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ABPA

Zara

New member
Is there a way of preventing ABPA, because this is the first time ive got it, and ive been given Intraconozole and Predisalone, steroids seem dangerous and i really dont want to take Predisalone everytime my ABPA flares up

Any help will be appreciated
Zara
 

Zara

New member
Is there a way of preventing ABPA, because this is the first time ive got it, and ive been given Intraconozole and Predisalone, steroids seem dangerous and i really dont want to take Predisalone everytime my ABPA flares up

Any help will be appreciated
Zara
 

Zara

New member
Is there a way of preventing ABPA, because this is the first time ive got it, and ive been given Intraconozole and Predisalone, steroids seem dangerous and i really dont want to take Predisalone everytime my ABPA flares up

Any help will be appreciated
Zara
 

Zara

New member
Is there a way of preventing ABPA, because this is the first time ive got it, and ive been given Intraconozole and Predisalone, steroids seem dangerous and i really dont want to take Predisalone everytime my ABPA flares up

Any help will be appreciated
Zara
 

Zara

New member
Is there a way of preventing ABPA, because this is the first time ive got it, and ive been given Intraconozole and Predisalone, steroids seem dangerous and i really dont want to take Predisalone everytime my ABPA flares up
<br />
<br />Any help will be appreciated
<br />Zara
 
T

tarheel

Guest
welcome to my life. I've been told that my ABPA is a reaction to aspergillius mold/fungus and basically stay away from moist or damp places, and indoor swimming pools because they all harbor this mold. I dont know if all abpa is triggered by this- but that's the way mine is. My treatment is usually the same too.
 
T

tarheel

Guest
welcome to my life. I've been told that my ABPA is a reaction to aspergillius mold/fungus and basically stay away from moist or damp places, and indoor swimming pools because they all harbor this mold. I dont know if all abpa is triggered by this- but that's the way mine is. My treatment is usually the same too.
 
T

tarheel

Guest
welcome to my life. I've been told that my ABPA is a reaction to aspergillius mold/fungus and basically stay away from moist or damp places, and indoor swimming pools because they all harbor this mold. I dont know if all abpa is triggered by this- but that's the way mine is. My treatment is usually the same too.
 
T

tarheel

Guest
welcome to my life. I've been told that my ABPA is a reaction to aspergillius mold/fungus and basically stay away from moist or damp places, and indoor swimming pools because they all harbor this mold. I dont know if all abpa is triggered by this- but that's the way mine is. My treatment is usually the same too.
 
T

tarheel

Guest
welcome to my life. I've been told that my ABPA is a reaction to aspergillius mold/fungus and basically stay away from moist or damp places, and indoor swimming pools because they all harbor this mold. I dont know if all abpa is triggered by this- but that's the way mine is. My treatment is usually the same too.
 

Havoc

New member
Zara,

You are right, steroids are nasty things and you don't want to make a habit of being on them. The best way to prevent ABPA is to limit your exposure to aspergillus. One of the most common types of exposure (at least in large quantities) is house renovation. Knocking holes in walls can release huge amounts of aspergillus and was the #1 cause of hospital related aspergillus outbreaks (which is why you see them with those tents and plastic everywhere when they do any kind of work). Aspergillus can live almost anywhere, so it's going to be hard to completely avoid. Look at your home for possible areas that can host a fungus (potted plants, basements, shower drains) and try to limit time there or remove/sanitize some of the culprits.

Do you know how high your IgE is?

If ABPA flareups become more frequent some docs are treating it with Xolair, which is not a steroid. It is however new and likely expensive and its also a subcutaneous injection which turns some people off. I think the dosing schedule is 2-4 weeks.

As for me I did one (long) course of steroids with my 1st round with ABPA and I swear to god I'll never do it again. The good news is that my IgE went from nearly 400 to 47, so it was a successful treatment in that regard, but the side effects of the steroids are too great for me to consider taking them again, especially when there are other options (i.e. Xolair).

I wish you luck.
 

Havoc

New member
Zara,

You are right, steroids are nasty things and you don't want to make a habit of being on them. The best way to prevent ABPA is to limit your exposure to aspergillus. One of the most common types of exposure (at least in large quantities) is house renovation. Knocking holes in walls can release huge amounts of aspergillus and was the #1 cause of hospital related aspergillus outbreaks (which is why you see them with those tents and plastic everywhere when they do any kind of work). Aspergillus can live almost anywhere, so it's going to be hard to completely avoid. Look at your home for possible areas that can host a fungus (potted plants, basements, shower drains) and try to limit time there or remove/sanitize some of the culprits.

Do you know how high your IgE is?

If ABPA flareups become more frequent some docs are treating it with Xolair, which is not a steroid. It is however new and likely expensive and its also a subcutaneous injection which turns some people off. I think the dosing schedule is 2-4 weeks.

As for me I did one (long) course of steroids with my 1st round with ABPA and I swear to god I'll never do it again. The good news is that my IgE went from nearly 400 to 47, so it was a successful treatment in that regard, but the side effects of the steroids are too great for me to consider taking them again, especially when there are other options (i.e. Xolair).

I wish you luck.
 

Havoc

New member
Zara,

You are right, steroids are nasty things and you don't want to make a habit of being on them. The best way to prevent ABPA is to limit your exposure to aspergillus. One of the most common types of exposure (at least in large quantities) is house renovation. Knocking holes in walls can release huge amounts of aspergillus and was the #1 cause of hospital related aspergillus outbreaks (which is why you see them with those tents and plastic everywhere when they do any kind of work). Aspergillus can live almost anywhere, so it's going to be hard to completely avoid. Look at your home for possible areas that can host a fungus (potted plants, basements, shower drains) and try to limit time there or remove/sanitize some of the culprits.

Do you know how high your IgE is?

If ABPA flareups become more frequent some docs are treating it with Xolair, which is not a steroid. It is however new and likely expensive and its also a subcutaneous injection which turns some people off. I think the dosing schedule is 2-4 weeks.

As for me I did one (long) course of steroids with my 1st round with ABPA and I swear to god I'll never do it again. The good news is that my IgE went from nearly 400 to 47, so it was a successful treatment in that regard, but the side effects of the steroids are too great for me to consider taking them again, especially when there are other options (i.e. Xolair).

I wish you luck.
 

Havoc

New member
Zara,

You are right, steroids are nasty things and you don't want to make a habit of being on them. The best way to prevent ABPA is to limit your exposure to aspergillus. One of the most common types of exposure (at least in large quantities) is house renovation. Knocking holes in walls can release huge amounts of aspergillus and was the #1 cause of hospital related aspergillus outbreaks (which is why you see them with those tents and plastic everywhere when they do any kind of work). Aspergillus can live almost anywhere, so it's going to be hard to completely avoid. Look at your home for possible areas that can host a fungus (potted plants, basements, shower drains) and try to limit time there or remove/sanitize some of the culprits.

Do you know how high your IgE is?

If ABPA flareups become more frequent some docs are treating it with Xolair, which is not a steroid. It is however new and likely expensive and its also a subcutaneous injection which turns some people off. I think the dosing schedule is 2-4 weeks.

As for me I did one (long) course of steroids with my 1st round with ABPA and I swear to god I'll never do it again. The good news is that my IgE went from nearly 400 to 47, so it was a successful treatment in that regard, but the side effects of the steroids are too great for me to consider taking them again, especially when there are other options (i.e. Xolair).

I wish you luck.
 

Havoc

New member
Zara,
<br />
<br />You are right, steroids are nasty things and you don't want to make a habit of being on them. The best way to prevent ABPA is to limit your exposure to aspergillus. One of the most common types of exposure (at least in large quantities) is house renovation. Knocking holes in walls can release huge amounts of aspergillus and was the #1 cause of hospital related aspergillus outbreaks (which is why you see them with those tents and plastic everywhere when they do any kind of work). Aspergillus can live almost anywhere, so it's going to be hard to completely avoid. Look at your home for possible areas that can host a fungus (potted plants, basements, shower drains) and try to limit time there or remove/sanitize some of the culprits.
<br />
<br />Do you know how high your IgE is?
<br />
<br />If ABPA flareups become more frequent some docs are treating it with Xolair, which is not a steroid. It is however new and likely expensive and its also a subcutaneous injection which turns some people off. I think the dosing schedule is 2-4 weeks.
<br />
<br />As for me I did one (long) course of steroids with my 1st round with ABPA and I swear to god I'll never do it again. The good news is that my IgE went from nearly 400 to 47, so it was a successful treatment in that regard, but the side effects of the steroids are too great for me to consider taking them again, especially when there are other options (i.e. Xolair).
<br />
<br />I wish you luck.
 

lightNlife

New member
I'm on low dose prednisone for it and seem to be doing really well. My IgE has come down by a couple hundred points, though it's still off the charts. Advair and Singulair are doing a great job at keeping the flare ups under control.

Here's some additional info about ABPA and steroids from my "Understanding Cystic Fibrosis" blog.

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2008/05/corticosteroids-prednisone.html
">http://understandingcysticfibr...roids-prednisone.html
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/08/inflammation-treatment-corticosteroids.html
">http://understandingcysticfibr...-corticosteroids.html
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/04/understanding-allergic-bronchopulmonary.html
">http://understandingcysticfibr...bronchopulmonary.html
</a>
 

lightNlife

New member
I'm on low dose prednisone for it and seem to be doing really well. My IgE has come down by a couple hundred points, though it's still off the charts. Advair and Singulair are doing a great job at keeping the flare ups under control.

Here's some additional info about ABPA and steroids from my "Understanding Cystic Fibrosis" blog.

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2008/05/corticosteroids-prednisone.html
">http://understandingcysticfibr...roids-prednisone.html
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/08/inflammation-treatment-corticosteroids.html
">http://understandingcysticfibr...-corticosteroids.html
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/04/understanding-allergic-bronchopulmonary.html
">http://understandingcysticfibr...bronchopulmonary.html
</a>
 

lightNlife

New member
I'm on low dose prednisone for it and seem to be doing really well. My IgE has come down by a couple hundred points, though it's still off the charts. Advair and Singulair are doing a great job at keeping the flare ups under control.

Here's some additional info about ABPA and steroids from my "Understanding Cystic Fibrosis" blog.

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2008/05/corticosteroids-prednisone.html
">http://understandingcysticfibr...roids-prednisone.html
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/08/inflammation-treatment-corticosteroids.html
">http://understandingcysticfibr...-corticosteroids.html
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/04/understanding-allergic-bronchopulmonary.html
">http://understandingcysticfibr...bronchopulmonary.html
</a>
 

lightNlife

New member
I'm on low dose prednisone for it and seem to be doing really well. My IgE has come down by a couple hundred points, though it's still off the charts. Advair and Singulair are doing a great job at keeping the flare ups under control.

Here's some additional info about ABPA and steroids from my "Understanding Cystic Fibrosis" blog.

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2008/05/corticosteroids-prednisone.html
">http://understandingcysticfibr...roids-prednisone.html
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/08/inflammation-treatment-corticosteroids.html
">http://understandingcysticfibr...-corticosteroids.html
</a><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/04/understanding-allergic-bronchopulmonary.html
">http://understandingcysticfibr...bronchopulmonary.html
</a>
 

lightNlife

New member
I'm on low dose prednisone for it and seem to be doing really well. My IgE has come down by a couple hundred points, though it's still off the charts. Advair and Singulair are doing a great job at keeping the flare ups under control.
<br />
<br />Here's some additional info about ABPA and steroids from my "Understanding Cystic Fibrosis" blog.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2008/05/corticosteroids-prednisone.html
">http://understandingcysticfibr...roids-prednisone.html
</a><br /><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/08/inflammation-treatment-corticosteroids.html
">http://understandingcysticfibr...-corticosteroids.html
</a><br /><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/04/understanding-allergic-bronchopulmonary.html
">http://understandingcysticfibr...bronchopulmonary.html
</a><br />
<br />
 
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