We used to only get vitamins from them and their billing drove me nuts. I'd have it taken out of my credit card, but then they'd bill me, I'd finally give up after a few weeks and send a check. I'd end up with either a credit or additional charges. Several times I'd pay off the whole amount, only to get a bill for additional charges... Currently I have a $25 credit on my account.
With the Tobi Foundation, you have to use the CF services pharmacy and time and time again the customer service reps would flat out LIE to us. They would say the order had been sent and it wouldn't have been. Sometimes it'd be because the prescription needed to be renewed by our doctor, but they wouldn't bother to contact the doctor or us. Another time, they wouldn't send our order -- once it was ADEKs because it wasn't covered under insurance, so they weren't sure if we needed it or not. Err, I ordered it, obviously need it. Another time it was something similar with the $15 copay we had for Tobi. They weren't sure if we wanted it because.... A couple of times we had to delay starting Tobi because it hadn't arrived and then got reprimanded because we didn't contact them soon enough to reorder. We were just "silly enough" to believe when someone says an order has been sent, it's been sent. Grrr!
We wrote numerous letters and emails, filled out services about how frustrating it was dealing with their customer service reps who wouldn't return calls, would claim orders had been sent... Never got a response. In the real world, you place an order, you're notified that it's being sent with tracking numbers and it arrives. If something causes a delay or it's not available, you're notified. Not the case with the CF Service Pharmacy.