Cystic Fibrosis Forum (EXP)

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  1. P

    CF moms

    Hey, Im not a mom or anything but I just thought that Id say that my husband has been tested to see if he was a carrier and he wasnt. One day hopefully I would like to have at least one kid. My husband is just waiting on his insurance to kick in and he is going to get life insurance on me that...
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    cf deal breakers

    well, one of my deal breakers is going into the hospital, I dont want to be there unless it is real bad like for instance a collapsed lung or something of that sort, other than that Ill take home ivs, or I should say picc lines, ugh I hate them tho, Ive only had to have two tho, so far. Anyhow...
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    chest pain?

    That does sound similar to what I mean ccflewallen, and it is very interesting to know that it could be the mucus plugs, that helps alot.
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    chest pain?

    Sometimes I get a pain that feels like it is "catching" and it does this when I take a deep breath, or sometimes when I breath normal, then all of a sudden it catches, it doesnt do that all the time and it doesnt last long at all. Does anyone know what Im talking about? and if so what have you...
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    "mild" form of the disease

    Ive been told that I have mild cf, and that my genes or I guess mutations, I think their the same thing, but any how, they are rare also. I also have psuedomonas, they are not doing anything right now, just chillin in my lungs, and I have some kind of rare bug. Doc says that Im so healthy he...
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    New to the board

    hey, welcome
  7. P

    Where's the pics?

    Nice pictures, you look good for your age, here is a couple pictures of me, one is a senior picture back in 2000 and a picture of my husband and I on a trip last year.
  8. P

    chest pain?

    Yea, my doc asks me every time I see him, If I have had any chest pain. But it seems like every time I tell him that I do, then he doesnt say anything about it, he just rights it down. No advice, medicine or anything, of course I never ask, I just figured if it was real important he would do...
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    chest pain?

    Does not very many people with cf get chest pain?
  10. P

    chest pain?

    what do you guys do when you have chest pain, and what does it feel like?
  11. P

    Guess What?

    Thanx guys, Ive had a very wonderful day today, besides the fact of having to take care of my husband but I didnt mind, it was still a good day. He sprang his ankle playing ball Sunday.
  12. P

    Guess What?

    Hey, today is my 25th birthday, yea. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/rose.gif" border="0">
  13. P

    Adult CF Clinics

    Mine has all the works also. dietiction, respitory therapist, psychologist, and a nurse, but when I go, All I want is the nurse and doc. the rest I dont feel like I need. Sometimes I see all of them and sometimes I just see the nurse and doc of course
  14. P

    My Bones Hurt!

    My left knee has been hurting me lately, I dont know if I done something to it while playing softball or what, but right now Ive been wrapping it, after I do physical stuff.
  15. P

    mutations

    Not sure what my mutation is but next time I go, Ill ask the doc. I do know that both are the same I believe.
  16. P

    a bit disturbing, have you ever coughed up this?

    Thats funny Luke
  17. P

    So what do we all look like?

    You should be able to go into the program your camera came with and change the size that way.
  18. P

    So what do we all look like?

    Hey here is a pic of my husband and I, if I can do this right
  19. P

    cure b4 2020

    That would be nice tho, imagine, the next time you go and see your cf doc. and he tells you that he is going to give you a shot that will cure your disease and you will never have to do treatments ever again. Man wouldnt that be a dream come true. I do believe someday somehow there will be a...
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    Question

    I use it sometimes
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