thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">, thats really sweet. I still consider myself lucky in the scheme of things <img src="i/expressions/rose.gif" border="0"> and have learned to focus on the bright side of not being...
  14. M

    .

    didn't have my membranes stripped today Bonnie-thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">, thats really sweet. I still consider myself lucky in the scheme of things <img src="i/expressions/rose.gif" border="0"> and have learned to focus on the bright side of not being...
  15. M

    .

    didn't have my membranes stripped today Bonnie-thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">, thats really sweet. I still consider myself lucky in the scheme of things <img src="i/expressions/rose.gif" border="0"> and have learned to focus on the bright side of not being...
  16. M

    Now aspergillus is in the mix..

    I also have ABPA, have not cultured aspergillus, but I do test EXTREMELY allergic to it. When we found I had ABPA my IGE's were about 1400 if I remember right, I did a prednisone treatment for a # months. Past 4 years my ABPA has been in 'remission' so to speak with stable IGE's in the 3-500...
  17. M

    Now aspergillus is in the mix..

    I also have ABPA, have not cultured aspergillus, but I do test EXTREMELY allergic to it. When we found I had ABPA my IGE's were about 1400 if I remember right, I did a prednisone treatment for a # months. Past 4 years my ABPA has been in 'remission' so to speak with stable IGE's in the 3-500...
  18. M

    Now aspergillus is in the mix..

    I also have ABPA, have not cultured aspergillus, but I do test EXTREMELY allergic to it. When we found I had ABPA my IGE's were about 1400 if I remember right, I did a prednisone treatment for a # months. Past 4 years my ABPA has been in 'remission' so to speak with stable IGE's in the 3-500...
  19. M

    Now aspergillus is in the mix..

    I also have ABPA, have not cultured aspergillus, but I do test EXTREMELY allergic to it. When we found I had ABPA my IGE's were about 1400 if I remember right, I did a prednisone treatment for a # months. Past 4 years my ABPA has been in 'remission' so to speak with stable IGE's in the 3-500...
  20. M

    Now aspergillus is in the mix..

    I also have ABPA, have not cultured aspergillus, but I do test EXTREMELY allergic to it. When we found I had ABPA my IGE's were about 1400 if I remember right, I did a prednisone treatment for a # months. Past 4 years my ABPA has been in 'remission' so to speak with stable IGE's in the 3-500...
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