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A

AnD

New member
health baseline- first visit at CF clinic

Firstly...Goodness, you have a lot of life changing things happening right now!

There should be a doctor on call for anytime you are sick or are having symptoms that are worrisome. We did manual percussion during my pregnancy, as it was easier (I didn't have the accapella, but did have the flutter, which I used in the shower, usually, if I was feeling congested, and I didn't know about the short "chest vest"- as opposed to the full vest).

I used my Xopenex (refined Albuterol) and Pulmozyme during my pregnancy. I also developed gestational diabetes, so my excercise was simply getting through the day (it made me very, very tired if it got out of whack- that was my first symptoms of it- short of breath and tired).

If you need extra calories, there are lots of good tips in the nutrition section and the pregnancy section- you might just want to read through and see what appeals to you <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

You will probably want to make a list of every question you can think of, and take it to your appointment. That way you won't forget any when you get there...

I hope this helps a little...
 
A

AnD

New member
health baseline- first visit at CF clinic

Firstly...Goodness, you have a lot of life changing things happening right now!

There should be a doctor on call for anytime you are sick or are having symptoms that are worrisome. We did manual percussion during my pregnancy, as it was easier (I didn't have the accapella, but did have the flutter, which I used in the shower, usually, if I was feeling congested, and I didn't know about the short "chest vest"- as opposed to the full vest).

I used my Xopenex (refined Albuterol) and Pulmozyme during my pregnancy. I also developed gestational diabetes, so my excercise was simply getting through the day (it made me very, very tired if it got out of whack- that was my first symptoms of it- short of breath and tired).

If you need extra calories, there are lots of good tips in the nutrition section and the pregnancy section- you might just want to read through and see what appeals to you <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

You will probably want to make a list of every question you can think of, and take it to your appointment. That way you won't forget any when you get there...

I hope this helps a little...
 
A

AnD

New member
health baseline- first visit at CF clinic

Firstly...Goodness, you have a lot of life changing things happening right now!

There should be a doctor on call for anytime you are sick or are having symptoms that are worrisome. We did manual percussion during my pregnancy, as it was easier (I didn't have the accapella, but did have the flutter, which I used in the shower, usually, if I was feeling congested, and I didn't know about the short "chest vest"- as opposed to the full vest).

I used my Xopenex (refined Albuterol) and Pulmozyme during my pregnancy. I also developed gestational diabetes, so my excercise was simply getting through the day (it made me very, very tired if it got out of whack- that was my first symptoms of it- short of breath and tired).

If you need extra calories, there are lots of good tips in the nutrition section and the pregnancy section- you might just want to read through and see what appeals to you <img src="i/expressions/face-icon-small-wink.gif" border="0"> .

You will probably want to make a list of every question you can think of, and take it to your appointment. That way you won't forget any when you get there...

I hope this helps a little...
 
A

AnD

New member
health baseline- first visit at CF clinic

Hee! I feel sorry for mine, too! I haven't had an appointment since I joined here-(hey, we joined on the same day-lol <img src="i/expressions/face-icon-small-wink.gif" border="0"> )- and I have an entire page of questions about stuff...
 
A

AnD

New member
health baseline- first visit at CF clinic

Hee! I feel sorry for mine, too! I haven't had an appointment since I joined here-(hey, we joined on the same day-lol <img src="i/expressions/face-icon-small-wink.gif" border="0"> )- and I have an entire page of questions about stuff...
 
A

AnD

New member
health baseline- first visit at CF clinic

Hee! I feel sorry for mine, too! I haven't had an appointment since I joined here-(hey, we joined on the same day-lol <img src="i/expressions/face-icon-small-wink.gif" border="0"> )- and I have an entire page of questions about stuff...
 
M

mom2lillian

New member
health baseline- first visit at CF clinic

Bonnie-WHat a lot of changes you have going on. I hope you have good stress management and someone to talk to, if not most CF centers have a therapist/social worker and mine is great to talk to.

Of primary importance: (I know some will have to wait post preg but will list)
PFT's
x-rays
sputum culture with sensitivities
vitamin levels
fecal fat test if there is a ? of pancreatic sufficiency

Of secondary importance:
bone scan
complete bloodwork including IGE's
blood glucose test (I am assuming OB has done one?)
allergy tests (this is only my opinion)

good luck!
 
M

mom2lillian

New member
health baseline- first visit at CF clinic

Bonnie-WHat a lot of changes you have going on. I hope you have good stress management and someone to talk to, if not most CF centers have a therapist/social worker and mine is great to talk to.

Of primary importance: (I know some will have to wait post preg but will list)
PFT's
x-rays
sputum culture with sensitivities
vitamin levels
fecal fat test if there is a ? of pancreatic sufficiency

Of secondary importance:
bone scan
complete bloodwork including IGE's
blood glucose test (I am assuming OB has done one?)
allergy tests (this is only my opinion)

good luck!
 
M

mom2lillian

New member
health baseline- first visit at CF clinic

Bonnie-WHat a lot of changes you have going on. I hope you have good stress management and someone to talk to, if not most CF centers have a therapist/social worker and mine is great to talk to.

Of primary importance: (I know some will have to wait post preg but will list)
PFT's
x-rays
sputum culture with sensitivities
vitamin levels
fecal fat test if there is a ? of pancreatic sufficiency

Of secondary importance:
bone scan
complete bloodwork including IGE's
blood glucose test (I am assuming OB has done one?)
allergy tests (this is only my opinion)

good luck!
 
M

mom2lillian

New member
health baseline- first visit at CF clinic

have you considered cord blood banking? I did it because with any serious genetic disease in family you never know what they will be able to do later on.

just my 2 cents
 
M

mom2lillian

New member
health baseline- first visit at CF clinic

have you considered cord blood banking? I did it because with any serious genetic disease in family you never know what they will be able to do later on.

just my 2 cents
 
M

mom2lillian

New member
health baseline- first visit at CF clinic

have you considered cord blood banking? I did it because with any serious genetic disease in family you never know what they will be able to do later on.

just my 2 cents
 
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