**Raises Hand** I didn't know i had such a big asthma component along w/f my c/f and i don"t think the drs realized it either..
So here's my story ...
I switched clinics in august 2007.. The new clinic found that i grew a myco bug.. this bug doesn't like advair 250/50 so that med was discontinued . They also took my of Zithromax (it may be needed down the road to treat the Myco bug, i am not being treated for that bug yet) Around this time i stared Tobi and HTS, i noticed wheezing but wasn't to concerned at that point and didn't know which one was causing it..
In february i caught a virus and 2 colds back to back, all the while my air way were constricting .. I was having such a hard time breathing and the wheezing was really bad (i have had wheezing in the past but not like this)
I was admitted to St. Vincents Hosp. the drs. really don't know me that well but from what they knew were surprised at the wheezing. It turned out i was having an Asthma Exacerbation (didn't even know that it existed , had only heard of a c/f exacerbation) ...
I was put on IV steroids for a week , went home on only steroid pills, no abx at all, amazing..
The Drs. restarted the advair 250/50, added singular, added pulmocort, and kept all the rest of my regular meds. which were, pulmozyme,tobi,hts,albuterol,the advair,singular,verimyst,nasal irrigations (which are so important especially around allergy season, Allegra (allergy seanson), nexium, urisodol, pancrecarb,abdeks, ambien..
Well i was still noticing some wheezing, sooooo even though i didn't want to stop the HTS cause it was helping me bring up lots of nice junk, i stopped it (i tried going from 7% ti 3%, but it didn't help)
I have since noticed much less wheezing..
I have been back to clinic a few times since i got discharged but haven't been back since i stopped the hts and have been doing the allegra so i hope when i go to clinic at the end of this month i will see some improvement..
I also use mucenex (sp) and have been in a pulmo rehab program for several weeks now..
It would be nice if we could all pool our info and maybe help one another.. Sorry such a long reply, but as usual c/f stuff isn't simple ..
If you have any ?'s of any info for me , please PM me.. <img src="i/expressions/heart.gif" border="0"> joni
So here's my story ...
I switched clinics in august 2007.. The new clinic found that i grew a myco bug.. this bug doesn't like advair 250/50 so that med was discontinued . They also took my of Zithromax (it may be needed down the road to treat the Myco bug, i am not being treated for that bug yet) Around this time i stared Tobi and HTS, i noticed wheezing but wasn't to concerned at that point and didn't know which one was causing it..
In february i caught a virus and 2 colds back to back, all the while my air way were constricting .. I was having such a hard time breathing and the wheezing was really bad (i have had wheezing in the past but not like this)
I was admitted to St. Vincents Hosp. the drs. really don't know me that well but from what they knew were surprised at the wheezing. It turned out i was having an Asthma Exacerbation (didn't even know that it existed , had only heard of a c/f exacerbation) ...
I was put on IV steroids for a week , went home on only steroid pills, no abx at all, amazing..
The Drs. restarted the advair 250/50, added singular, added pulmocort, and kept all the rest of my regular meds. which were, pulmozyme,tobi,hts,albuterol,the advair,singular,verimyst,nasal irrigations (which are so important especially around allergy season, Allegra (allergy seanson), nexium, urisodol, pancrecarb,abdeks, ambien..
Well i was still noticing some wheezing, sooooo even though i didn't want to stop the HTS cause it was helping me bring up lots of nice junk, i stopped it (i tried going from 7% ti 3%, but it didn't help)
I have since noticed much less wheezing..
I have been back to clinic a few times since i got discharged but haven't been back since i stopped the hts and have been doing the allegra so i hope when i go to clinic at the end of this month i will see some improvement..
I also use mucenex (sp) and have been in a pulmo rehab program for several weeks now..
It would be nice if we could all pool our info and maybe help one another.. Sorry such a long reply, but as usual c/f stuff isn't simple ..
If you have any ?'s of any info for me , please PM me.. <img src="i/expressions/heart.gif" border="0"> joni