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Ive tried the flutter, but didnt care for that much, and my husband beats me on my back sometimes, when I ask him too and I also have a hand held vibrator that I have had since I was little. I dont know what other kinds there would be out there to use. But I think my fav, the one I think works...
Ok, I think you should do what you love to do and that is work in the ER, specially after you put in all that hard work in school to become what youve always wanted. It sounds like your doing good at keeping yourself healthy, as long as you keep that up and see your doc on a regular basis, I...
Thanks for your replys, I do my treatments everyday I dont miss any except for once in a blue moon Ill skip my second vest, but I do try and stay as active as possible, the only problem with me is I dont cough the mucus up. I get lose coughs where it sounds like im moving something in my lungs...
ok the first question is about pfts, how can you get them to be better or higher? I already take pulmozyme, Advair, and Combivent and 28\on 28\off of Tobi. so I was just wondering if there was any other way to get them higher.
Second question is how many poeple has had there lung collapse...
RE: laughter - the best medicine - and it might help clean out your lungs while you're at it!
I have a funny one, When my husband and I were dating, (we were at the stage where we were pretty confortable around each other). I was at his house at the time and was sitting on his bed, when all of...
Ive been at my work for 5 years and Ive only told those who I thought should know. My husband I told when we started seeing each other a lot. I felt that if we were going to go further in our ralationship, then I should let him know about my diseae, that way if he wanted he could of left me...
Ive been at my work for 5 years and Ive only told those who I thought should know. My husband I told when we started seeing each other a lot. I felt that if we were going to go further in our ralationship, then I should let him know about my diseae, that way if he wanted he could of left me...
Ive never experienced anything like that, and it looks like we take the same treatment excpet I do the vest and Tobi(not Acapella and Collistin, that is coly mycin, right?) If it is coly mycin, I didnt get along very well with it, it made me short of breath and I didnt like that very well, so...
Thanks for your replys and I went to the site. From browsing through it, it looks like it will be very helpful. I have another question. Did your health decline, stay the same, or get better during and after pregnancy, besides not getting enough rest after pregnancy. I also know that it is...
How many women
Ok, Im 24 going on 25 and one day I would like to have children and I was wondering how many of you women w/cf have had a child and what was it like and also would you have any advice?
I think it could be a combination of all three, because I do take Tobi and Pulmozyme. My voice is scratchy right now and I start Tobi back up tomorrow. I think coughing hard does it too. I wouldnt be so conserned if people would stop asking me if Im sick or have a cold or something or they...
I get that a lot too, people asking me if Im sick and Im really not. When I first started my job the publisher used to always ask if I had a cold and of course I didnt. But now after working there for 4 years he doesnt ask that anymore, maybe he is just used to it I guess. Once in a while some...
I agree with diane, I was the same way, I have mild cf and the treatments and such that they would have me try I thought was point less and I wouldnt do them hardly at all or not at all. Then Last year I woke up and realized that I better take better care of myself and do my treatments that the...
I dont get a lot of comments from strangers about trading weight. It doesnt really bother me, besides the only people i eat around is basically my family and they all know why I eat so much. But the one thing that really bothers me is when an aunt or great aunt or other relatives in that case...
Hey,
Im on Tobi, well Im off of it right now, Ill be starting back on it next monday. Im 28 days on and 28 days off. I enjoy the 28 days off. I have no problems with it except for the occasional ringing in the ears. I've been on Tobi for a good year and a half now. My doctor first had me...
Hey, My doc put me on Zosyn my first time to have I.V.'s and on the 2 week of it, I started getting these real bad headaches. Then I called my nurse and she told me to stop taking it and to just do the other medicine (I forgot what the other iv med was). After stopping Zosyn my headaches were...
Hi, I have psuedomonas I have had it for awhile and not only does it grow in hot tubs but my doc or respitory therapist one of them said it is also on water fountains, faucets anywhere there is water. so what I do is when I turn the water on I let it run a little bit before using it or drinking...
Hi ,Im new to the forums, Im 24 years old and have cystic fibrosis, Im also married, been married for 3 years now. I have a sister and a brother, Im the oldest and the only one with CF. My condition is mild.
Princessjdc
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