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Are you in the Richmond VA area? Saturday, March 28 at 4 pm, Children's Hospital of Richmond is hosting a great CF Family Education event with Michael Boyle speaking (he did the NACFC keynote last fall, fabulous) and me AND my teenage son talking about parenting kids with CF. I hope to see you...

Are you in the Richmond VA area? Saturday, March 28 at 4 pm, Children's Hospital of Richmond is hosting a great CF Family Education event with Michael Boyle speaking (he did the NACFC keynote last fall, fabulous) and me AND my teenage son talking about parenting kids with CF. I hope to see you...

REGISTER NOW FOR NEW TELECLASS: Winning with CF: Tools, Tips, and Tacticsfor Raising Healthier Kids™ Dear Parents and Guardians ofKids with CF, Wouldn't it be nice to knowabout the parenting potholes in the road of life with cystic fibrosis so youcan avoid them? A new parentingteleclass (by...

REGISTER NOW FOR NEW TELECLASS: Winning with CF: Tools, Tips, and Tactics for Raising Healthier Kids™ Dear Parents and Guardians of Kids with CF, Wouldn't it be nice to know about the parenting potholes in the road of life with cystic fibrosis so you can avoid them? A new parenting teleclass...

REGISTER NOW FOR NEW TELECLASS: Winning with CF: Tools, Tips, and Tactics for Raising Healthier Kids™ Dear Parents and Guardians ofKids with CF, Wouldn't it be nice to knowabout the parenting potholes in the road of life with cystic fibrosis so youcan avoid them? A new parentingteleclass (by...

Hi All! I am starting to spread the word about my upcoming parenting teleclass (by phone on Sunday evenings) for CFparents. Registration is open and the start date is Feb 23. Some of you herehave attended so you know how much it helps with ourkiddos! Here's a link with info...

Hi All! I am starting to spread the wordabout my upcoming parenting teleclass (by phone on Sunday evenings) for CF parents. Some of you here have attended so you know how much it helps with our kiddos! Here's a link with info: www.WinningWithCF.com. I'll post moreinfo below. REGISTER NOW FOR...

Please help with research for creating a "Newly Diagnosed" class. Thanks. :-) Hi All, I am the mom of two with CF (ages 14 and 12). I have been pretty active here in the past but have been terribly busy lately with kids, college, and work. I am working on my master's degree in family...

Please help with research for creating a "Newly Diagnosed" class. Thanks. :-) Hi All, I am the mom of two with CF (ages 14 and 12). I have been pretty active here in the past but have been terribly busy lately with kids, college, and work. I am working on my master's degree in family...

Working on a paper about CF and transition for my Master's degree, I stumbled on this quote (from Hewer and Tyrell) that I thought interesting about infants born recently with CF having a mean survival of greater than 50 years. That sounds so much better than "median survival of 37". And that...

Hi All! I am starting to spread the word about my upcoming teleclass (by phone) for CF parents starting on February 3. Some of you here have attended (and can audit for free) so you know how much it helps with our kiddos! There are a limited number of scholarships available so register early for...

Hi All! I am starting to spread the word about my upcoming teleclass (by phone) for CF parents on February 3. Some of you here have attended (and can audit for free) so you know how much it helps with our kiddos! There are a limited number of scholarships available so register early for that...

Hi All! I am starting to spreadthe word about my upcoming teleclass (by phone) for CF parents starting on February 3. Some of you here have attended (and can audit for free) so you know how much it helps with our kiddos! There are a limited number of scholarships available so register early for...

Hi All, I have scheduled my annual "Winning with CF" teleclass for Febuary, 2013 and wanted you to know about it. This will be my fifth year teaching it! This is a six week, 2 hour teleclass for parents/ guardians of children of all ages with cystic fibrosis. You will learn techniques that: -...

Hi All, I have scheduled my annual "Winning with CF" teleclass for Febuary, 2013 and wanted you to know about it. This will be my fifth year teaching it! This is a six week, 2 hour teleclass for parents/ guardians of children of all ages with cystic fibrosis. You will learn techniques that: -...

It's that time of year again- back to school. And with it comes an air of excitement, anticipation and, for parents, some stress and worry. "Will my child like his or her teachers?" "Will he or she get along with the other kids?" "Will my child do well this year?" And, for those of us with...

Here is something new and interesting from the CFF: To help keep the CF community informed about CF clinical trials, the Foundation recently launched a new online tool that generates an email alert whenever new CF clinical trials and trial results are posted. Please share this news with your...

Here is something new and interesting from the CFF: To help keep the CF community informed about CF clinical trials, the Foundation recently launched a new online tool that generates an email alert whenever new CF clinical trials and trial results are posted. Please share this news with your...

Here is an announcement from Digestive Care about finally getting FDA approval for their enzymes. For some people with CF,these are the only ones that work so it's been hard on alot of people over the last 2 years. Here's the announcement: I am pleased to inform you that Digestive Care, Inc...

Here is an announcement from Digestive Care about finally getting FDA approval for their enzymes. For some kids (and adults), these are the only ones that work. Here's the announcement: I am pleased to inform you that Digestive Care, Inc. just received FDA approval for our pancreatic enzyme...