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So regulations apparently say that I must wear a mask in the cf clinic and anyone who's in contact with me must wear a full gown, mask, and gloves. Like I have the worlds first zombie plague lol its actually very depressing. Anyone else feel the same way? New regulations btw

I told my cf doctors I use it, and they seem... Disappointed. i don't smoke it. I vaporise it or I eat it through food. Whats your thoughts and opinions about it? After they found out they even began to treat me differently. It's depressing

I'm sad and confused. How does this happen?? Last time I got my PFT was from my general doctor using some fancy handheld one I got 111% , and now at my CF clinic with their bulky computer and special nose plug and what not I scored 94%. It's depressing and confusing. explaon this to me please...

Cause I've seen that a lot of CFers do that, but I don't. I don't cough up anything. why is that? My pft is 111% btw

which is easier for those who have CF?

So I really feel that its different for me... some how. Its harder for me to make muscular gains. I eat a ton of calories (well, I sorta THINK I do lol), I workout 4-5x a week lifting weights. i've been weighing myself every few days, and it ends up i haven't gained any weight which is a...

I have cf and wondered this, do i have a hard time digesting protein AND fat or just fat? f

So its common in those with CF. If you have those issues, how much is caused by CF? I think 50% of it is caused by CF indirectly. For example, I would be able to gain muscle easier, I wouldn't have been late entering puberty in MS/HS, I wouldn't be using the bathroom so much and I would probably...

So I haven't seen my CF doctors in a full year (a little longer actually). And in that year, a lot happened. About a year ago (a little less), I went through a phase where I smoked cigs. I smoked about a pack every 1-2 weeks, or around 2-3 cigs a day. I know it was stupid. I also smoked...

So first off, would I benefit from it? I have two Delta F508 mutations. Would my insurance hate me for life and try to drop me if I asked for it and my doctor agreed? Who should I ask, my general doctor or my pulmonologist? Last time I had an FEV of 106%, I just got lung X-rays and they...

So I have stayed quiet long enough about having CF. My employer has taken advantage of me, so now, its my turn to get what I deserve. But how do I go about doing this? I was reading on the CFF.org website about CF in the workplace, and how employers MUST accommodate those with disabilities, IE...

Ill ways breathe with my mouth. But they say you should breath in through your nose and exhale through mouth. Why is that and does that lead to stronger lungs ?

Will it make my lungs even stronger if I use the elleptical and the elevation mask I have?

I hate running cause it hurts my knees. Are ellipticals just as good for the lungs as running? How do you know if you're pushing yourself too much or too little? So swimming is a staple for my cf Drs. But I hate swimming "competitively" how should you swim to get the lung benefits?

So it basically cuts off some oxygen by some plastic parts. its a mask you wear to simulate elevation training.

So obviously that part is dead. But what exactly is it? Is it an accumulation of mucous which then hardens?

I got chest x rays and the tech let me see. I noticed more lung scarring, although, I was a tad confused with everything because it didn't look a whole like my last chest X-ray. But from what I saw, I had a lot more lung scarring. What does this mean? What do I need to do to prevent further...

To those of you who don't know what Cystic Fibrosis is, here's the definition from the CDC: "Cystic fibrosis (CF) is a chronic, progressive, and frequently fatal genetic (inherited) disease of the body’s mucus glands. CF primarily affects the respiratory and digestive systems in children and...

this is a terrible question, but i was curious to know what its like to die with CF. what does it feel like? is it a peaceful death? i have cf btw

So when someone asks me, 'What's CF?'. I really don't know how to explain it. I just say 'It's like a combination of Asthma and Diabetes but 20x more serious'. or anything similar to that. How do you explain CF? I hate when people just brush off CF like its not big deal. When in reality, CF is...