chest x-rays

[kayleesgrandma]

Kaylee gets them once a year. Last time--almost a year now, they said compared to her previous one, that she had the lungs of a 8yr old with cf (she was 3yrs)--showed clouded area, easier for me to visualize. That is when they went right out and ordered her the vest. I am anxious to see the new s-rays, and see if we have stopped the progress of this disease a little. I think once a year wont hurt.

 

[kayleesgrandma]

Kaylee gets them once a year. Last time--almost a year now, they said compared to her previous one, that she had the lungs of a 8yr old with cf (she was 3yrs)--showed clouded area, easier for me to visualize. That is when they went right out and ordered her the vest. I am anxious to see the new s-rays, and see if we have stopped the progress of this disease a little. I think once a year wont hurt.

 

[kayleesgrandma]

Kaylee gets them once a year. Last time--almost a year now, they said compared to her previous one, that she had the lungs of a 8yr old with cf (she was 3yrs)--showed clouded area, easier for me to visualize. That is when they went right out and ordered her the vest. I am anxious to see the new s-rays, and see if we have stopped the progress of this disease a little. I think once a year wont hurt.

 

[LouLou]

I get them once a year. It's good for them to see if you are 'progressing at your usual pace' or 'progressing at a faster pace than usual.' Also, xray is the key tool for pneumonia diagnosis.

 

[LouLou]

I get them once a year. It's good for them to see if you are 'progressing at your usual pace' or 'progressing at a faster pace than usual.' Also, xray is the key tool for pneumonia diagnosis.

 

[LouLou]

I get them once a year. It's good for them to see if you are 'progressing at your usual pace' or 'progressing at a faster pace than usual.' Also, xray is the key tool for pneumonia diagnosis.

 

[thefrogprincess]

It is good to get them annually or if you are having an exasserbation so they know what your baseline looks like. Recently I had pluerisy caused by an infection I didn't even know I had but it showed up on my chest x-ray. The doc compared the new x-ray and the older one and could see a spot on my right lung that was the infection.

Ultimately its your decision though. Ask your doc why he/she thinks its important, if you agree get it, if you don't agree don't get it.

 

[thefrogprincess]

It is good to get them annually or if you are having an exasserbation so they know what your baseline looks like. Recently I had pluerisy caused by an infection I didn't even know I had but it showed up on my chest x-ray. The doc compared the new x-ray and the older one and could see a spot on my right lung that was the infection.

Ultimately its your decision though. Ask your doc why he/she thinks its important, if you agree get it, if you don't agree don't get it.

 

[thefrogprincess]

It is good to get them annually or if you are having an exasserbation so they know what your baseline looks like. Recently I had pluerisy caused by an infection I didn't even know I had but it showed up on my chest x-ray. The doc compared the new x-ray and the older one and could see a spot on my right lung that was the infection.

Ultimately its your decision though. Ask your doc why he/she thinks its important, if you agree get it, if you don't agree don't get it.

 

[JustDucky]

I would say I get xrays everytime I am in the hospital (every 3-4 months usually) or when an antibiotic therapy fails to see what's up. I think I actually do glow in the dark LOL! Hugs, Jenn<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[JustDucky]

I would say I get xrays everytime I am in the hospital (every 3-4 months usually) or when an antibiotic therapy fails to see what's up. I think I actually do glow in the dark LOL! Hugs, Jenn<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[JustDucky]

I would say I get xrays everytime I am in the hospital (every 3-4 months usually) or when an antibiotic therapy fails to see what's up. I think I actually do glow in the dark LOL! Hugs, Jenn<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Gethin]

Hi,
I'm new here sorry if I don't do it right.

My baby sister (27) discovered a lump bellow her right shoulder blade some 14 months ago, she then waited 12 months for an appointment for a biopsy, which she subsequently had.

None of us expected her to have Cancer, She's so young and already has Cystic fibrosis, "life is cruel but it's not that cruel", I remember saying those words to her on Wednesday evening, "your more likely to win the lottery" I joked.

Well blow me, my mum went with her to the local hospital, she went in alone, came out said all was well to my mum and half way home admitted to her that all was not well, that in fact the doctor had told her that she has a form of Cancer, a very rare one, 2 days later she tells us that its Sclerosing epitheloid fibrosarcoma (whatever the hell that is). This is apparently only treatable in Birmingham, uk, she is now waiting for an appointment to be referred there, this should take a further 2 weeks+.
I have been on the internet looking at what this disease is and what it entails, oh my goodness.

Apparently, The form of cancer she has been brought on by the excessive x rays she has due to her CF, I believe that this type of cancer is generally a secondary Cancer, A Trojan 2 on the scale..

Can any one please advise

 

[Gethin]

Hi,
I'm new here sorry if I don't do it right.

My baby sister (27) discovered a lump bellow her right shoulder blade some 14 months ago, she then waited 12 months for an appointment for a biopsy, which she subsequently had.

None of us expected her to have Cancer, She's so young and already has Cystic fibrosis, "life is cruel but it's not that cruel", I remember saying those words to her on Wednesday evening, "your more likely to win the lottery" I joked.

Well blow me, my mum went with her to the local hospital, she went in alone, came out said all was well to my mum and half way home admitted to her that all was not well, that in fact the doctor had told her that she has a form of Cancer, a very rare one, 2 days later she tells us that its Sclerosing epitheloid fibrosarcoma (whatever the hell that is). This is apparently only treatable in Birmingham, uk, she is now waiting for an appointment to be referred there, this should take a further 2 weeks+.
I have been on the internet looking at what this disease is and what it entails, oh my goodness.

Apparently, The form of cancer she has been brought on by the excessive x rays she has due to her CF, I believe that this type of cancer is generally a secondary Cancer, A Trojan 2 on the scale..

Can any one please advise

 

[Gethin]

Hi,
I'm new here sorry if I don't do it right.

My baby sister (27) discovered a lump bellow her right shoulder blade some 14 months ago, she then waited 12 months for an appointment for a biopsy, which she subsequently had.

None of us expected her to have Cancer, She's so young and already has Cystic fibrosis, "life is cruel but it's not that cruel", I remember saying those words to her on Wednesday evening, "your more likely to win the lottery" I joked.

Well blow me, my mum went with her to the local hospital, she went in alone, came out said all was well to my mum and half way home admitted to her that all was not well, that in fact the doctor had told her that she has a form of Cancer, a very rare one, 2 days later she tells us that its Sclerosing epitheloid fibrosarcoma (whatever the hell that is). This is apparently only treatable in Birmingham, uk, she is now waiting for an appointment to be referred there, this should take a further 2 weeks+.
I have been on the internet looking at what this disease is and what it entails, oh my goodness.

Apparently, The form of cancer she has been brought on by the excessive x rays she has due to her CF, I believe that this type of cancer is generally a secondary Cancer, A Trojan 2 on the scale..

Can any one please advise

 

[Gethin]

Hi,
I'm new here sorry if I don't do it right.

My baby sister (27) discovered a lump bellow her right shoulder blade some 14 months ago, she then waited 12 months for an appointment for a biopsy, which she subsequently had.

None of us expected her to have Cancer, She's so young and already has Cystic fibrosis, "life is cruel but it's not that cruel", I remember saying those words to her on Wednesday evening, "your more likely to win the lottery" I joked.

Well blow me, my mum went with her to the local hospital, she went in alone, came out said all was well to my mum and half way home admitted to her that all was not well, that in fact the doctor had told her that she has a form of Cancer, a very rare one, 2 days later she tells us that its Sclerosing epitheloid fibrosarcoma (whatever the hell that is). This is apparently only treatable in Birmingham, uk, she is now waiting for an appointment to be referred there, this should take a further 2 weeks+.
I have been on the internet looking at what this disease is and what it entails, oh my goodness.

Apparently, The form of cancer she has been brought on by the excessive x rays she has due to her CF, I believe that this type of cancer is generally a secondary Cancer, A Trojan 2 on the scale..

Can any one please advise

 

[Gethin]

Hi,
<br />I'm new here sorry if I don't do it right.
<br />
<br />My baby sister (27) discovered a lump bellow her right shoulder blade some 14 months ago, she then waited 12 months for an appointment for a biopsy, which she subsequently had.
<br />
<br />None of us expected her to have Cancer, She's so young and already has Cystic fibrosis, "life is cruel but it's not that cruel", I remember saying those words to her on Wednesday evening, "your more likely to win the lottery" I joked.
<br />
<br />Well blow me, my mum went with her to the local hospital, she went in alone, came out said all was well to my mum and half way home admitted to her that all was not well, that in fact the doctor had told her that she has a form of Cancer, a very rare one, 2 days later she tells us that its Sclerosing epitheloid fibrosarcoma (whatever the hell that is). This is apparently only treatable in Birmingham, uk, she is now waiting for an appointment to be referred there, this should take a further 2 weeks+.
<br />I have been on the internet looking at what this disease is and what it entails, oh my goodness.
<br />
<br />Apparently, The form of cancer she has been brought on by the excessive x rays she has due to her CF, I believe that this type of cancer is generally a secondary Cancer, A Trojan 2 on the scale..
<br />
<br />Can any one please advise

 

[Kristen]

I get them once a year or if I'm sick. I think it's important to identify any issues PFTs and/or sputum cultures may not pick up. I've always figured the benefits outweighed the risks.

 

[Kristen]

I get them once a year or if I'm sick. I think it's important to identify any issues PFTs and/or sputum cultures may not pick up. I've always figured the benefits outweighed the risks.

 

[Kristen]

I get them once a year or if I'm sick. I think it's important to identify any issues PFTs and/or sputum cultures may not pick up. I've always figured the benefits outweighed the risks.