Hi again everyone,
Thanks for your thoughts Alyssa and Nicole-
Yep- I've decided that the best path is to talk to a doctor about my son. He doesn't have a 'regular' doctor any more because he goes to his local clinic when he has a problem. It's a large group of doctors who 'bulk bill' everyone, no extra charges (I don't know if you have that in the US. I'm in Australia). My son earns well, but said yesterday that he wouldn't go as quickly as he does for his infections if he couldn't go there. He also admitted to me that he is struggling more to breathe and taking more medication lately but when I said he perhaps should go back and get it checked in case he needs reassessment he said the doctors always say the same thing- just keep on with the medication.He then made pointed change of subject.
Alarm bells rang for me.
I'm going to talk with my 2 brothers about it. They were still medical students when Bryan was a child. (I'm the oldest.) I'll see what they have to say. My youngest brother sees some people with CF in his clinic. My other brother is an ophthalmologist, although he 'might know something', as my other brother generally says!! lol
I'll tell Mum about the rinses. There should be something like that available here. I think she uses some sort of nasal spray at the moment.
Oh, I told me daughter about my fears and she also feels he should be checked, but at the very least he has the right to know my thoughts about CF testing.
Sorry to be so long winded again. Your ideas have really helped me.
I'll see how this plan goes.
Anyway... I'll be going to Adelaide tonight to stay with my parents (it's Monday morning here- second week of the school holidays) . I'll catch up on Wednesday.
hugs and best wishes to all...
Thanks for your thoughts Alyssa and Nicole-
Yep- I've decided that the best path is to talk to a doctor about my son. He doesn't have a 'regular' doctor any more because he goes to his local clinic when he has a problem. It's a large group of doctors who 'bulk bill' everyone, no extra charges (I don't know if you have that in the US. I'm in Australia). My son earns well, but said yesterday that he wouldn't go as quickly as he does for his infections if he couldn't go there. He also admitted to me that he is struggling more to breathe and taking more medication lately but when I said he perhaps should go back and get it checked in case he needs reassessment he said the doctors always say the same thing- just keep on with the medication.He then made pointed change of subject.
Alarm bells rang for me.
I'm going to talk with my 2 brothers about it. They were still medical students when Bryan was a child. (I'm the oldest.) I'll see what they have to say. My youngest brother sees some people with CF in his clinic. My other brother is an ophthalmologist, although he 'might know something', as my other brother generally says!! lol
I'll tell Mum about the rinses. There should be something like that available here. I think she uses some sort of nasal spray at the moment.
Oh, I told me daughter about my fears and she also feels he should be checked, but at the very least he has the right to know my thoughts about CF testing.
Sorry to be so long winded again. Your ideas have really helped me.
I'll see how this plan goes.
Anyway... I'll be going to Adelaide tonight to stay with my parents (it's Monday morning here- second week of the school holidays) . I'll catch up on Wednesday.
hugs and best wishes to all...