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Amy

anonymous

New member
Amy,

I was reading some old posts and I noticed that your old comments are gone and all there is is a period. I hope something weird as happened. Please don't tell me that the recent stuff has driven you to leaving the site.

I have learned so much from you and really appreciate your knowledge of science and meds.

Hopefully I'll see a reassurance from you soon!
 

anonymous

New member
Amy,

I was reading some old posts and I noticed that your old comments are gone and all there is is a period. I hope something weird as happened. Please don't tell me that the recent stuff has driven you to leaving the site.

I have learned so much from you and really appreciate your knowledge of science and meds.

Hopefully I'll see a reassurance from you soon!
 

anonymous

New member
Amy,

I was reading some old posts and I noticed that your old comments are gone and all there is is a period. I hope something weird as happened. Please don't tell me that the recent stuff has driven you to leaving the site.

I have learned so much from you and really appreciate your knowledge of science and meds.

Hopefully I'll see a reassurance from you soon!
 

anonymous

New member
Wow. Almost 300 posts have been changed into .'s.

They seem to basically be the month of september and were edited late last night.

However, there are still some from the last couple of days and a new blog, so hopefully all is well.


Amy, if you are upset for some reason, know that I for one value your opinions, knowledge, attitude and presence.
 

anonymous

New member
Wow. Almost 300 posts have been changed into .'s.

They seem to basically be the month of september and were edited late last night.

However, there are still some from the last couple of days and a new blog, so hopefully all is well.


Amy, if you are upset for some reason, know that I for one value your opinions, knowledge, attitude and presence.
 

anonymous

New member
Wow. Almost 300 posts have been changed into .'s.

They seem to basically be the month of september and were edited late last night.

However, there are still some from the last couple of days and a new blog, so hopefully all is well.


Amy, if you are upset for some reason, know that I for one value your opinions, knowledge, attitude and presence.
 

jjflash

New member
One thought regarding Amy.

 

I think those parents who have objected to Amy in the past
should take a moment and think about their own child with CF. 
How would you like your child treated by others?  Even if they
were being a little tactless or perhaps juvenile?  It seems
likely that you might argue that while your child wasn't acting in
the best manner, people should be understanding and supportive of
them.  After all, dear Johnnie or Susie has been through so
much.  Maybe he has a right to be a little angry.  And
he's done so well for himself despite it all.  Completed
college, got a great job, is a responsible employee, AND is still
maintaining his health.

 

You say that Amy can't understand what it is to be the parent of
a CF kid.  But you do know a lot about what its like to have
CF from watching your own child. 

 

So, before emotionally responding, take a second to think about
it from your childs perspective.  Hopefully someone will do
the same for them many times in their life.
 

jjflash

New member
One thought regarding Amy.

 

I think those parents who have objected to Amy in the past
should take a moment and think about their own child with CF. 
How would you like your child treated by others?  Even if they
were being a little tactless or perhaps juvenile?  It seems
likely that you might argue that while your child wasn't acting in
the best manner, people should be understanding and supportive of
them.  After all, dear Johnnie or Susie has been through so
much.  Maybe he has a right to be a little angry.  And
he's done so well for himself despite it all.  Completed
college, got a great job, is a responsible employee, AND is still
maintaining his health.

 

You say that Amy can't understand what it is to be the parent of
a CF kid.  But you do know a lot about what its like to have
CF from watching your own child. 

 

So, before emotionally responding, take a second to think about
it from your childs perspective.  Hopefully someone will do
the same for them many times in their life.
 

jjflash

New member
One thought regarding Amy.

 

I think those parents who have objected to Amy in the past
should take a moment and think about their own child with CF. 
How would you like your child treated by others?  Even if they
were being a little tactless or perhaps juvenile?  It seems
likely that you might argue that while your child wasn't acting in
the best manner, people should be understanding and supportive of
them.  After all, dear Johnnie or Susie has been through so
much.  Maybe he has a right to be a little angry.  And
he's done so well for himself despite it all.  Completed
college, got a great job, is a responsible employee, AND is still
maintaining his health.

 

You say that Amy can't understand what it is to be the parent of
a CF kid.  But you do know a lot about what its like to have
CF from watching your own child. 

 

So, before emotionally responding, take a second to think about
it from your childs perspective.  Hopefully someone will do
the same for them many times in their life.
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

Wow. Almost 300 posts have been changed into .'s.



They seem to basically be the month of september and were edited late last night.



However, there are still some from the last couple of days and a new blog, so hopefully all is well.





Amy, if you are upset for some reason, know that I for one value your opinions, knowledge, attitude and presence.</end quote></div>


Wow, I'm surprised you even took the time to search out and count the number of posts that's been "deleted". If only noticed one, and that is in the same thread that she posted anon saying she was having problems posting/logging in.
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

Wow. Almost 300 posts have been changed into .'s.



They seem to basically be the month of september and were edited late last night.



However, there are still some from the last couple of days and a new blog, so hopefully all is well.





Amy, if you are upset for some reason, know that I for one value your opinions, knowledge, attitude and presence.</end quote></div>


Wow, I'm surprised you even took the time to search out and count the number of posts that's been "deleted". If only noticed one, and that is in the same thread that she posted anon saying she was having problems posting/logging in.
 

anonymous

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

Wow. Almost 300 posts have been changed into .'s.



They seem to basically be the month of september and were edited late last night.



However, there are still some from the last couple of days and a new blog, so hopefully all is well.





Amy, if you are upset for some reason, know that I for one value your opinions, knowledge, attitude and presence.</end quote></div>


Wow, I'm surprised you even took the time to search out and count the number of posts that's been "deleted". If only noticed one, and that is in the same thread that she posted anon saying she was having problems posting/logging in.
 

Jane

Digital opinion leader
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jjflash</b></i>

One thought regarding Amy.

 

I think those parents who have objected to Amy in the past
should take a moment and think about their own child with CF. 
How would you like your child treated by others?  Even if they
were being a little tactless or perhaps juvenile?  It seems
likely that you might argue that while your child wasn't acting in
the best manner, people should be understanding and supportive of
them.  After all, dear Johnnie or Susie has been through so
much.  Maybe he has a right to be a little angry.  And
he's done so well for himself despite it all.  Completed
college, got a great job, is a responsible employee, AND is still
maintaining his health.

 
 
 
So, before emotionally responding, take a second to think about
it from your childs perspective.  Hopefully someone will do
the same for them many times in their life.</end quote></div>

I have taken my second to think and am not responding with my emotions, but I must disagree with your point. I want my children to be treated as an equals. My husband and I work very hard to make sure that people DO NOT make allowances for my children's behavior because of their illness. In general, having CF does NOT give someone the right to be tactless and juvenile (your words). I would not allow that kind of behavior in my children and would certainly not expect others to allow it just because "they've been through so much".

If you are referring to me as one parent who has objected to Amy, I want you to know that I do not <i>object to Amy</i> at all. I simply disagree with some of her views. As far as Amy goes, I believe she has done amazingly well for herself. She is intelligent, articulate and knowledgable. I respect her advice in most areas, admire her courage and appreciate her sharing her experiences with Dr. Warwick. She is a great resource and is a wonderful role model for young CFers. I disagree with her ideas on parenting, nothing more and nothing personal.
 

Jane

Digital opinion leader
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jjflash</b></i>

One thought regarding Amy.

 

I think those parents who have objected to Amy in the past
should take a moment and think about their own child with CF. 
How would you like your child treated by others?  Even if they
were being a little tactless or perhaps juvenile?  It seems
likely that you might argue that while your child wasn't acting in
the best manner, people should be understanding and supportive of
them.  After all, dear Johnnie or Susie has been through so
much.  Maybe he has a right to be a little angry.  And
he's done so well for himself despite it all.  Completed
college, got a great job, is a responsible employee, AND is still
maintaining his health.

 
 
 
So, before emotionally responding, take a second to think about
it from your childs perspective.  Hopefully someone will do
the same for them many times in their life.</end quote></div>

I have taken my second to think and am not responding with my emotions, but I must disagree with your point. I want my children to be treated as an equals. My husband and I work very hard to make sure that people DO NOT make allowances for my children's behavior because of their illness. In general, having CF does NOT give someone the right to be tactless and juvenile (your words). I would not allow that kind of behavior in my children and would certainly not expect others to allow it just because "they've been through so much".

If you are referring to me as one parent who has objected to Amy, I want you to know that I do not <i>object to Amy</i> at all. I simply disagree with some of her views. As far as Amy goes, I believe she has done amazingly well for herself. She is intelligent, articulate and knowledgable. I respect her advice in most areas, admire her courage and appreciate her sharing her experiences with Dr. Warwick. She is a great resource and is a wonderful role model for young CFers. I disagree with her ideas on parenting, nothing more and nothing personal.
 

Jane

Digital opinion leader
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jjflash</b></i>

One thought regarding Amy.

 

I think those parents who have objected to Amy in the past
should take a moment and think about their own child with CF. 
How would you like your child treated by others?  Even if they
were being a little tactless or perhaps juvenile?  It seems
likely that you might argue that while your child wasn't acting in
the best manner, people should be understanding and supportive of
them.  After all, dear Johnnie or Susie has been through so
much.  Maybe he has a right to be a little angry.  And
he's done so well for himself despite it all.  Completed
college, got a great job, is a responsible employee, AND is still
maintaining his health.

 
 
 
So, before emotionally responding, take a second to think about
it from your childs perspective.  Hopefully someone will do
the same for them many times in their life.</end quote></div>

I have taken my second to think and am not responding with my emotions, but I must disagree with your point. I want my children to be treated as an equals. My husband and I work very hard to make sure that people DO NOT make allowances for my children's behavior because of their illness. In general, having CF does NOT give someone the right to be tactless and juvenile (your words). I would not allow that kind of behavior in my children and would certainly not expect others to allow it just because "they've been through so much".

If you are referring to me as one parent who has objected to Amy, I want you to know that I do not <i>object to Amy</i> at all. I simply disagree with some of her views. As far as Amy goes, I believe she has done amazingly well for herself. She is intelligent, articulate and knowledgable. I respect her advice in most areas, admire her courage and appreciate her sharing her experiences with Dr. Warwick. She is a great resource and is a wonderful role model for young CFers. I disagree with her ideas on parenting, nothing more and nothing personal.
 

Diane

New member
I have to disagree with jjflash also. I am 41 years old and you can bet your behind in my 41 years, i have seen some very VERY tough times with cf and you dont see me being rude, immature and snappy at people. That behavior just isnt right and just because someone has cf or any other illness or problems does not excuse that type of behavior. I agree with Jane that i also do not have anything personal against Amy, i do however have something against her attitude and behavior on this board, as do MANY others. She can be of a great help to many with her knowledge....We all have something to offer and give on this board, but there is NO reason to excuse rude, hurtful remarks or totally out of line questions that will definitely start a whole production of anger. No-one else does it , and we all have cf ....some way worse than others, and i dont see them acting out on the board. None the less its good to see she is only having sign in problems and is ok.
 

Diane

New member
I have to disagree with jjflash also. I am 41 years old and you can bet your behind in my 41 years, i have seen some very VERY tough times with cf and you dont see me being rude, immature and snappy at people. That behavior just isnt right and just because someone has cf or any other illness or problems does not excuse that type of behavior. I agree with Jane that i also do not have anything personal against Amy, i do however have something against her attitude and behavior on this board, as do MANY others. She can be of a great help to many with her knowledge....We all have something to offer and give on this board, but there is NO reason to excuse rude, hurtful remarks or totally out of line questions that will definitely start a whole production of anger. No-one else does it , and we all have cf ....some way worse than others, and i dont see them acting out on the board. None the less its good to see she is only having sign in problems and is ok.
 
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