F
fr3ak
Guest
LOL LisaV ENTER USE to work just fine, but for some reason it wants me to look illiterate, haha which isnt too hard to do lol
Cystic Fibrosis Forum (EXP)
This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!
CF Progresion
- Thread starter anonymous
- Start date
Emily65Roses
New member
Sue, I wasn't jumping on you. <img src="i/expressions/face-icon-small-smile.gif" border="0"> What you said was just a good example of what people seemed to be saying, so I used it for reference.
fr3ak,
Does the html code for para work?
I'll test test
Well it does for me.
The second test above was on the same line as "I'll test" in my message text window, but I preceeded it with the HTML code for a new para.
Start your paras with 3 characters -one right after another: angle bracket (<), then p, then close angle bracker (>).
maybe it will work for you too.
but then maybe not - still don't know why ENTER doesn't work.
-LisaV
Does the html code for para work?
I'll test test
Well it does for me.
The second test above was on the same line as "I'll test" in my message text window, but I preceeded it with the HTML code for a new para.
Start your paras with 3 characters -one right after another: angle bracket (<), then p, then close angle bracker (>).
maybe it will work for you too.
but then maybe not - still don't know why ENTER doesn't work.
-LisaV
F
fr3ak
Guest
LisaV,
you are a lifesaver LOL, the html code worked!!!! woot, least I dont look illiterate and my posts will be easier to read....I got no idea why my enter doesnt wanna work...it comes up in the edit screen with all the spaces just not when I post!
least the html code works!!!!
thanks again!!!
you are a lifesaver LOL, the html code worked!!!! woot, least I dont look illiterate and my posts will be easier to read....I got no idea why my enter doesnt wanna work...it comes up in the edit screen with all the spaces just not when I post!
least the html code works!!!!
thanks again!!!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>LisaV</b></i>
OK. I'm home now and can actually sign on.
Actually, Luke, it was your post that had ticked me off the most - tho' Charlotte's desire to be somewhat coddled because she was sensitive hadn't made my day either.
In my mind this Adult Forum is the ONE and ONLY place where adult CFers can be completely frank with one another without having to protect others in their lives, IMHO they should not have to namby pamby around or sugar coat the truth up on this board to protect parents, spouses, friends, etc. They probably all do that a bit (or a lot) in the real world.
I never asked to be 'coddled'.
Charlotte<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
For Charlotte to be upset that someone said progression goes from mild eventually and finally to dead is her problem.
For you to ask adults folks to be "sensitive" and "polite" because a parent has posted is to disenfranchise those adults and ask them to "fake it" just one more time.
Debbie, pointed out the difference just fine in my opinion. Other parents (Jane comes to mind immediately) have posted their question twice sometimes (once in Families and once in Adults) with the Adult post being phrased "I want to know how you all see it". I think its perfectly reasonable when posting in adults to get the adult viewpoint - as blunt as that might be.
You might find my viewpoint childish...and that's just fine with me.
It's kind of interesting to be called childish when I'm a 61-year old.</end quote></div>
OK. I'm home now and can actually sign on.
Actually, Luke, it was your post that had ticked me off the most - tho' Charlotte's desire to be somewhat coddled because she was sensitive hadn't made my day either.
In my mind this Adult Forum is the ONE and ONLY place where adult CFers can be completely frank with one another without having to protect others in their lives, IMHO they should not have to namby pamby around or sugar coat the truth up on this board to protect parents, spouses, friends, etc. They probably all do that a bit (or a lot) in the real world.
I never asked to be 'coddled'.
Charlotte<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
For Charlotte to be upset that someone said progression goes from mild eventually and finally to dead is her problem.
For you to ask adults folks to be "sensitive" and "polite" because a parent has posted is to disenfranchise those adults and ask them to "fake it" just one more time.
Debbie, pointed out the difference just fine in my opinion. Other parents (Jane comes to mind immediately) have posted their question twice sometimes (once in Families and once in Adults) with the Adult post being phrased "I want to know how you all see it". I think its perfectly reasonable when posting in adults to get the adult viewpoint - as blunt as that might be.
You might find my viewpoint childish...and that's just fine with me.
It's kind of interesting to be called childish when I'm a 61-year old.</end quote></div>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
So.....I am confused.
Some people think that sugarcoating is bad and some think that it is good. We obviously have had a lot of responses for both and now it seems to be getting mean. So why can't we agree to disagree and stop this? seems like we are getting no where.
My opinion is that maybe Charlotte knew the end result but wanted it stated sentively instead of bluntly. Not her fault, i can't imagine what it would be like to be a parent to a new CFer. And its not the fault of the blunt people. That is how they like it and good for them.
Lets stop the fighting..please!
(How do people get all those cute smiley faces. i only know this one
Sue 24w/CF</end quote></div>
Since I have been here (nowhere near as long as many others, but a while now anyways), I have come to realize that if you want things sugarcoated, you have come to the wrong place. I think a large majority of the regular posters here just tell it like it is, without trying to be asses. I know it must suck to be a new parent of a CF'r, but we are going to tell you the truth and be nice about it. If people don't like that, maybe they can go to this other CF forum that is much more geared towards making things sound better than what they are:
www.ultrasugarcoatedcfforum.com</end quote></div>
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
So.....I am confused.
Some people think that sugarcoating is bad and some think that it is good. We obviously have had a lot of responses for both and now it seems to be getting mean. So why can't we agree to disagree and stop this? seems like we are getting no where.
My opinion is that maybe Charlotte knew the end result but wanted it stated sentively instead of bluntly. Not her fault, i can't imagine what it would be like to be a parent to a new CFer. And its not the fault of the blunt people. That is how they like it and good for them.
Lets stop the fighting..please!
(How do people get all those cute smiley faces. i only know this one
Sue 24w/CF</end quote></div>
Since I have been here (nowhere near as long as many others, but a while now anyways), I have come to realize that if you want things sugarcoated, you have come to the wrong place. I think a large majority of the regular posters here just tell it like it is, without trying to be asses. I know it must suck to be a new parent of a CF'r, but we are going to tell you the truth and be nice about it. If people don't like that, maybe they can go to this other CF forum that is much more geared towards making things sound better than what they are:
www.ultrasugarcoatedcfforum.com</end quote></div>
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
Emily65Roses
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!</end quote></div>
You're right. He actually <u>HAS</u> CF. So how dare <i><b>you</i></b>??
Don't start a pissing contest, there's no need for it.
Oh and I happen to think sarcasm is pretty amusing. I doubt I'm the only one.
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!</end quote></div>
You're right. He actually <u>HAS</u> CF. So how dare <i><b>you</i></b>??
Don't start a pissing contest, there's no need for it.
Oh and I happen to think sarcasm is pretty amusing. I doubt I'm the only one.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!</end quote></div>
You're right. He actually <u>HAS</u> CF. So how dare <i><b>you</i></b>??
Don't start a pissing contest, there's no need for it.
Oh and I happen to think sarcasm is pretty amusing. I doubt I'm the only one.</end quote></div>
I know Sean has CF - I didn't say otherwise. Chill out.
Charlotte
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!</end quote></div>
You're right. He actually <u>HAS</u> CF. So how dare <i><b>you</i></b>??
Don't start a pissing contest, there's no need for it.
Oh and I happen to think sarcasm is pretty amusing. I doubt I'm the only one.</end quote></div>
I know Sean has CF - I didn't say otherwise. Chill out.
Charlotte
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>
General statement.. I am the first to admit that I have denial issues, not as bad as I was but still have it. I have been around this board long enough to know to take things with a grain or even at times, a truck load of salt.
I have only been diagnoised with CF for a short period of time considering a lot of you have known you whole lives and now you are adults. On this board, I have never ever been shown anything but love and support. I have been told to give myself a break, be good to myself, to give myself time.
The very people who are harsh about reality.. or who don't have problems with their reality are the very same ones who have told me to relax and be good to myself. ( mainly Emily because I used to talk to her a lot still do when I can ) Emily and I have different veiws on a lot of things, she has had her whole life to get use to her CF so she has no trouble saying it like she sees it. She is very good at lending support to me. She has helped me deal with things because she is more in touch with certain realities then I am. I have asked her a zillion questions. SHe has never told me tough sh** deal. NEVER. I in turn would never say that to a parent that has had even less time then me. I also talk to Allie often. I know that she is going through Hell right now, and doesn't have it in her to sugar coat anything, or even be to positive about anything right now. That is fine. Anyone who talked to her would know she is stuggling to survive right now and also that she is a very loving soul.
I do not veiw all aspects of CF the same way as a lot of you do, I am in a different place. Mostly still trying to find my way.. But thanks to everyones help on here, I am much better. I do think that we need to be honest with ourselves and with others about how we feel about things but I also feel bad for this mom because she is not used to the idea yet, this is new for her. I don't think she should have to suck it up and get used to it just yet and told tough crap lady your kid is going to die. No one expected that of me thankfully. I would probably have shot myself. Really No one is taking away anyones right to be expressive. But for me I do feel a little sense of obligation to try to help newer people deal in the best way for them. Only to give back what I was given.
Again, not directed at anyone. I just can't stand seeing this kind of thing.
Jennifer</end quote></div>
Good job you aren't a parent of a CFer then if you would have probably shot yourself. What good is that to anyone?
General statement.. I am the first to admit that I have denial issues, not as bad as I was but still have it. I have been around this board long enough to know to take things with a grain or even at times, a truck load of salt.
I have only been diagnoised with CF for a short period of time considering a lot of you have known you whole lives and now you are adults. On this board, I have never ever been shown anything but love and support. I have been told to give myself a break, be good to myself, to give myself time.
The very people who are harsh about reality.. or who don't have problems with their reality are the very same ones who have told me to relax and be good to myself. ( mainly Emily because I used to talk to her a lot still do when I can ) Emily and I have different veiws on a lot of things, she has had her whole life to get use to her CF so she has no trouble saying it like she sees it. She is very good at lending support to me. She has helped me deal with things because she is more in touch with certain realities then I am. I have asked her a zillion questions. SHe has never told me tough sh** deal. NEVER. I in turn would never say that to a parent that has had even less time then me. I also talk to Allie often. I know that she is going through Hell right now, and doesn't have it in her to sugar coat anything, or even be to positive about anything right now. That is fine. Anyone who talked to her would know she is stuggling to survive right now and also that she is a very loving soul.
I do not veiw all aspects of CF the same way as a lot of you do, I am in a different place. Mostly still trying to find my way.. But thanks to everyones help on here, I am much better. I do think that we need to be honest with ourselves and with others about how we feel about things but I also feel bad for this mom because she is not used to the idea yet, this is new for her. I don't think she should have to suck it up and get used to it just yet and told tough crap lady your kid is going to die. No one expected that of me thankfully. I would probably have shot myself. Really No one is taking away anyones right to be expressive. But for me I do feel a little sense of obligation to try to help newer people deal in the best way for them. Only to give back what I was given.
Again, not directed at anyone. I just can't stand seeing this kind of thing.
Jennifer</end quote></div>
Good job you aren't a parent of a CFer then if you would have probably shot yourself. What good is that to anyone?
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!</end quote></div>
You're right. He actually <u>HAS</u> CF. So how dare <i><b>you</i></b>??
Don't start a pissing contest, there's no need for it.
Oh and I happen to think sarcasm is pretty amusing. I doubt I'm the only one.</end quote></div>
I also think sarcasm is pretty amusing also, but in the right situation, otherwise it is pathetic and childish.
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!</end quote></div>
You're right. He actually <u>HAS</u> CF. So how dare <i><b>you</i></b>??
Don't start a pissing contest, there's no need for it.
Oh and I happen to think sarcasm is pretty amusing. I doubt I'm the only one.</end quote></div>
I also think sarcasm is pretty amusing also, but in the right situation, otherwise it is pathetic and childish.
Charlotte - You came here, got what you asked for. This is the internet. You ask for opinions, and you would be a fool to think that everyone is going to tell you what you want to hear.
Sean has every right to say what he thinks about sugar coating. If you can't deal with it, I strongly suggest you move to the Families forum - which is more geared to parents/families of CF patients. The adult forum tends to be mostly CF patients and spouses of CF patients (who sure as hell are not going to sugar coat a damn thing).
So kindly, stop insulting the people who post here regularly. It isn't going to win you any friends.
-Michelle
Sean has every right to say what he thinks about sugar coating. If you can't deal with it, I strongly suggest you move to the Families forum - which is more geared to parents/families of CF patients. The adult forum tends to be mostly CF patients and spouses of CF patients (who sure as hell are not going to sugar coat a damn thing).
So kindly, stop insulting the people who post here regularly. It isn't going to win you any friends.
-Michelle
JennifersHope
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>
No one expected that of me thankfully. I would probably have shot myself. Really No one is taking away anyones right to be expressive. But for me I do feel a little sense of obligation to try to help newer people deal in the best way for them. Only to give back what I was given.
Good job you aren't a parent of a CFer then if you would have probably shot yourself. What good is that to anyone?</end quote></div>
Well that one line taken out of the context of what I was trying to say isn't of any value you are right. In fact it made me laugh when I read it because that is not at all what I was trying to say. I was trying to be encouraging. LOL..
Anyway, if you are going to pick apart my sentences, I suppose you could find lots of dumb things I say. Anyone who knows me knows I wouldn't purposley be rude.
Also, It is hard not to think you are just being a troublemaker when you post and don't leave your name..
Jennifer
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>
No one expected that of me thankfully. I would probably have shot myself. Really No one is taking away anyones right to be expressive. But for me I do feel a little sense of obligation to try to help newer people deal in the best way for them. Only to give back what I was given.
Good job you aren't a parent of a CFer then if you would have probably shot yourself. What good is that to anyone?</end quote></div>
Well that one line taken out of the context of what I was trying to say isn't of any value you are right. In fact it made me laugh when I read it because that is not at all what I was trying to say. I was trying to be encouraging. LOL..
Anyway, if you are going to pick apart my sentences, I suppose you could find lots of dumb things I say. Anyone who knows me knows I wouldn't purposley be rude.
Also, It is hard not to think you are just being a troublemaker when you post and don't leave your name..
Jennifer
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>miesl</b></i>
So kindly, stop insulting the people who post here regularly. It isn't going to win you any friends.
-Michelle</end quote></div>
Here's a concept, how about everyone, regulars and non regulars, stop insulting.
Wow.
So kindly, stop insulting the people who post here regularly. It isn't going to win you any friends.
-Michelle</end quote></div>
Here's a concept, how about everyone, regulars and non regulars, stop insulting.
Wow.
JennifersHope
New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!</end quote></div>
You're right. He actually <u>HAS</u> CF. So how dare <i><b>you</i></b>??
Don't start a pissing contest, there's no need for it.
Oh and I happen to think sarcasm is pretty amusing. I doubt I'm the only one.</end quote></div>
I also think sarcasm is pretty amusing also, but in the right situation, otherwise it is pathetic and childish.</end quote></div>
Oh Yeah? Well my daddy can beat up your daddy!!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>
Sean - sarcasm is the lowest form of wit. You aren't a parent to a child with CF so - how dare you?!!!!!</end quote></div>
You're right. He actually <u>HAS</u> CF. So how dare <i><b>you</i></b>??
Don't start a pissing contest, there's no need for it.
Oh and I happen to think sarcasm is pretty amusing. I doubt I'm the only one.</end quote></div>
I also think sarcasm is pretty amusing also, but in the right situation, otherwise it is pathetic and childish.</end quote></div>
Oh Yeah? Well my daddy can beat up your daddy!!
It really seems like everyone needs to chill out. Wow! I have been keeping my distance from this whole forum a lot lately because it seems that a lot of people asking legitimate questions are getting jumped on and then their thread is taken over by the people bickering back and forth. I truly thought these forums were suppossed to be about support and sharing information. I know that as a parent of a CFer I like to read this board because I like to see how the adults with CF are doing. I value the opinions I get here because most of you have lived with CF for a lot of years so you have a lot of experience dealing with meds, therapies, feelings, school, teachers, ect.
I know that I like to try and help parents of newly diagnosed CFers on other boards I belong to get through rough times with encouragement and at least help out with questions I know the answers to and I guess I thought that the adults with CF on this board would also like to help out their fellow CFers, but helping their parents learn about CF and answering questions.
I think Charlotte had a legitimate question, does everyone's CF progress differently? I think what she was after was maybe for adults on the board to share their progression, for example how they did as a small child and through school, lots of hospitalizations, meds, infections, ect., how were your PFT's then, compared to now, ect. So basically how the disease has progressed in you. I know that as a parent of a CFer it is so encouraging for me to see all of the adults on this board doing so well, going to college, getting married, getting good jobs, having children of their own, because it gives me great hope that those things will all be a reality for my daughter as well.
So I may be mistaken, but I think that was Charlotte's point. SHe was wanting to know your experiences and how your CF has progressed, possibly to give her hope for the future, possibly to prepare her for the worst case scenerio, either way, she definitely did not get what she was looking for and I think that is sad. If anyone is still interested in actually answering the question she asked, I for one would be interested in the responses! Thanks!!!
I know that I like to try and help parents of newly diagnosed CFers on other boards I belong to get through rough times with encouragement and at least help out with questions I know the answers to and I guess I thought that the adults with CF on this board would also like to help out their fellow CFers, but helping their parents learn about CF and answering questions.
I think Charlotte had a legitimate question, does everyone's CF progress differently? I think what she was after was maybe for adults on the board to share their progression, for example how they did as a small child and through school, lots of hospitalizations, meds, infections, ect., how were your PFT's then, compared to now, ect. So basically how the disease has progressed in you. I know that as a parent of a CFer it is so encouraging for me to see all of the adults on this board doing so well, going to college, getting married, getting good jobs, having children of their own, because it gives me great hope that those things will all be a reality for my daughter as well.
So I may be mistaken, but I think that was Charlotte's point. SHe was wanting to know your experiences and how your CF has progressed, possibly to give her hope for the future, possibly to prepare her for the worst case scenerio, either way, she definitely did not get what she was looking for and I think that is sad. If anyone is still interested in actually answering the question she asked, I for one would be interested in the responses! Thanks!!!