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Are there ''mild'' cfers?

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NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>relat</b></i>
he has a health that doesn't change with the time.


</end quote></div>

there has never been in a CFer, or any human being for that matter, that fits that description.

every person's health changes with time.

Loulou's description is accurate.
 
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thefrogprincess

New member
I would say I am mild. I have very little digestive issues, my PFTs are in the 60s, but it doesn't hold me back whatsoever. I hold down a full time job and can do whatever activities I feel like. I get the occasional lung infection but have never had to be on IVs.
 
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thefrogprincess

New member
I would say I am mild. I have very little digestive issues, my PFTs are in the 60s, but it doesn't hold me back whatsoever. I hold down a full time job and can do whatever activities I feel like. I get the occasional lung infection but have never had to be on IVs.
 
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thefrogprincess

New member
I would say I am mild. I have very little digestive issues, my PFTs are in the 60s, but it doesn't hold me back whatsoever. I hold down a full time job and can do whatever activities I feel like. I get the occasional lung infection but have never had to be on IVs.
 
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wanderlost

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thefrogprincess</b></i>

I would say I am mild. I have very little digestive issues, my PFTs are in the 60s, but it doesn't hold me back whatsoever. I hold down a full time job and can do whatever activities I feel like. I get the occasional lung infection but have never had to be on IVs.</end quote></div>

That's me too, though my PFTs are in the 70s. and I do take enzymes everyday, but have no trouble maintaining my weight. i think if I agreed to an IV session I would get them even higher, but my PFTS have never had a dramatic decline and I only cultured PA the past year, so I never wanted to take the time to do treatments and IVs because I was not symptomatic and I felt fine and went about my daily routine without much thought to CF. Now that I am older and have PA, and 3 kids, I am more willing to do treatments and would be willing to go on IVs at some point to get my PFTs even higher.
 
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wanderlost

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thefrogprincess</b></i>

I would say I am mild. I have very little digestive issues, my PFTs are in the 60s, but it doesn't hold me back whatsoever. I hold down a full time job and can do whatever activities I feel like. I get the occasional lung infection but have never had to be on IVs.</end quote></div>

That's me too, though my PFTs are in the 70s. and I do take enzymes everyday, but have no trouble maintaining my weight. i think if I agreed to an IV session I would get them even higher, but my PFTS have never had a dramatic decline and I only cultured PA the past year, so I never wanted to take the time to do treatments and IVs because I was not symptomatic and I felt fine and went about my daily routine without much thought to CF. Now that I am older and have PA, and 3 kids, I am more willing to do treatments and would be willing to go on IVs at some point to get my PFTs even higher.
 
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wanderlost

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>thefrogprincess</b></i>

I would say I am mild. I have very little digestive issues, my PFTs are in the 60s, but it doesn't hold me back whatsoever. I hold down a full time job and can do whatever activities I feel like. I get the occasional lung infection but have never had to be on IVs.</end quote></div>

That's me too, though my PFTs are in the 70s. and I do take enzymes everyday, but have no trouble maintaining my weight. i think if I agreed to an IV session I would get them even higher, but my PFTS have never had a dramatic decline and I only cultured PA the past year, so I never wanted to take the time to do treatments and IVs because I was not symptomatic and I felt fine and went about my daily routine without much thought to CF. Now that I am older and have PA, and 3 kids, I am more willing to do treatments and would be willing to go on IVs at some point to get my PFTs even higher.
 
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NoExcuses

New member
i always wonder why people let their PFT's slip to the 70s and 60s without having been on IV's?

is it that you don't care if your lung function declines? is it a pride thing so you can say to yourself that you've never been on IV's? or is it that you're willing to take the trade off of lung function decline for not having to go into the hospital (this is the one I'm thinking that it is)?
 
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NoExcuses

New member
i always wonder why people let their PFT's slip to the 70s and 60s without having been on IV's?

is it that you don't care if your lung function declines? is it a pride thing so you can say to yourself that you've never been on IV's? or is it that you're willing to take the trade off of lung function decline for not having to go into the hospital (this is the one I'm thinking that it is)?
 
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NoExcuses

New member
i always wonder why people let their PFT's slip to the 70s and 60s without having been on IV's?

is it that you don't care if your lung function declines? is it a pride thing so you can say to yourself that you've never been on IV's? or is it that you're willing to take the trade off of lung function decline for not having to go into the hospital (this is the one I'm thinking that it is)?
 
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NoExcuses

New member
intravenous antibiotics - they tend to be more powerful in controlling bacterial infections (which cause permanent lung damage) than oral antibiotics.
 
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NoExcuses

New member
intravenous antibiotics - they tend to be more powerful in controlling bacterial infections (which cause permanent lung damage) than oral antibiotics.
 
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NoExcuses

New member
intravenous antibiotics - they tend to be more powerful in controlling bacterial infections (which cause permanent lung damage) than oral antibiotics.
 
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Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

i always wonder why people let their PFT's slip to the 70s and 60s without having been on IV's?



is it that you don't care if your lung function declines? is it a pride thing so you can say to yourself that you've never been on IV's? or is it that you're willing to take the trade off of lung function decline for not having to go into the hospital (this is the one I'm thinking that it is)?</end quote></div>

If the decline is due to scar tissue build up from years of getting colds, etc, are IV's going to help you anyway? I would assume that even if you had IV's with each and every cold/pneumonia that there's bound to be some scar tissue build up each & every time. Right or wrong?
 
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Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

i always wonder why people let their PFT's slip to the 70s and 60s without having been on IV's?



is it that you don't care if your lung function declines? is it a pride thing so you can say to yourself that you've never been on IV's? or is it that you're willing to take the trade off of lung function decline for not having to go into the hospital (this is the one I'm thinking that it is)?</end quote></div>

If the decline is due to scar tissue build up from years of getting colds, etc, are IV's going to help you anyway? I would assume that even if you had IV's with each and every cold/pneumonia that there's bound to be some scar tissue build up each & every time. Right or wrong?
 
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Landy

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

i always wonder why people let their PFT's slip to the 70s and 60s without having been on IV's?



is it that you don't care if your lung function declines? is it a pride thing so you can say to yourself that you've never been on IV's? or is it that you're willing to take the trade off of lung function decline for not having to go into the hospital (this is the one I'm thinking that it is)?</end quote></div>

If the decline is due to scar tissue build up from years of getting colds, etc, are IV's going to help you anyway? I would assume that even if you had IV's with each and every cold/pneumonia that there's bound to be some scar tissue build up each & every time. Right or wrong?
 
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princessjdc

New member
According to the chart above Im considered mild, 2 years ago, I was considered moderate with pfts being 65. Today they are 85.
 
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