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I'm 4 months post and take 20mg once a day

I use a combination of things. My favorite method is the dishwasher just cuz its easy and doesn't require any extra work, since I wash other things in it too. I have a container with a lid that holds all my nebs, I got if from the cf pharmacy but you can buy one at a store too, it is just the...

I would definitely go forward with getting your wish now. I was around 14 I think when I got my wish granted, and I was not in that bad of a condition. Looking back it was probably the perfect time because I was able to enjoy it without having the health issues that would get in the way now...

I have talk with disabilities about the mail issue and they are willing to make it so I can get deliveries right to my dorm room, but I need a doctors note to do this. My mom and I were working on this at the beginning of the semester we contacted my doc a few times and they never got back to...

I have recently moved to Phoenix, Az for college and am having a terrible time getting my meds. My insurance has also changed which is making it even harder. At home I used the cf pharmacy, which was great. It it hard to use here though because my college is very slow on getting mail to us...

I am not really sure how climate effects CF. I live in colorado so it is dry and a high altitude. I really like it because I can go most places in the country without having a problem, higher altitudes aren't that much higher so I adjust quickly(24hrs). I do find it easier to breath at a...

Hi guys, I am trying to figure out what I want to do with my life (career wise). I have been thinking about going into something in the medical field and most recently have though about becoming a doctor. I am wondering if there is anyone out there who is a doctor and has CF. Is this even possible?

Hi, I got my g-tube when I was 13 and I am now 20. I think mine was placed through an endoscopy procedure but they still have to make an insicion on you stomach. A major down side to getting it placed was that it hurt A LOT!!! I don't think I got out of the hospital bed for at least 4 or 5...

Hi, I got my g-tube when I was 13 and I am now 20. I think mine was placed through an endoscopy procedure but they still have to make an insicion on you stomach. A major down side to getting it placed was that it hurt A LOT!!! I don't think I got out of the hospital bed for at least 4 or 5...

Hi Rubie, If you are still looking for someone to talk with feel free to e-mail me it is annabananaarb@yahoo.com. Put something about CF in the title so I know not to delete it!

Hi Rubie, If you are still looking for someone to talk with feel free to e-mail me it is annabananaarb@yahoo.com. Put something about CF in the title so I know not to delete it!

I had first thought that maybe my sugar was high, because it is not the same hot feeling as when my sugar is low, and I am not hungry at all which is the case when my sugar is low. Anyway I checked my sugar and it was only 139 which for me is good.

I had first thought that maybe my sugar was high, because it is not the same hot feeling as when my sugar is low, and I am not hungry at all which is the case when my sugar is low. Anyway I checked my sugar and it was only 139 which for me is good.

I recently started doing g-tube feeds overnight. I have had my tube for 7 years but I always hated being hooked up to things at night so I did bolts feeds during the day. About a month ago I decided to try overnight feeds again since it was starting to get really hard for me to get my cans in...

I recently started doing g-tube feeds overnight. I have had my tube for 7 years but I always hated being hooked up to things at night so I did bolts feeds during the day. About a month ago I decided to try overnight feeds again since it was starting to get really hard for me to get my cans in...

Hi, I think I have had a similar problem. You described your shortness of breath as being like a corset. Does it feel like you are being squeezed making it impossible to take a full breath in? If so I too have this problem though mine is not all the time. I am curious if you have tried any...

Hi, I think I have had a similar problem. You described your shortness of breath as being like a corset. Does it feel like you are being squeezed making it impossible to take a full breath in? If so I too have this problem though mine is not all the time. I am curious if you have tried any...

I have n1303k as well as delta f508. I sort of have cfrd. When I was given the glucose intolerance test my doc said I had the highest numbers he had ever seen ( high=a glucose problem) but when checking my sugars at home they are in a good range. I do however usually end up on insulin every...

I have n1303k as well as delta f508. I sort of have cfrd. When I was given the glucose intolerance test my doc said I had the highest numbers he had ever seen ( high=a glucose problem) but when checking my sugars at home they are in a good range. I do however usually end up on insulin every...

I would say there is a part of me that sees having cf as somewhat good. I'm not sure if I would say blessed, well I guess blessed could work. Having to confront that fact that I might die in the near future has really taught me a lot about life, which I am glad about, it allows me to enjoy...