Cystic Fibrosis Forum (EXP)

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  1. A

    5 yo son had 1st sweat test of 89

    I'm sorry you are having a difficult time - I know it's not a very good feeling to get a positive diagnosis for CF, but the good news is, at least you know how to proceed with the correct treatments now. You may also not have any permanent lung damage yet - (unless you have already been told...
  2. A

    5 yo son had 1st sweat test of 89

    I'm sorry you are having a difficult time - I know it's not a very good feeling to get a positive diagnosis for CF, but the good news is, at least you know how to proceed with the correct treatments now. You may also not have any permanent lung damage yet - (unless you have already been told...
  3. A

    5 yo son had 1st sweat test of 89

    I'm sorry you are having a difficult time - I know it's not a very good feeling to get a positive diagnosis for CF, but the good news is, at least you know how to proceed with the correct treatments now. You may also not have any permanent lung damage yet - (unless you have already been told...
  4. A

    5 yo son had 1st sweat test of 89

    I'm sorry you are having a difficult time - I know it's not a very good feeling to get a positive diagnosis for CF, but the good news is, at least you know how to proceed with the correct treatments now. You may also not have any permanent lung damage yet - (unless you have already been told...
  5. A

    5 yo son had 1st sweat test of 89

    I'm sorry you are having a difficult time - I know it's not a very good feeling to get a positive diagnosis for CF, but the good news is, at least you know how to proceed with the correct treatments now. You may also not have any permanent lung damage yet - (unless you have already been told...
  6. A

    Cf dx w/ "normal" sweat test

    Cf dx w/ "normal Jada, My kids have the same genes as your boys - we also held off on an official CF diagnosis for a while - when there are little to no symptoms it seems the best course of action. The good news is you now know what to look out for down the road should their condition/symptoms...
  7. A

    Cf dx w/ "normal" sweat test

    Cf dx w/ "normal Jada, My kids have the same genes as your boys - we also held off on an official CF diagnosis for a while - when there are little to no symptoms it seems the best course of action. The good news is you now know what to look out for down the road should their condition/symptoms...
  8. A

    Cf dx w/ "normal" sweat test

    Cf dx w/ "normal Jada, My kids have the same genes as your boys - we also held off on an official CF diagnosis for a while - when there are little to no symptoms it seems the best course of action. The good news is you now know what to look out for down the road should their condition/symptoms...
  9. A

    Cf dx w/ "normal" sweat test

    Cf dx w/ "normal Jada, My kids have the same genes as your boys - we also held off on an official CF diagnosis for a while - when there are little to no symptoms it seems the best course of action. The good news is you now know what to look out for down the road should their condition/symptoms...
  10. A

    Cf dx w/ "normal" sweat test

    Cf dx w/ "normal Jada, My kids have the same genes as your boys - we also held off on an official CF diagnosis for a while - when there are little to no symptoms it seems the best course of action. The good news is you now know what to look out for down the road should their condition/symptoms...
  11. A

    Nervous mother

    Please go read the other posts about sweat test results on the newly diagnosed boards - there is a lot of discussion there recently. Don't let the negative 97 mutations fool you -- they missed out on testing for the other 1,700 genes! (last numbers I read were 1,541 genes had now been...
  12. A

    Nervous mother

    Please go read the other posts about sweat test results on the newly diagnosed boards - there is a lot of discussion there recently. Don't let the negative 97 mutations fool you -- they missed out on testing for the other 1,700 genes! (last numbers I read were 1,541 genes had now been...
  13. A

    Nervous mother

    Please go read the other posts about sweat test results on the newly diagnosed boards - there is a lot of discussion there recently. Don't let the negative 97 mutations fool you -- they missed out on testing for the other 1,700 genes! (last numbers I read were 1,541 genes had now been...
  14. A

    Nervous mother

    Please go read the other posts about sweat test results on the newly diagnosed boards - there is a lot of discussion there recently. Don't let the negative 97 mutations fool you -- they missed out on testing for the other 1,700 genes! (last numbers I read were 1,541 genes had now been...
  15. A

    Nervous mother

    Please go read the other posts about sweat test results on the newly diagnosed boards - there is a lot of discussion there recently. Don't let the negative 97 mutations fool you -- they missed out on testing for the other 1,700 genes! (last numbers I read were 1,541 genes had now been...
  16. A

    son sweat test results are 33

    YES YES YES - stomp up and down and cause a scene if you need to <b>but insist on FULL GENETIC testing. </b>My daughters test is just below normal at 38, my son is just over normal at 41 (see my blog for full details) See this link - someone just asked in the family section asking how many...
  17. A

    son sweat test results are 33

    YES YES YES - stomp up and down and cause a scene if you need to <b>but insist on FULL GENETIC testing. </b>My daughters test is just below normal at 38, my son is just over normal at 41 (see my blog for full details) See this link - someone just asked in the family section asking how many...
  18. A

    son sweat test results are 33

    YES YES YES - stomp up and down and cause a scene if you need to <b>but insist on FULL GENETIC testing. </b>My daughters test is just below normal at 38, my son is just over normal at 41 (see my blog for full details) See this link - someone just asked in the family section asking how many...
  19. A

    son sweat test results are 33

    YES YES YES - stomp up and down and cause a scene if you need to <b>but insist on FULL GENETIC testing. </b>My daughters test is just below normal at 38, my son is just over normal at 41 (see my blog for full details) See this link - someone just asked in the family section asking how many...
  20. A

    son sweat test results are 33

    YES YES YES - stomp up and down and cause a scene if you need to <b>but insist on FULL GENETIC testing. </b>My daughters test is just below normal at 38, my son is just over normal at 41 (see my blog for full details) See this link - someone just asked in the family section asking how many...
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