cf Dx

[JustDucky]

I agree with everyone on this one..definitely push for CF testing (preferrably genetic panel). If it comes out positive, then he will finally get the treatment he needs to help keep him as healthy as possible...I would not wait until other symptoms occur, it already sounds like he has been through the mill and back. I understand why your son might be hesitant to get CF testing due to fear or whatever reason, but as I and others have said, if it is CF then he can get aggressive treatment that would hopefully stablize his exacerbations, treat his infections better and have a better quality of life in general.

As far as your mom goes, she should have a talk with her doc regarding her concerns regarding CF possibility and testing if she desires this. Hopefully her doc will have an open mind and treat her concerns appropriately.
I will keep you and your son in my thoughts...please keep us updated. Hugs Jenn

 

[JustDucky]

I agree with everyone on this one..definitely push for CF testing (preferrably genetic panel). If it comes out positive, then he will finally get the treatment he needs to help keep him as healthy as possible...I would not wait until other symptoms occur, it already sounds like he has been through the mill and back. I understand why your son might be hesitant to get CF testing due to fear or whatever reason, but as I and others have said, if it is CF then he can get aggressive treatment that would hopefully stablize his exacerbations, treat his infections better and have a better quality of life in general.

As far as your mom goes, she should have a talk with her doc regarding her concerns regarding CF possibility and testing if she desires this. Hopefully her doc will have an open mind and treat her concerns appropriately.
I will keep you and your son in my thoughts...please keep us updated. Hugs Jenn

 

[JustDucky]

I agree with everyone on this one..definitely push for CF testing (preferrably genetic panel). If it comes out positive, then he will finally get the treatment he needs to help keep him as healthy as possible...I would not wait until other symptoms occur, it already sounds like he has been through the mill and back. I understand why your son might be hesitant to get CF testing due to fear or whatever reason, but as I and others have said, if it is CF then he can get aggressive treatment that would hopefully stablize his exacerbations, treat his infections better and have a better quality of life in general.

As far as your mom goes, she should have a talk with her doc regarding her concerns regarding CF possibility and testing if she desires this. Hopefully her doc will have an open mind and treat her concerns appropriately.
I will keep you and your son in my thoughts...please keep us updated. Hugs Jenn

 

[JustDucky]

I agree with everyone on this one..definitely push for CF testing (preferrably genetic panel). If it comes out positive, then he will finally get the treatment he needs to help keep him as healthy as possible...I would not wait until other symptoms occur, it already sounds like he has been through the mill and back. I understand why your son might be hesitant to get CF testing due to fear or whatever reason, but as I and others have said, if it is CF then he can get aggressive treatment that would hopefully stablize his exacerbations, treat his infections better and have a better quality of life in general.

As far as your mom goes, she should have a talk with her doc regarding her concerns regarding CF possibility and testing if she desires this. Hopefully her doc will have an open mind and treat her concerns appropriately.
I will keep you and your son in my thoughts...please keep us updated. Hugs Jenn

 

[JustDucky]

I agree with everyone on this one..definitely push for CF testing (preferrably genetic panel). If it comes out positive, then he will finally get the treatment he needs to help keep him as healthy as possible...I would not wait until other symptoms occur, it already sounds like he has been through the mill and back. I understand why your son might be hesitant to get CF testing due to fear or whatever reason, but as I and others have said, if it is CF then he can get aggressive treatment that would hopefully stablize his exacerbations, treat his infections better and have a better quality of life in general.

As far as your mom goes, she should have a talk with her doc regarding her concerns regarding CF possibility and testing if she desires this. Hopefully her doc will have an open mind and treat her concerns appropriately.
I will keep you and your son in my thoughts...please keep us updated. Hugs Jenn

 

[BryansMum]

Hi again... I want to thank you for your replies and encouragement. It's comforting to know you don't think I'm over reacting, although in a twisted way it's not so good to have my suspicions confirmed by those much more knowledgeable than I, if you know what I mean!
Anyway, I began talking to Bryan about his health a couple of weeks ago by asking him how his breathing is and whether he can feel changes in his lungs. I told him the reason I was asking is that doctors and paediatricians told us that his lungs would have been damaged by past infections, etc. This is something I'd never shared with him before. Maybe I should have... anyway... He said he thought there were no changes so far, but I could tell he was doing a lot of thinking, taking in what I said.
He tells me what is happening with his health when there is an infection or changes and I know he ensures he never 'passively smokes' and he has never smoked because he knows it would really be impossible for him.. and ruin his lungs. He has told me he has no understanding of why people would compromise their health by smoking. (He has been known to consume quantities alcohol, but has toned that down in the last few years!) He takes his regular medications and gets to the doctor if he feels there is an issue, so he is no SO bad when it comes to visiting doctors, BUT...
getting him to see the need to be tested for cf is going to be a little more tricky!

I'll keep talking with him gradually, letting him ponder on our conversations before bringing up the next thought. I think that'll work best with him.

Oh, I wanted to share one thing he said when he was about 11 years old when I was showing concern about his compromised breathing at the time,
"It's not so bad not being able to breathe you know, Mum," to which I said
"I thought it was rather essential actually." His reply? a shoulder shrug! He always shrugs his shoulders when he doesn't want any worrying to continue, and to end that sort of conversation!

I'm not sure what to do about Mum at this stage. I'll see what eventuates when I go to stay with her, and Dad, tomorrow night. She's had bowel cancer, and some follow-up issues, so this extra information might overload them at the present time...

Once again, thanks very much for your thoughts and well wishes.

 

[BryansMum]

Hi again... I want to thank you for your replies and encouragement. It's comforting to know you don't think I'm over reacting, although in a twisted way it's not so good to have my suspicions confirmed by those much more knowledgeable than I, if you know what I mean!
Anyway, I began talking to Bryan about his health a couple of weeks ago by asking him how his breathing is and whether he can feel changes in his lungs. I told him the reason I was asking is that doctors and paediatricians told us that his lungs would have been damaged by past infections, etc. This is something I'd never shared with him before. Maybe I should have... anyway... He said he thought there were no changes so far, but I could tell he was doing a lot of thinking, taking in what I said.
He tells me what is happening with his health when there is an infection or changes and I know he ensures he never 'passively smokes' and he has never smoked because he knows it would really be impossible for him.. and ruin his lungs. He has told me he has no understanding of why people would compromise their health by smoking. (He has been known to consume quantities alcohol, but has toned that down in the last few years!) He takes his regular medications and gets to the doctor if he feels there is an issue, so he is no SO bad when it comes to visiting doctors, BUT...
getting him to see the need to be tested for cf is going to be a little more tricky!

I'll keep talking with him gradually, letting him ponder on our conversations before bringing up the next thought. I think that'll work best with him.

Oh, I wanted to share one thing he said when he was about 11 years old when I was showing concern about his compromised breathing at the time,
"It's not so bad not being able to breathe you know, Mum," to which I said
"I thought it was rather essential actually." His reply? a shoulder shrug! He always shrugs his shoulders when he doesn't want any worrying to continue, and to end that sort of conversation!

I'm not sure what to do about Mum at this stage. I'll see what eventuates when I go to stay with her, and Dad, tomorrow night. She's had bowel cancer, and some follow-up issues, so this extra information might overload them at the present time...

Once again, thanks very much for your thoughts and well wishes.

 

[BryansMum]

Hi again... I want to thank you for your replies and encouragement. It's comforting to know you don't think I'm over reacting, although in a twisted way it's not so good to have my suspicions confirmed by those much more knowledgeable than I, if you know what I mean!
Anyway, I began talking to Bryan about his health a couple of weeks ago by asking him how his breathing is and whether he can feel changes in his lungs. I told him the reason I was asking is that doctors and paediatricians told us that his lungs would have been damaged by past infections, etc. This is something I'd never shared with him before. Maybe I should have... anyway... He said he thought there were no changes so far, but I could tell he was doing a lot of thinking, taking in what I said.
He tells me what is happening with his health when there is an infection or changes and I know he ensures he never 'passively smokes' and he has never smoked because he knows it would really be impossible for him.. and ruin his lungs. He has told me he has no understanding of why people would compromise their health by smoking. (He has been known to consume quantities alcohol, but has toned that down in the last few years!) He takes his regular medications and gets to the doctor if he feels there is an issue, so he is no SO bad when it comes to visiting doctors, BUT...
getting him to see the need to be tested for cf is going to be a little more tricky!

I'll keep talking with him gradually, letting him ponder on our conversations before bringing up the next thought. I think that'll work best with him.

Oh, I wanted to share one thing he said when he was about 11 years old when I was showing concern about his compromised breathing at the time,
"It's not so bad not being able to breathe you know, Mum," to which I said
"I thought it was rather essential actually." His reply? a shoulder shrug! He always shrugs his shoulders when he doesn't want any worrying to continue, and to end that sort of conversation!

I'm not sure what to do about Mum at this stage. I'll see what eventuates when I go to stay with her, and Dad, tomorrow night. She's had bowel cancer, and some follow-up issues, so this extra information might overload them at the present time...

Once again, thanks very much for your thoughts and well wishes.

 

[BryansMum]

Hi again... I want to thank you for your replies and encouragement. It's comforting to know you don't think I'm over reacting, although in a twisted way it's not so good to have my suspicions confirmed by those much more knowledgeable than I, if you know what I mean!
Anyway, I began talking to Bryan about his health a couple of weeks ago by asking him how his breathing is and whether he can feel changes in his lungs. I told him the reason I was asking is that doctors and paediatricians told us that his lungs would have been damaged by past infections, etc. This is something I'd never shared with him before. Maybe I should have... anyway... He said he thought there were no changes so far, but I could tell he was doing a lot of thinking, taking in what I said.
He tells me what is happening with his health when there is an infection or changes and I know he ensures he never 'passively smokes' and he has never smoked because he knows it would really be impossible for him.. and ruin his lungs. He has told me he has no understanding of why people would compromise their health by smoking. (He has been known to consume quantities alcohol, but has toned that down in the last few years!) He takes his regular medications and gets to the doctor if he feels there is an issue, so he is no SO bad when it comes to visiting doctors, BUT...
getting him to see the need to be tested for cf is going to be a little more tricky!

I'll keep talking with him gradually, letting him ponder on our conversations before bringing up the next thought. I think that'll work best with him.

Oh, I wanted to share one thing he said when he was about 11 years old when I was showing concern about his compromised breathing at the time,
"It's not so bad not being able to breathe you know, Mum," to which I said
"I thought it was rather essential actually." His reply? a shoulder shrug! He always shrugs his shoulders when he doesn't want any worrying to continue, and to end that sort of conversation!

I'm not sure what to do about Mum at this stage. I'll see what eventuates when I go to stay with her, and Dad, tomorrow night. She's had bowel cancer, and some follow-up issues, so this extra information might overload them at the present time...

Once again, thanks very much for your thoughts and well wishes.

 

[BryansMum]

Hi again... I want to thank you for your replies and encouragement. It's comforting to know you don't think I'm over reacting, although in a twisted way it's not so good to have my suspicions confirmed by those much more knowledgeable than I, if you know what I mean!
Anyway, I began talking to Bryan about his health a couple of weeks ago by asking him how his breathing is and whether he can feel changes in his lungs. I told him the reason I was asking is that doctors and paediatricians told us that his lungs would have been damaged by past infections, etc. This is something I'd never shared with him before. Maybe I should have... anyway... He said he thought there were no changes so far, but I could tell he was doing a lot of thinking, taking in what I said.
He tells me what is happening with his health when there is an infection or changes and I know he ensures he never 'passively smokes' and he has never smoked because he knows it would really be impossible for him.. and ruin his lungs. He has told me he has no understanding of why people would compromise their health by smoking. (He has been known to consume quantities alcohol, but has toned that down in the last few years!) He takes his regular medications and gets to the doctor if he feels there is an issue, so he is no SO bad when it comes to visiting doctors, BUT...
getting him to see the need to be tested for cf is going to be a little more tricky!

I'll keep talking with him gradually, letting him ponder on our conversations before bringing up the next thought. I think that'll work best with him.

Oh, I wanted to share one thing he said when he was about 11 years old when I was showing concern about his compromised breathing at the time,
"It's not so bad not being able to breathe you know, Mum," to which I said
"I thought it was rather essential actually." His reply? a shoulder shrug! He always shrugs his shoulders when he doesn't want any worrying to continue, and to end that sort of conversation!

I'm not sure what to do about Mum at this stage. I'll see what eventuates when I go to stay with her, and Dad, tomorrow night. She's had bowel cancer, and some follow-up issues, so this extra information might overload them at the present time...

Once again, thanks very much for your thoughts and well wishes.

 

[bittyhorse23]

I would say push for having him tested. It can't hurt it can only help.

Maybe approach the subject and say something like you just want to rule it out or something along those lines.

If it turns out he doesn't have it that is something off your mind <img src="i/expressions/face-icon-small-smile.gif" border="0">

And if he does he can get the proper treatments and start to be seen by a CF center.

Oh and welcome to the site <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[bittyhorse23]

I would say push for having him tested. It can't hurt it can only help.

Maybe approach the subject and say something like you just want to rule it out or something along those lines.

If it turns out he doesn't have it that is something off your mind <img src="i/expressions/face-icon-small-smile.gif" border="0">

And if he does he can get the proper treatments and start to be seen by a CF center.

Oh and welcome to the site <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[bittyhorse23]

I would say push for having him tested. It can't hurt it can only help.

Maybe approach the subject and say something like you just want to rule it out or something along those lines.

If it turns out he doesn't have it that is something off your mind <img src="i/expressions/face-icon-small-smile.gif" border="0">

And if he does he can get the proper treatments and start to be seen by a CF center.

Oh and welcome to the site <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[bittyhorse23]

I would say push for having him tested. It can't hurt it can only help.

Maybe approach the subject and say something like you just want to rule it out or something along those lines.

If it turns out he doesn't have it that is something off your mind <img src="i/expressions/face-icon-small-smile.gif" border="0">

And if he does he can get the proper treatments and start to be seen by a CF center.

Oh and welcome to the site <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[bittyhorse23]

I would say push for having him tested. It can't hurt it can only help.

Maybe approach the subject and say something like you just want to rule it out or something along those lines.

If it turns out he doesn't have it that is something off your mind <img src="i/expressions/face-icon-small-smile.gif" border="0">

And if he does he can get the proper treatments and start to be seen by a CF center.

Oh and welcome to the site <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[JazzysMom]

Just another thought......

Regarding asking him if he notices a differences with his breathing etc. Sometimes with CF things can be so subtle that our bodies just adapt.

That is why if CF is the cause that frequent follow ups with the doctor are important. The testing can often catch something that we wont because the progression is gradual as a rule.

I am not talking catching pneumonia & it being obvious. I am just talking the daily grind.

I missed the part about your Mom & I apologize for that. Anything is possible & its something that you might want to pursue, but right now I would concentrate on your son.

Once you make strides with him & rule out or confirm CF then address your Mom!

 

[JazzysMom]

Just another thought......

Regarding asking him if he notices a differences with his breathing etc. Sometimes with CF things can be so subtle that our bodies just adapt.

That is why if CF is the cause that frequent follow ups with the doctor are important. The testing can often catch something that we wont because the progression is gradual as a rule.

I am not talking catching pneumonia & it being obvious. I am just talking the daily grind.

I missed the part about your Mom & I apologize for that. Anything is possible & its something that you might want to pursue, but right now I would concentrate on your son.

Once you make strides with him & rule out or confirm CF then address your Mom!

 

[JazzysMom]

Just another thought......

Regarding asking him if he notices a differences with his breathing etc. Sometimes with CF things can be so subtle that our bodies just adapt.

That is why if CF is the cause that frequent follow ups with the doctor are important. The testing can often catch something that we wont because the progression is gradual as a rule.

I am not talking catching pneumonia & it being obvious. I am just talking the daily grind.

I missed the part about your Mom & I apologize for that. Anything is possible & its something that you might want to pursue, but right now I would concentrate on your son.

Once you make strides with him & rule out or confirm CF then address your Mom!

 

[JazzysMom]

Just another thought......

Regarding asking him if he notices a differences with his breathing etc. Sometimes with CF things can be so subtle that our bodies just adapt.

That is why if CF is the cause that frequent follow ups with the doctor are important. The testing can often catch something that we wont because the progression is gradual as a rule.

I am not talking catching pneumonia & it being obvious. I am just talking the daily grind.

I missed the part about your Mom & I apologize for that. Anything is possible & its something that you might want to pursue, but right now I would concentrate on your son.

Once you make strides with him & rule out or confirm CF then address your Mom!

 

[JazzysMom]

Just another thought......

Regarding asking him if he notices a differences with his breathing etc. Sometimes with CF things can be so subtle that our bodies just adapt.

That is why if CF is the cause that frequent follow ups with the doctor are important. The testing can often catch something that we wont because the progression is gradual as a rule.

I am not talking catching pneumonia & it being obvious. I am just talking the daily grind.

I missed the part about your Mom & I apologize for that. Anything is possible & its something that you might want to pursue, but right now I would concentrate on your son.

Once you make strides with him & rule out or confirm CF then address your Mom!