Are there ''mild'' cfers?

[relat]

Some people consider themselves as ''mild'' cases.with what standars? Who is considered to belong to this category when everybody knows cf is unpredictable?



relat

 

[relat]

Some people consider themselves as ''mild'' cases.with what standars? Who is considered to belong to this category when everybody knows cf is unpredictable?



relat

 

[relat]

Some people consider themselves as ''mild'' cases.with what standars? Who is considered to belong to this category when everybody knows cf is unpredictable?



relat

 

[JazzysMom]

People have different ways of measuring the mild, moderate, severe. I personally went with my overall health & pfts which put me as mild until my mid twenties where I went to moderate and by 33 I was severe.

 

[JazzysMom]

People have different ways of measuring the mild, moderate, severe. I personally went with my overall health & pfts which put me as mild until my mid twenties where I went to moderate and by 33 I was severe.

 

[JazzysMom]

People have different ways of measuring the mild, moderate, severe. I personally went with my overall health & pfts which put me as mild until my mid twenties where I went to moderate and by 33 I was severe.

 

[thelizardqueen]

Well, my pfts are in the 60s, but I still feel pretty great for the most part, so I'll go with mild bordering on moderate.

 

[thelizardqueen]

Well, my pfts are in the 60s, but I still feel pretty great for the most part, so I'll go with mild bordering on moderate.

 

[thelizardqueen]

Well, my pfts are in the 60s, but I still feel pretty great for the most part, so I'll go with mild bordering on moderate.

 

[CaliSally]

Does the specific defected gene have anything to do with it, at least, initially?

I know the ONLY problem I had was my digestion. I wasn't brought up doing b/t's AT ALL. I think I was in my 20's before I had my first lung infection, and in my 30's when I had my first I.V.

However, BECAUSE I wasn't doing b/t's as standard procedure (because I was naive and thought I would never be the typical CFer), I got sick big time. I laid in bed thinking I only had the flu...and because of waiting to treat with antibiotics, I damaged my lungs, causing me to have to retire from work (at the age of 35/36). Although I'm probably still considered mild to moderate, but my FEV1 is 39%, o2 is 94%.

Had I been doing b/t's everyday, my guess is that I would still be considered very mild. But that's just a guess, since no one knows how many days they are alloted, with or without CF.

I still think the genes determine what stage <i>we are born at </i>with CF. I had a baby brother who had lots of lung trouble and died at 18 months. ..and here I am at 40.

 

[CaliSally]

Does the specific defected gene have anything to do with it, at least, initially?

I know the ONLY problem I had was my digestion. I wasn't brought up doing b/t's AT ALL. I think I was in my 20's before I had my first lung infection, and in my 30's when I had my first I.V.

However, BECAUSE I wasn't doing b/t's as standard procedure (because I was naive and thought I would never be the typical CFer), I got sick big time. I laid in bed thinking I only had the flu...and because of waiting to treat with antibiotics, I damaged my lungs, causing me to have to retire from work (at the age of 35/36). Although I'm probably still considered mild to moderate, but my FEV1 is 39%, o2 is 94%.

Had I been doing b/t's everyday, my guess is that I would still be considered very mild. But that's just a guess, since no one knows how many days they are alloted, with or without CF.

I still think the genes determine what stage <i>we are born at </i>with CF. I had a baby brother who had lots of lung trouble and died at 18 months. ..and here I am at 40.

 

[CaliSally]

Does the specific defected gene have anything to do with it, at least, initially?

I know the ONLY problem I had was my digestion. I wasn't brought up doing b/t's AT ALL. I think I was in my 20's before I had my first lung infection, and in my 30's when I had my first I.V.

However, BECAUSE I wasn't doing b/t's as standard procedure (because I was naive and thought I would never be the typical CFer), I got sick big time. I laid in bed thinking I only had the flu...and because of waiting to treat with antibiotics, I damaged my lungs, causing me to have to retire from work (at the age of 35/36). Although I'm probably still considered mild to moderate, but my FEV1 is 39%, o2 is 94%.

Had I been doing b/t's everyday, my guess is that I would still be considered very mild. But that's just a guess, since no one knows how many days they are alloted, with or without CF.

I still think the genes determine what stage <i>we are born at </i>with CF. I had a baby brother who had lots of lung trouble and died at 18 months. ..and here I am at 40.

 

[LouLou]

I've seen reference to these specific #'s many times in online journals/articles.

"<i>As suggested by the CF Foundation, severity of illness was defined based on the percent expected FEV1 as;
mild (FEV1 >= 70%),
moderate (FEV1 >= 40%-69%), or
severe (FEV1 <40%).</i>"

I copied this from this source. <a target=_blank class=ftalternatingbarlinklarge href="http://pediatrics.aappublications.org/cgi/content/full/103/6/e72
">http://pediatrics.aappublicati.../full/103/6/e72
</a>

Personally, I also think of a 4th stage - End stage - FEV1 below 30% (because this is the point at which a patient becomes elgible for lung transplant and I don't remember the average life expectancy w/o a lungs transplant but I don't recall it being more than 5 years).

 

[LouLou]

I've seen reference to these specific #'s many times in online journals/articles.

"<i>As suggested by the CF Foundation, severity of illness was defined based on the percent expected FEV1 as;
mild (FEV1 >= 70%),
moderate (FEV1 >= 40%-69%), or
severe (FEV1 <40%).</i>"

I copied this from this source. <a target=_blank class=ftalternatingbarlinklarge href="http://pediatrics.aappublications.org/cgi/content/full/103/6/e72
">http://pediatrics.aappublicati.../full/103/6/e72
</a>

Personally, I also think of a 4th stage - End stage - FEV1 below 30% (because this is the point at which a patient becomes elgible for lung transplant and I don't remember the average life expectancy w/o a lungs transplant but I don't recall it being more than 5 years).

 

[LouLou]

I've seen reference to these specific #'s many times in online journals/articles.

"<i>As suggested by the CF Foundation, severity of illness was defined based on the percent expected FEV1 as;
mild (FEV1 >= 70%),
moderate (FEV1 >= 40%-69%), or
severe (FEV1 <40%).</i>"

I copied this from this source. <a target=_blank class=ftalternatingbarlinklarge href="http://pediatrics.aappublications.org/cgi/content/full/103/6/e72
">http://pediatrics.aappublicati.../full/103/6/e72
</a>

Personally, I also think of a 4th stage - End stage - FEV1 below 30% (because this is the point at which a patient becomes elgible for lung transplant and I don't remember the average life expectancy w/o a lungs transplant but I don't recall it being more than 5 years).

 

[relat]

I personally could consider somebody as mild,when he doesn't have many issues with his cf,or he has a health that doesn't change with the time.I may be wrong.Maybe all cfers progress so someone may be at one time mild and at one other time severe....in the second case i agree with the Fev's theory.But i still think mildness has to do with the first.Am i wrong?you know better.


relat,27,having 26 yr old brother w/cf

 

[relat]

I personally could consider somebody as mild,when he doesn't have many issues with his cf,or he has a health that doesn't change with the time.I may be wrong.Maybe all cfers progress so someone may be at one time mild and at one other time severe....in the second case i agree with the Fev's theory.But i still think mildness has to do with the first.Am i wrong?you know better.


relat,27,having 26 yr old brother w/cf

 

[relat]

I personally could consider somebody as mild,when he doesn't have many issues with his cf,or he has a health that doesn't change with the time.I may be wrong.Maybe all cfers progress so someone may be at one time mild and at one other time severe....in the second case i agree with the Fev's theory.But i still think mildness has to do with the first.Am i wrong?you know better.


relat,27,having 26 yr old brother w/cf

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>relat</b></i>
he has a health that doesn't change with the time.


</end quote></div>

there has never been in a CFer, or any human being for that matter, that fits that description.

every person's health changes with time.

Loulou's description is accurate.

 

[NoExcuses]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>relat</b></i>
he has a health that doesn't change with the time.


</end quote></div>

there has never been in a CFer, or any human being for that matter, that fits that description.

every person's health changes with time.

Loulou's description is accurate.