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College bound

W

welshwitch

Guest
IT should be a time to celebrate. This is the symbolic "passing of the baton" to your son. It's time that he completely take care of his CF on his own. Relish in this opportunity for growth. Good luck to him, college is the best!
 
W

welshwitch

Guest
IT should be a time to celebrate. This is the symbolic "passing of the baton" to your son. It's time that he completely take care of his CF on his own. Relish in this opportunity for growth. Good luck to him, college is the best!
 
W

welshwitch

Guest
IT should be a time to celebrate. This is the symbolic "passing of the baton" to your son. It's time that he completely take care of his CF on his own. Relish in this opportunity for growth. Good luck to him, college is the best!
 
W

welshwitch

Guest
IT should be a time to celebrate. This is the symbolic "passing of the baton" to your son. It's time that he completely take care of his CF on his own. Relish in this opportunity for growth. Good luck to him, college is the best!
 
W

welshwitch

Guest
IT should be a time to celebrate. This is the symbolic "passing of the baton" to your son. It's time that he completely take care of his CF on his own. Relish in this opportunity for growth. Good luck to him, college is the best!
 
L

Liza

New member
Hi, My oldest left for school back in 05' and now my youngest is getting ready to join her. Registering with the Office of Students with Disabilities is a huge help. Have ya'll met with the director? I'm sure you have. Having meds delivered is a great idea. We didn't do that the first two years. And it didn't really pose a problem but this last semester it was a huge help because she is on anti-rejection meds now. Also, he should know where the 24hr pharmacy is. Putting your meds in a week long container is a good idea as well. I have had my girls using them for a few years now. I also bought one of those three drawer carts for meds. not to mention the mini fridge. You don't really want to put his refridgerated meds in the common fridge. My oldest was on Colistin and Gent. so the three drawer thing worked really well, plus it fit her mechanical percussor and compressor. A frat house room has got to be roomier than a dorm room so that is great.

How far away from home will he be? If he is changing CF clinics as well as his other docs., then there's a whole lot more to do. My girls go to school 10 hrs away from home. We had to change insurance regions, new F.P doc, new referrals.

I think no matter how much you prepare you will still feel like you are missing something to make it easier for them. It's a huge step for them, especially if they didn't really handle making their appointments, calling in refills, etc. OH, if he doesn't know all his meds. names and dosages (mg.etc), have him make a list in his computer and print off a copy for his wallet.

Congrats and may he have a great year!
 
L

Liza

New member
Hi, My oldest left for school back in 05' and now my youngest is getting ready to join her. Registering with the Office of Students with Disabilities is a huge help. Have ya'll met with the director? I'm sure you have. Having meds delivered is a great idea. We didn't do that the first two years. And it didn't really pose a problem but this last semester it was a huge help because she is on anti-rejection meds now. Also, he should know where the 24hr pharmacy is. Putting your meds in a week long container is a good idea as well. I have had my girls using them for a few years now. I also bought one of those three drawer carts for meds. not to mention the mini fridge. You don't really want to put his refridgerated meds in the common fridge. My oldest was on Colistin and Gent. so the three drawer thing worked really well, plus it fit her mechanical percussor and compressor. A frat house room has got to be roomier than a dorm room so that is great.

How far away from home will he be? If he is changing CF clinics as well as his other docs., then there's a whole lot more to do. My girls go to school 10 hrs away from home. We had to change insurance regions, new F.P doc, new referrals.

I think no matter how much you prepare you will still feel like you are missing something to make it easier for them. It's a huge step for them, especially if they didn't really handle making their appointments, calling in refills, etc. OH, if he doesn't know all his meds. names and dosages (mg.etc), have him make a list in his computer and print off a copy for his wallet.

Congrats and may he have a great year!
 
L

Liza

New member
Hi, My oldest left for school back in 05' and now my youngest is getting ready to join her. Registering with the Office of Students with Disabilities is a huge help. Have ya'll met with the director? I'm sure you have. Having meds delivered is a great idea. We didn't do that the first two years. And it didn't really pose a problem but this last semester it was a huge help because she is on anti-rejection meds now. Also, he should know where the 24hr pharmacy is. Putting your meds in a week long container is a good idea as well. I have had my girls using them for a few years now. I also bought one of those three drawer carts for meds. not to mention the mini fridge. You don't really want to put his refridgerated meds in the common fridge. My oldest was on Colistin and Gent. so the three drawer thing worked really well, plus it fit her mechanical percussor and compressor. A frat house room has got to be roomier than a dorm room so that is great.

How far away from home will he be? If he is changing CF clinics as well as his other docs., then there's a whole lot more to do. My girls go to school 10 hrs away from home. We had to change insurance regions, new F.P doc, new referrals.

I think no matter how much you prepare you will still feel like you are missing something to make it easier for them. It's a huge step for them, especially if they didn't really handle making their appointments, calling in refills, etc. OH, if he doesn't know all his meds. names and dosages (mg.etc), have him make a list in his computer and print off a copy for his wallet.

Congrats and may he have a great year!
 
L

Liza

New member
Hi, My oldest left for school back in 05' and now my youngest is getting ready to join her. Registering with the Office of Students with Disabilities is a huge help. Have ya'll met with the director? I'm sure you have. Having meds delivered is a great idea. We didn't do that the first two years. And it didn't really pose a problem but this last semester it was a huge help because she is on anti-rejection meds now. Also, he should know where the 24hr pharmacy is. Putting your meds in a week long container is a good idea as well. I have had my girls using them for a few years now. I also bought one of those three drawer carts for meds. not to mention the mini fridge. You don't really want to put his refridgerated meds in the common fridge. My oldest was on Colistin and Gent. so the three drawer thing worked really well, plus it fit her mechanical percussor and compressor. A frat house room has got to be roomier than a dorm room so that is great.

How far away from home will he be? If he is changing CF clinics as well as his other docs., then there's a whole lot more to do. My girls go to school 10 hrs away from home. We had to change insurance regions, new F.P doc, new referrals.

I think no matter how much you prepare you will still feel like you are missing something to make it easier for them. It's a huge step for them, especially if they didn't really handle making their appointments, calling in refills, etc. OH, if he doesn't know all his meds. names and dosages (mg.etc), have him make a list in his computer and print off a copy for his wallet.

Congrats and may he have a great year!
 
L

Liza

New member
Hi, My oldest left for school back in 05' and now my youngest is getting ready to join her. Registering with the Office of Students with Disabilities is a huge help. Have ya'll met with the director? I'm sure you have. Having meds delivered is a great idea. We didn't do that the first two years. And it didn't really pose a problem but this last semester it was a huge help because she is on anti-rejection meds now. Also, he should know where the 24hr pharmacy is. Putting your meds in a week long container is a good idea as well. I have had my girls using them for a few years now. I also bought one of those three drawer carts for meds. not to mention the mini fridge. You don't really want to put his refridgerated meds in the common fridge. My oldest was on Colistin and Gent. so the three drawer thing worked really well, plus it fit her mechanical percussor and compressor. A frat house room has got to be roomier than a dorm room so that is great.
<br />
<br />How far away from home will he be? If he is changing CF clinics as well as his other docs., then there's a whole lot more to do. My girls go to school 10 hrs away from home. We had to change insurance regions, new F.P doc, new referrals.
<br />
<br />I think no matter how much you prepare you will still feel like you are missing something to make it easier for them. It's a huge step for them, especially if they didn't really handle making their appointments, calling in refills, etc. OH, if he doesn't know all his meds. names and dosages (mg.etc), have him make a list in his computer and print off a copy for his wallet.
<br />
<br />Congrats and may he have a great year!
<br />
<br />
<br />
<br />
 
D

dswilson67

New member
Dan already has a mini fridge for his room, that was a must. I was also thinking about getting him a microwave and a microwave sterilizer for his neb cups. Getting him a drawer organizer would be a good idea. He knows all his meds and doses. We will be getting his prescriptions at the university pharmacy, but I think I'll get back up prescriptions at Walgreens.

College is only an hour away from home and about 45 minutes from his care center. He's going to be transitioning to a big boy dr soon, I think he's ready to be treated like an adult as far as medical is concerned. He is 19 now, so according to the state of Nebraska, he is medically an adult and can make all his decisions.

He is registered with the office of disabilities and we met with his counselor.

We've been painting his room and he's really excited to go. I'm happy for him, but nervous too.
 
D

dswilson67

New member
Dan already has a mini fridge for his room, that was a must. I was also thinking about getting him a microwave and a microwave sterilizer for his neb cups. Getting him a drawer organizer would be a good idea. He knows all his meds and doses. We will be getting his prescriptions at the university pharmacy, but I think I'll get back up prescriptions at Walgreens.

College is only an hour away from home and about 45 minutes from his care center. He's going to be transitioning to a big boy dr soon, I think he's ready to be treated like an adult as far as medical is concerned. He is 19 now, so according to the state of Nebraska, he is medically an adult and can make all his decisions.

He is registered with the office of disabilities and we met with his counselor.

We've been painting his room and he's really excited to go. I'm happy for him, but nervous too.
 
D

dswilson67

New member
Dan already has a mini fridge for his room, that was a must. I was also thinking about getting him a microwave and a microwave sterilizer for his neb cups. Getting him a drawer organizer would be a good idea. He knows all his meds and doses. We will be getting his prescriptions at the university pharmacy, but I think I'll get back up prescriptions at Walgreens.

College is only an hour away from home and about 45 minutes from his care center. He's going to be transitioning to a big boy dr soon, I think he's ready to be treated like an adult as far as medical is concerned. He is 19 now, so according to the state of Nebraska, he is medically an adult and can make all his decisions.

He is registered with the office of disabilities and we met with his counselor.

We've been painting his room and he's really excited to go. I'm happy for him, but nervous too.
 
D

dswilson67

New member
Dan already has a mini fridge for his room, that was a must. I was also thinking about getting him a microwave and a microwave sterilizer for his neb cups. Getting him a drawer organizer would be a good idea. He knows all his meds and doses. We will be getting his prescriptions at the university pharmacy, but I think I'll get back up prescriptions at Walgreens.

College is only an hour away from home and about 45 minutes from his care center. He's going to be transitioning to a big boy dr soon, I think he's ready to be treated like an adult as far as medical is concerned. He is 19 now, so according to the state of Nebraska, he is medically an adult and can make all his decisions.

He is registered with the office of disabilities and we met with his counselor.

We've been painting his room and he's really excited to go. I'm happy for him, but nervous too.
 
D

dswilson67

New member
Dan already has a mini fridge for his room, that was a must. I was also thinking about getting him a microwave and a microwave sterilizer for his neb cups. Getting him a drawer organizer would be a good idea. He knows all his meds and doses. We will be getting his prescriptions at the university pharmacy, but I think I'll get back up prescriptions at Walgreens.
<br />
<br />College is only an hour away from home and about 45 minutes from his care center. He's going to be transitioning to a big boy dr soon, I think he's ready to be treated like an adult as far as medical is concerned. He is 19 now, so according to the state of Nebraska, he is medically an adult and can make all his decisions.
<br />
<br />He is registered with the office of disabilities and we met with his counselor.
<br />
<br />We've been painting his room and he's really excited to go. I'm happy for him, but nervous too.
 
A

annieop86

New member
As a fourth year college student myself I have definitly learned a few tricks along the way when it comes to surviving the pit falls of college and having cf. Most importantly I would say is make sure your son visits the Disability Resources Department at his college. I would not have gotten through my classes and school without it. The DRD center helps you manage your stress and your disease successfully. Often college professors are less then sypathetic to the fact that people with CF have about 10X more to deal with then your average college student so having a counsilor in DRD will make sure the professor understand whats going on. They can often help with tutoring, time management and getting excused absences for doctors appointments or time off for being sick. You also mensioned that he is going to be living in a frat house. In my experience with college roomates I have found it is a good idea to sit down with one of the roomates and let them know in a fair amount of detail about CF and the medications he is on and what to do incase of emergencies. If you have any more specific questions please feel free to message me or write me back here. Good Luck!!
 
A

annieop86

New member
As a fourth year college student myself I have definitly learned a few tricks along the way when it comes to surviving the pit falls of college and having cf. Most importantly I would say is make sure your son visits the Disability Resources Department at his college. I would not have gotten through my classes and school without it. The DRD center helps you manage your stress and your disease successfully. Often college professors are less then sypathetic to the fact that people with CF have about 10X more to deal with then your average college student so having a counsilor in DRD will make sure the professor understand whats going on. They can often help with tutoring, time management and getting excused absences for doctors appointments or time off for being sick. You also mensioned that he is going to be living in a frat house. In my experience with college roomates I have found it is a good idea to sit down with one of the roomates and let them know in a fair amount of detail about CF and the medications he is on and what to do incase of emergencies. If you have any more specific questions please feel free to message me or write me back here. Good Luck!!
 
A

annieop86

New member
As a fourth year college student myself I have definitly learned a few tricks along the way when it comes to surviving the pit falls of college and having cf. Most importantly I would say is make sure your son visits the Disability Resources Department at his college. I would not have gotten through my classes and school without it. The DRD center helps you manage your stress and your disease successfully. Often college professors are less then sypathetic to the fact that people with CF have about 10X more to deal with then your average college student so having a counsilor in DRD will make sure the professor understand whats going on. They can often help with tutoring, time management and getting excused absences for doctors appointments or time off for being sick. You also mensioned that he is going to be living in a frat house. In my experience with college roomates I have found it is a good idea to sit down with one of the roomates and let them know in a fair amount of detail about CF and the medications he is on and what to do incase of emergencies. If you have any more specific questions please feel free to message me or write me back here. Good Luck!!
 
A

annieop86

New member
As a fourth year college student myself I have definitly learned a few tricks along the way when it comes to surviving the pit falls of college and having cf. Most importantly I would say is make sure your son visits the Disability Resources Department at his college. I would not have gotten through my classes and school without it. The DRD center helps you manage your stress and your disease successfully. Often college professors are less then sypathetic to the fact that people with CF have about 10X more to deal with then your average college student so having a counsilor in DRD will make sure the professor understand whats going on. They can often help with tutoring, time management and getting excused absences for doctors appointments or time off for being sick. You also mensioned that he is going to be living in a frat house. In my experience with college roomates I have found it is a good idea to sit down with one of the roomates and let them know in a fair amount of detail about CF and the medications he is on and what to do incase of emergencies. If you have any more specific questions please feel free to message me or write me back here. Good Luck!!
 
A

annieop86

New member
As a fourth year college student myself I have definitly learned a few tricks along the way when it comes to surviving the pit falls of college and having cf. Most importantly I would say is make sure your son visits the Disability Resources Department at his college. I would not have gotten through my classes and school without it. The DRD center helps you manage your stress and your disease successfully. Often college professors are less then sypathetic to the fact that people with CF have about 10X more to deal with then your average college student so having a counsilor in DRD will make sure the professor understand whats going on. They can often help with tutoring, time management and getting excused absences for doctors appointments or time off for being sick. You also mensioned that he is going to be living in a frat house. In my experience with college roomates I have found it is a good idea to sit down with one of the roomates and let them know in a fair amount of detail about CF and the medications he is on and what to do incase of emergencies. If you have any more specific questions please feel free to message me or write me back here. Good Luck!!
 
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