Cystic Fibrosis Forum (EXP)

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  1. A

    very confused w/ the vest

    Yes, I agree with Heather - it seems to be clinic specific and up to the doctors (and sometimes your insurance company) how hard you have to push to get a vest -- how it was explained to me is (from our doctor) that there is no clinical evidence to prove that one form of CPT is better than...
  2. A

    very confused w/ the vest

    Yes, I agree with Heather - it seems to be clinic specific and up to the doctors (and sometimes your insurance company) how hard you have to push to get a vest -- how it was explained to me is (from our doctor) that there is no clinical evidence to prove that one form of CPT is better than...
  3. A

    very confused w/ the vest

    Yes, I agree with Heather - it seems to be clinic specific and up to the doctors (and sometimes your insurance company) how hard you have to push to get a vest -- how it was explained to me is (from our doctor) that there is no clinical evidence to prove that one form of CPT is better than...
  4. A

    very confused w/ the vest

    Yes, I agree with Heather - it seems to be clinic specific and up to the doctors (and sometimes your insurance company) how hard you have to push to get a vest -- how it was explained to me is (from our doctor) that there is no clinical evidence to prove that one form of CPT is better than...
  5. A

    very confused w/ the vest

    Yes, I agree with Heather - it seems to be clinic specific and up to the doctors (and sometimes your insurance company) how hard you have to push to get a vest -- how it was explained to me is (from our doctor) that there is no clinical evidence to prove that one form of CPT is better than...
  6. A

    To be or not to be...

    I don't have much new to add from the other posters - and I am also confused as to why they would bounce you back and forth -- BUT I have a hunch that the first one you did was inaccurate for whatever reason. But I'd be willing to bet the wheels will start turning now with a sweat test of 53 --...
  7. A

    To be or not to be...

    I don't have much new to add from the other posters - and I am also confused as to why they would bounce you back and forth -- BUT I have a hunch that the first one you did was inaccurate for whatever reason. But I'd be willing to bet the wheels will start turning now with a sweat test of 53 --...
  8. A

    To be or not to be...

    I don't have much new to add from the other posters - and I am also confused as to why they would bounce you back and forth -- BUT I have a hunch that the first one you did was inaccurate for whatever reason. But I'd be willing to bet the wheels will start turning now with a sweat test of 53 --...
  9. A

    To be or not to be...

    I don't have much new to add from the other posters - and I am also confused as to why they would bounce you back and forth -- BUT I have a hunch that the first one you did was inaccurate for whatever reason. But I'd be willing to bet the wheels will start turning now with a sweat test of 53 --...
  10. A

    To be or not to be...

    I don't have much new to add from the other posters - and I am also confused as to why they would bounce you back and forth -- BUT I have a hunch that the first one you did was inaccurate for whatever reason. But I'd be willing to bet the wheels will start turning now with a sweat test of 53 --...
  11. A

    Keeping Pulmozyme cold

    something similar happened to us and I called the pharmacy - the manufacturer does state 24 hours at room temp is ok, so as long as you were under 24 hours you should be just fine. On another occasion, the mail order pharmacy did not correctly package the pulmozyme and I was concerned it had...
  12. A

    Keeping Pulmozyme cold

    something similar happened to us and I called the pharmacy - the manufacturer does state 24 hours at room temp is ok, so as long as you were under 24 hours you should be just fine. On another occasion, the mail order pharmacy did not correctly package the pulmozyme and I was concerned it had...
  13. A

    Keeping Pulmozyme cold

    something similar happened to us and I called the pharmacy - the manufacturer does state 24 hours at room temp is ok, so as long as you were under 24 hours you should be just fine. On another occasion, the mail order pharmacy did not correctly package the pulmozyme and I was concerned it had...
  14. A

    Keeping Pulmozyme cold

    something similar happened to us and I called the pharmacy - the manufacturer does state 24 hours at room temp is ok, so as long as you were under 24 hours you should be just fine. On another occasion, the mail order pharmacy did not correctly package the pulmozyme and I was concerned it had...
  15. A

    Keeping Pulmozyme cold

    something similar happened to us and I called the pharmacy - the manufacturer does state 24 hours at room temp is ok, so as long as you were under 24 hours you should be just fine. On another occasion, the mail order pharmacy did not correctly package the pulmozyme and I was concerned it had...
  16. A

    Pseudomonas?

    With regard to the pseudomonas - <b>You did not do anything wrong</b>! Yes it is pretty common even at a young age - no it's not always an indicator of how severe her case might be - it is possible she will clear it after treatment and not see it again for many many years. It's also possible she...
  17. A

    Pseudomonas?

    With regard to the pseudomonas - <b>You did not do anything wrong</b>! Yes it is pretty common even at a young age - no it's not always an indicator of how severe her case might be - it is possible she will clear it after treatment and not see it again for many many years. It's also possible she...
  18. A

    Pseudomonas?

    With regard to the pseudomonas - <b>You did not do anything wrong</b>! Yes it is pretty common even at a young age - no it's not always an indicator of how severe her case might be - it is possible she will clear it after treatment and not see it again for many many years. It's also possible she...
  19. A

    Pseudomonas?

    With regard to the pseudomonas - <b>You did not do anything wrong</b>! Yes it is pretty common even at a young age - no it's not always an indicator of how severe her case might be - it is possible she will clear it after treatment and not see it again for many many years. It's also possible she...
  20. A

    Pseudomonas?

    With regard to the pseudomonas - <b>You did not do anything wrong</b>! Yes it is pretty common even at a young age - no it's not always an indicator of how severe her case might be - it is possible she will clear it after treatment and not see it again for many many years. It's also possible she...
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