Cystic Fibrosis Forum (EXP)

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  1. 3

    Fundraising idea for kids

    Rebecca, We are in the process of doing this same fundraiser at my kids school. The M&M's are sitting in my living room as we speak. 600 tubes in all. I am not sure where you live, but if you have a BJ's Brewery nearby they will match up to $2,000 what the school collects, plus donate $1,000...
  2. 3

    Fundraising idea for kids

    Rebecca, We are in the process of doing this same fundraiser at my kids school. The M&M's are sitting in my living room as we speak. 600 tubes in all. I am not sure where you live, but if you have a BJ's Brewery nearby they will match up to $2,000 what the school collects, plus donate $1,000...
  3. 3

    Fundraising idea for kids

    Rebecca, We are in the process of doing this same fundraiser at my kids school. The M&M's are sitting in my living room as we speak. 600 tubes in all. I am not sure where you live, but if you have a BJ's Brewery nearby they will match up to $2,000 what the school collects, plus donate $1,000...
  4. 3

    We are 6 months

    They are so cute. It brings me back to when my kids were that age. The first year is all a blur to me, we were so busy. Good luck and enjoy, they grow up so fast.
  5. 3

    We are 6 months

    They are so cute. It brings me back to when my kids were that age. The first year is all a blur to me, we were so busy. Good luck and enjoy, they grow up so fast.
  6. 3

    We are 6 months

    They are so cute. It brings me back to when my kids were that age. The first year is all a blur to me, we were so busy. Good luck and enjoy, they grow up so fast.
  7. 3

    To G Tube or not?

    Thanks for all of the input, it is so nice to hear from others who have gone through similar sitauations. I am in aggreeance with Jodyand Karon, I think negative statements about g tubes disfiguring our children is a little harsh. We are all out to do what is best for our children, none of us...
  8. 3

    To G Tube or not?

    Thanks for all of the input, it is so nice to hear from others who have gone through similar sitauations. I am in aggreeance with Jodyand Karon, I think negative statements about g tubes disfiguring our children is a little harsh. We are all out to do what is best for our children, none of us...
  9. 3

    To G Tube or not?

    Thanks for all of the input, it is so nice to hear from others who have gone through similar sitauations. I am in aggreeance with Jodyand Karon, I think negative statements about g tubes disfiguring our children is a little harsh. We are all out to do what is best for our children, none of us...
  10. 3

    Disneyland Question

    Hi, We went to Disneyworld last August and we were miserable. It was so hot and humid. My kids only lasted a few hours at the park before they were ready to go. I would suggest going when they first open, maybe heading back to the hotel midday and then returning in the evening. Good luck...
  11. 3

    Disneyland Question

    Hi, We went to Disneyworld last August and we were miserable. It was so hot and humid. My kids only lasted a few hours at the park before they were ready to go. I would suggest going when they first open, maybe heading back to the hotel midday and then returning in the evening. Good luck...
  12. 3

    Disneyland Question

    Hi, We went to Disneyworld last August and we were miserable. It was so hot and humid. My kids only lasted a few hours at the park before they were ready to go. I would suggest going when they first open, maybe heading back to the hotel midday and then returning in the evening. Good luck...
  13. 3

    need a shoulder......

    I can feel where you are coming from, sometimes it can get to even the best of us. We are in the same situation right now with the g tubes. The doctors are pushing for two of my kids to get them. I know in my heart it is the right thing, but it kills me to have to add one more thing to their...
  14. 3

    need a shoulder......

    I can feel where you are coming from, sometimes it can get to even the best of us. We are in the same situation right now with the g tubes. The doctors are pushing for two of my kids to get them. I know in my heart it is the right thing, but it kills me to have to add one more thing to their...
  15. 3

    need a shoulder......

    I can feel where you are coming from, sometimes it can get to even the best of us. We are in the same situation right now with the g tubes. The doctors are pushing for two of my kids to get them. I know in my heart it is the right thing, but it kills me to have to add one more thing to their...
  16. 3

    To G Tube or not?

    Hi, It has been a long while since I've been on this site. Life is so busy. Anyways, I was hoping to get some input on G tubes, from anyone that has had them or has children that have had them. Our doctor is pushing for two of our kids to get them. The are at the 3rd percentile for weight...
  17. 3

    To G Tube or not?

    Hi, It has been a long while since I've been on this site. Life is so busy. Anyways, I was hoping to get some input on G tubes, from anyone that has had them or has children that have had them. Our doctor is pushing for two of our kids to get them. The are at the 3rd percentile for weight...
  18. 3

    To G Tube or not?

    Hi, It has been a long while since I've been on this site. Life is so busy. Anyways, I was hoping to get some input on G tubes, from anyone that has had them or has children that have had them. Our doctor is pushing for two of our kids to get them. The are at the 3rd percentile for weight...
  19. 3

    PKU test inconclusive

    My daughter's first PKU test came back positive, was retested and came out negative. I was also stressed thinking I can't handle both. Luckily, we didn't have to. Hopefully yours will come out the same. Good Luck
  20. 3

    Update on Julie and her babies...

    I just read that Julie is in the hospital. I have been so busy lately, and haven't even turned on the computer. I remember when I was hospitalized with mine, they told me for 24 hours and it turned into 12 weeks. Wish her luck and I hope all goes well. They seem to be at good weights which...
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