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ABPA

T

tarheel

Guest
Okay so this is all hitting you like a ton of bricks I'm sure. Let me tell you my experiances. When first dxed we took a really drastic approach (documented culture,ige) and I was so miserable for about three years on high doses of steroids and even wearing a mold mask outside. Stopped that nonsense and now I straight out refuse steroids. My ige reaches 4000 and normal is 1600ish but it is just one number and one measurement and only you know how you're really feeling so don't let anyone tell you otherwise. My abpa has flared up a few times and treated with blasts of pred but that was when I knew I needed it- unless you know you need treatment don't push yourself into anything too drastic too fast. However for the record I do take singulair and advair. FYI
 
T

tarheel

Guest
Okay so this is all hitting you like a ton of bricks I'm sure. Let me tell you my experiances. When first dxed we took a really drastic approach (documented culture,ige) and I was so miserable for about three years on high doses of steroids and even wearing a mold mask outside. Stopped that nonsense and now I straight out refuse steroids. My ige reaches 4000 and normal is 1600ish but it is just one number and one measurement and only you know how you're really feeling so don't let anyone tell you otherwise. My abpa has flared up a few times and treated with blasts of pred but that was when I knew I needed it- unless you know you need treatment don't push yourself into anything too drastic too fast. However for the record I do take singulair and advair. FYI
 
T

tarheel

Guest
Okay so this is all hitting you like a ton of bricks I'm sure. Let me tell you my experiances. When first dxed we took a really drastic approach (documented culture,ige) and I was so miserable for about three years on high doses of steroids and even wearing a mold mask outside. Stopped that nonsense and now I straight out refuse steroids. My ige reaches 4000 and normal is 1600ish but it is just one number and one measurement and only you know how you're really feeling so don't let anyone tell you otherwise. My abpa has flared up a few times and treated with blasts of pred but that was when I knew I needed it- unless you know you need treatment don't push yourself into anything too drastic too fast. However for the record I do take singulair and advair. FYI
 
T

tarheel

Guest
Okay so this is all hitting you like a ton of bricks I'm sure. Let me tell you my experiances. When first dxed we took a really drastic approach (documented culture,ige) and I was so miserable for about three years on high doses of steroids and even wearing a mold mask outside. Stopped that nonsense and now I straight out refuse steroids. My ige reaches 4000 and normal is 1600ish but it is just one number and one measurement and only you know how you're really feeling so don't let anyone tell you otherwise. My abpa has flared up a few times and treated with blasts of pred but that was when I knew I needed it- unless you know you need treatment don't push yourself into anything too drastic too fast. However for the record I do take singulair and advair. FYI
 
T

tarheel

Guest
Okay so this is all hitting you like a ton of bricks I'm sure. Let me tell you my experiances. When first dxed we took a really drastic approach (documented culture,ige) and I was so miserable for about three years on high doses of steroids and even wearing a mold mask outside. Stopped that nonsense and now I straight out refuse steroids. My ige reaches 4000 and normal is 1600ish but it is just one number and one measurement and only you know how you're really feeling so don't let anyone tell you otherwise. My abpa has flared up a few times and treated with blasts of pred but that was when I knew I needed it- unless you know you need treatment don't push yourself into anything too drastic too fast. However for the record I do take singulair and advair. FYI
 

Zara

New member
Dramamama does that mean that by taking a L.Rhamnosus supplement, you can prevnt yourself from getting ABPA? hmm..
 

Zara

New member
Dramamama does that mean that by taking a L.Rhamnosus supplement, you can prevnt yourself from getting ABPA? hmm..
 

Zara

New member
Dramamama does that mean that by taking a L.Rhamnosus supplement, you can prevnt yourself from getting ABPA? hmm..
 

Zara

New member
Dramamama does that mean that by taking a L.Rhamnosus supplement, you can prevnt yourself from getting ABPA? hmm..
 

Zara

New member
Dramamama does that mean that by taking a L.Rhamnosus supplement, you can prevnt yourself from getting ABPA? hmm..
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Havoc

New member
No, the studies showed that taking a probiotic during antibiotic therapy relpaced the flora in the intestine and increased the amount of gamma interferon, reducing inflammation in CF patients. It also suggests that the effect is systemic and can have an effect on inflammatory diseases like asthma (and presumably ABPA). Either way it is not a prevention of ABPA, however, a possible way to reduce inflammation during an exacerbation. It's also just a study. While it shows promise, we all know that some things show promise, but don't work out the way we want them to. I don't see any harm in trying though.
 

Havoc

New member
No, the studies showed that taking a probiotic during antibiotic therapy relpaced the flora in the intestine and increased the amount of gamma interferon, reducing inflammation in CF patients. It also suggests that the effect is systemic and can have an effect on inflammatory diseases like asthma (and presumably ABPA). Either way it is not a prevention of ABPA, however, a possible way to reduce inflammation during an exacerbation. It's also just a study. While it shows promise, we all know that some things show promise, but don't work out the way we want them to. I don't see any harm in trying though.
 

Havoc

New member
No, the studies showed that taking a probiotic during antibiotic therapy relpaced the flora in the intestine and increased the amount of gamma interferon, reducing inflammation in CF patients. It also suggests that the effect is systemic and can have an effect on inflammatory diseases like asthma (and presumably ABPA). Either way it is not a prevention of ABPA, however, a possible way to reduce inflammation during an exacerbation. It's also just a study. While it shows promise, we all know that some things show promise, but don't work out the way we want them to. I don't see any harm in trying though.
 

Havoc

New member
No, the studies showed that taking a probiotic during antibiotic therapy relpaced the flora in the intestine and increased the amount of gamma interferon, reducing inflammation in CF patients. It also suggests that the effect is systemic and can have an effect on inflammatory diseases like asthma (and presumably ABPA). Either way it is not a prevention of ABPA, however, a possible way to reduce inflammation during an exacerbation. It's also just a study. While it shows promise, we all know that some things show promise, but don't work out the way we want them to. I don't see any harm in trying though.
 

Havoc

New member
No, the studies showed that taking a probiotic during antibiotic therapy relpaced the flora in the intestine and increased the amount of gamma interferon, reducing inflammation in CF patients. It also suggests that the effect is systemic and can have an effect on inflammatory diseases like asthma (and presumably ABPA). Either way it is not a prevention of ABPA, however, a possible way to reduce inflammation during an exacerbation. It's also just a study. While it shows promise, we all know that some things show promise, but don't work out the way we want them to. I don't see any harm in trying though.
 
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